Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Food Intolerances


mercury6

Recommended Posts

mercury6 Newbie

Last year I discovered I was gluten intolerant. I've done my best to stick to a strict gluten free diet ever since. As many of you already know there's a learning curve to account for, but I felt so much better it was worth sticking to. Lingering symptoms however, prompted me to see an allergist, who advised me to eliminate additional foods. Recently, I learned I cannot tolerate soy and now it seems dairy may be giving me problems.

I have no energy. I can't focus, I'm tired all the time and I don't sleep well. I'm not depressed, but I have little inclination to do much of anything. My appetite seems to be waning more and more all the time. I have little interest in food at all. I do try to eat whole foods; fruits and vegetables when I can. When I do make the effort to prepare a meal, I regret it almost immediately, despite avoiding problem foods. Eating just seems to hurt too often.

I don't understand what's happening to me. Every time I eliminate one trigger, another pops up in its place. I'm living on kefir and tea. I'm going back to my gastroenterologist in a few weeks, but I'm not very hopeful. Does anyone have any suggestions or similar experience?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lucia Enthusiast

This happened to me. I cut out gluten, then dairy, then soy and corn. Still, I was having painful stomach cramps. After awhile, everything I ate or drank gave me cramps.

I started a specific carbohydrate diet because I thought that I might have bacterial overgrowth. It's working. I don't have a diagnosis (yet), but my pain is responding to the diet.

You should consider 1) bacterial overgrowth, or 2) colitis. Both of these can be diagnosed by a doctor.

gf-soph Apprentice

You sound a lot like I did a few months back. I am now 3 months in to an elimination diet, and I have had periods of feeling amazing, and have identified some intoleranced I didn't know about before. If you're interested, have a look for a post of mine about the RPA elimination diet, as it's a complex diet to explain and I gave some detail about it there.

Also, have you had your nutrient levels checked? I have spent a long time on a rollercoaster of iron and B12 deficiency, and they really impact on my energy and appetite when they're low. It would be a good idea to get some blood tests done if you haven't already, as these sorts of deficiencies are all too common for us.

Another thing I looked into recently was whether I might have low stomach acid. That can impact on digestion and appetite, and cause food intolerances as it allows undigested food lower into the digestive tract where it shouldn't be. I don't think that's a problem for me now my system is better on the diet, but it could be worth a look.

Hope you find something that helps, I know how frustrating it is to feel worse and worse when you are trying so hard!

mercury6 Newbie

This happened to me. I cut out gluten, then dairy, then soy and corn. Still, I was having painful stomach cramps. After awhile, everything I ate or drank gave me cramps.

I started a specific carbohydrate diet because I thought that I might have bacterial overgrowth. It's working. I don't have a diagnosis (yet), but my pain is responding to the diet.

You should consider 1) bacterial overgrowth, or 2) colitis. Both of these can be diagnosed by a doctor.

Yes, I'm at the point where everything I eat gives me stomach cramps. Thank you so much for your response and your suggestions. You have no idea how much I appreciate the help. I will definitely talk more with my doctor about it. I'm also going to look into the diet.

mercury6 Newbie

You sound a lot like I did a few months back. I am now 3 months in to an elimination diet, and I have had periods of feeling amazing, and have identified some intoleranced I didn't know about before. If you're interested, have a look for a post of mine about the RPA elimination diet, as it's a complex diet to explain and I gave some detail about it there.

Also, have you had your nutrient levels checked? I have spent a long time on a rollercoaster of iron and B12 deficiency, and they really impact on my energy and appetite when they're low. It would be a good idea to get some blood tests done if you haven't already, as these sorts of deficiencies are all too common for us.

Another thing I looked into recently was whether I might have low stomach acid. That can impact on digestion and appetite, and cause food intolerances as it allows undigested food lower into the digestive tract where it shouldn't be. I don't think that's a problem for me now my system is better on the diet, but it could be worth a look.

Hope you find something that helps, I know how frustrating it is to feel worse and worse when you are trying so hard!

I had numerous tests a year or so ago, and a recent CBC, but it looks as though I need to follow up. I will look further into the RPA elimination diet. Thank you so very much for the suggestion. And yeah, it is frustrating. I appreciate that you understand. Thanks again!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,566
    • Most Online (within 30 mins)
      7,748

    Alisha Moose
    Newest Member
    Alisha Moose
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
    • knitty kitty
      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.