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Continued Symptoms And Gluten Free?

lcarter

By lcarter
in Coping with Celiac Disease

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lcarter Contributor
lcarter
Posted

Here's something else to think about if you are continuing to have problems even though you are religious about staying on a gluten free diet. Celiac disease falls under the heading of a "Malabsorption Syndrome". It is not unusual for people with celiac disease to also have malabsorption issues with one or more of the following: dairy [all factions of milk] and fructose [found as fruit sugars + long starchy chains of fructose molecules called "Fructans"...found in wheat, plus some other foods. Sorbital, and HFCS are particularly problematic. Look up "Fructose Malabsorption" on the internet for a complete list of offending foods to avoid - be careful not to mix it up with a very serious disease with a similar name, called "Hereditary Fructose Intolerance".]. Two other frequent problem-makers for celiac disease patients are soy and corn. [There's probably others that I am not familiar with.] An elimination diet is probably your best bet for discovering what else it could be besides gluten in wheat, rye, barley...and for some of us, oats. At first, it is best to make a short list of safe foods and stick to it. Then, gradually try adding other individual offending possibilities, one at a time, every 3-5 days, or longer if you tend to have symptoms which are a delayed reaction rather than immediate. It should become very evident what is causing your continuing symptoms. Remember..."a patient can have as many diseases as he/she pleases"...so it could be more than one food causing symptoms. So, continue the elimination diet until you run through all the possibilities. Good luck...this takes some time to do on your own. Unfortunately, not many doctors are very helpful with this or knowledgeable about malabsorption syndromes in general. [i am familiar with Dairy Intolerance and Fructose Malabsorption because I have both as well as Celiac Disease. Luckily so far, corn and soy are not problematic for me.] Sure hope this helps - your situation can be sooooo frustrating! Best of luck, Linda

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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      By knitty kitty · Posted

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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