Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying To Find Some Answers


Hd7747474

Recommended Posts

Hd7747474 Newbie

Over the last year, I have developed and have been struggling with the following symptoms. I've been calling out of work sick, canceling on social events, and just feeling irritable and lousy.

  • Diarrhea--foul-smelling, watery, several times a week
  • Foul-smelling gas
  • Lactose intolerance
  • Abdominal pain and cramping
  • Feeling like I'm about to have diarrhea but can't go

I've also had eczema for a few years now on the back of my scalp, and it has recently expanded into a bumpy, extremely itchy rash in some areas.

When I first when to the doctor, she didn't seem to take me seriously and suggested I had lactose intolerance and/or IBS. She advised me to cut out dairy and keep a food journal of what I ate and when I had symptoms. Although eliminating dairy helped a little, I was still sick several times a week. About 6 months later, she finally took me seriously and did some tests for parasites, thyroid problems, etc. All came back negative. Then she ordered a few celiac tests:

TISSUE TRANSGLUTAMINASE IGG

My value 0.34

Index <0.90

TISSUE TRANSGLUTAMINASE IGA

My value 1.11

Index <0.90

When the tIgA came back positive, I began lurking on this site, reading all up about celiac disease. My doctor finally referred me to a GI, who tested my amalyse, vitamin b12, INR, bilubrin, alkaline phosphatase, albumin and ALT. Everything except for the ALT came back normal (ALT was a little high, although it was high when I had it tested several years ago before these symptoms started).

The GI performed a colonoscopy and upper endoscopy, and the biopsies for both came back negative. The office told me this was "good news," but it wasn't for me because I was desperately looking for some answers.

I am hoping for some guidance from this community, as I'm at a loss for what to do now. My GI doesn't seem to be very proactive, so I feel like I'm my only advocate for my health.

  • What could it mean that I had positive tIgA but negative tIgG and negative biopsies?
  • Should I go gluten free now?
  • What else should I ask my doctor to do/test me for?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

there's more tests to be taken for a more complete Celiac panel...

Ttg Iga & Igg is only a small piece to the puzzle- Ttg can also be associated with other diseases (*other members on here can tell you more about that)

your GI should have also tested for:

Antigliadin Iga & Igg

total serum Iga

Endomysial Antibodies

if you're not too sick- it would be a good idea to stay on a gluten filled diet untill you get those other tests- do it soon, so u can get on a gluten free diet if u want.

im sure the other members will chime in too- A LOT of smart people on here that should have been doctors. good luck :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,052
    • Most Online (within 30 mins)
      7,748

    Robert Daquelente
    Newest Member
    Robert Daquelente
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.