Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Careful Do I Have To Be?


Aeva

Recommended Posts

Aeva Rookie

I was diagnosed with celiac 3 months ago, after a lifetime of stomach issues. I seem to be improving a bit, but have these insane stomach cramps on and off, which I think may be constipation/gas pains, with no improvement or worsening when I eat. Is this typical, and if so, what can I do to relieve it?

Also, how do I know how careful I have to be? I know some people can't drink from the same water bottle as somebody who's eaten gluten...how do I know if I have to go that far? How serious is cross-contamination (will I be ok if I take the burger off a bun or use the same toaster as my non-gluten-free parents?) Since my body is still adjusting, it's hard to know if something is really making me sick, or if I'm just healing. Are there any basic rules that every celiac needs to follow in these such cases, or does it vary from person to person?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rizz Newbie

I wish I could help with the cramping but have you looked back over sources of contamination? I have been gluten-free since June and started feeling better immediately. I know everyone's symptoms are different but my entire life was plagued by GI issues similar to yours. I was finally diagnosed at 38 and for a person who loves food this had been hard on me but I have never felt better and more alive. You have to be diligent.

Also, how do I know how careful I have to be? EXTREMELY, Cheating or skimping on your food standards can not be an option.

I know some people can't drink from the same water bottle as somebody who's eaten gluten...how do I know if I have to go that far? I was told to even verify my wife's lipsticks, hair products, and create a gluten-free area in my kitchen.

How serious is cross-contamination? As for me I have been told specifically contact to wheat anyway is bad, off a bun/grill/toaster all the same,I know it sucks. I have a separate toaster and container of butter for my gluten-free toast in the morning. Even using the same knife in the morning on my boys bagels would be a no-no. Some gum wrappers and even dusted latex gloves are dusted with wheat, so you guesses it, they're no-nos.

Are there any basic rules that every celiac needs to follow in these such cases, or does it vary from person to person? When in doubt unless you can verify it as being clean, AVOID IT. For the first couple of weeks I avoided everything unless I cooked it or bought it.

good luck

Yup Apprentice

Hi there,

I would completely avoid sharing the same toaster and drinks with a non gluten-free person. Your burger should never touch a non gluten-free bun. Your body is still getting gluten if you are having these issues.

I know it is SUCH a pain. Hang in there and I hope you feel better soon.

Skylark Collaborator

I was diagnosed with celiac 3 months ago, after a lifetime of stomach issues. I seem to be improving a bit, but have these insane stomach cramps on and off, which I think may be constipation/gas pains, with no improvement or worsening when I eat. Is this typical, and if so, what can I do to relieve it?

Also, how do I know how careful I have to be? I know some people can't drink from the same water bottle as somebody who's eaten gluten...how do I know if I have to go that far? How serious is cross-contamination (will I be ok if I take the burger off a bun or use the same toaster as my non-gluten-free parents?) Since my body is still adjusting, it's hard to know if something is really making me sick, or if I'm just healing. Are there any basic rules that every celiac needs to follow in these such cases, or does it vary from person to person?

Basic rules are avoid every single bit of gluten you know about because some of the dratted stuff is going to sneak in anyway. Tiny amounts probably won't hurt you (nobody knows for sure how much gluten it takes to do villous damage), but the tiny amounts you don't know about plus tiny amounts you DO know about will start to add up.

Removing the bun from a burger leaves crumbs on your food, as does using the same toaster. Drinking from a water bottle with someone eating gluten may not make you sick, but it's still not the best idea unless you have no other choice.

Aeva Rookie

One thing I'm also really worried about is kissing. I know several people that get "glutened" if they kiss their significant other, and they've just eaten pizza/been drinking beer, etc. My boyfriend is very diligent about making sure I'm safe when we go out to eat (and his caterer mother is a sweetheart and always makes me gluten-free meals), but I'd feel so horrible making him brush his teeth before he can kiss me after every sip of beer! Is that type of thing necessary?

Thanks for all the great answers, guys!

mushroom Proficient

Yep, I'm afraid a gluteny kiss could get ya. You could always talk him into drinking Redbridge though ;) It might be worth it for him.

Aeva Rookie

He doesn't mind Redbridge, but he is a connoisseur of all things alcohol, especially beer (just got his bartenders licence last week actually), and I wouldn't make him give that up. I guess we'll just have to be extra careful. Grrrr.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

He doesn't mind Redbridge, but he is a connoisseur of all things alcohol, especially beer (just got his bartenders licence last week actually), and I wouldn't make him give that up. I guess we'll just have to be extra careful. Grrrr.

Time to teach him to appreciate fine wine and good scotch. ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - thejayland10 replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      TTG IgA and IGA elevated mildy

    2. - trents replied to brian weinstein's topic in Coping with Celiac Disease
      3

      Cigars

    3. - brian weinstein replied to brian weinstein's topic in Coping with Celiac Disease
      3

      Cigars

    4. - trents replied to brian weinstein's topic in Coping with Celiac Disease
      3

      Cigars

    5. - brian weinstein posted a topic in Coping with Celiac Disease
      3

      Cigars


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,207
    • Most Online (within 30 mins)
      7,748

    nealp
    Newest Member
    nealp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • thejayland10
      thank yo, i still eat a bit of dairy and a fair amount of processed foods. I wonder if I have sibo... I will look into that 
    • trents
      I think the best you will be able to do is to find out if gluten, or at least wheat, barley or rye is an intentional ingredient in a smoke product and only the manufacturer can answer that question. Since smokes are regulated by the AFT and not the FDA, allergens are not required to be declared in the labeling.
    • brian weinstein
      yes i understand that pectin is gluten free ty.  i want to know if any cigars are gluten free its a simple question
    • trents
      Welcome to the forum, @brian weinstein! Gluten is a protein found in wheat barley and rye kernels. Pectin is a polysaccharide (a very complex sugar) found in the cell walls of fruits and vegetables. It is most commonly used as a thickening agent in food products, particularly jellies. So, pectin is naturally gluten free. That is not to the same as saying the cigar is gluten free.  Personally, I am reluctant to text you. I think most of us would feel the same way. Too many people already have access to our cell phone numbers.
    • brian weinstein
      i have a question i called 3 cigar manufacturers alec bradley, olivia and camacho to ask if any of their cigars are gluten free?  camacho told me that their cigars are made with pectin does that mean they are gluten free?  does anyone know the correct answer please let me know text me at (347) 219-6325 ty 
×
×
  • Create New...