Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed With Celiac

shelly184

Recommended Posts

shelly184 Newbie
shelly184
Posted

I am a 60 year old woman and I have just been diagnosed with Celiac disease and have been gluten free 6 days and I am experiencing terrible headaches. I never get headaches and from what I've read this is a withdrawal symptom. How long does this last. Should I call my doctor? Aspirin, tylenol, advil, etc. doesn't help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jakeynogluten Newbie
jakeynogluten
Posted

I am a 60 year old woman and I have just been diagnosed with Celiac disease and have been gluten free 6 days and I am experiencing terrible headaches. I never get headaches and from what I've read this is a withdrawal symptom. How long does this last. Should I call my doctor? Aspirin, tylenol, advil, etc. doesn't help. seashells01

Hey there,

Headaches are definitely normal during the first couple of weeks, especially during the first week. Your body is detoxifying itself and that can lead to a lot of symptoms until you finally get over that hump. During my first week of gluten free I had a rollercoaster ride of symptoms but most went away shortly after. Also, remember that everyone's body responds a little differently and to be patient with your recovery.

Jakey

shelly184 Newbie
shelly184
Posted
  • Author

Hey there,

Headaches are definitely normal during the first couple of weeks, especially during the first week. Your body is detoxifying itself and that can lead to a lot of symptoms until you finally get over that hump. During my first week of gluten free I had a rollercoaster ride of symptoms but most went away shortly after. Also, remember that everyone's body responds a little differently and to be patient with your recovery.

Jakey

Thanks Jakey,

I also found out that my headache may have been caused by low blood sugar, felt much better after eating some soup and an apple. That may be why I have been so tired also. Headache still there but very weak.

shelly184 Newbie
shelly184
Posted
  • Author

Hey there,

Headaches are definitely normal during the first couple of weeks, especially during the first week. Your body is detoxifying itself and that can lead to a lot of symptoms until you finally get over that hump. During my first week of gluten free I had a rollercoaster ride of symptoms but most went away shortly after. Also, remember that everyone's body responds a little differently and to be patient with your recovery.

Jakey

I'm not sure you got my reply because I have no idea how this message thing works. Hope you got it.

cassP Contributor
cassP
Posted

Thanks Jakey,

I also found out that my headache may have been caused by low blood sugar, felt much better after eating some soup and an apple. That may be why I have been so tired also. Headache still there but very weak.

can u eat anything more substancial than soup & an apple?? like meat & vegtables... nuts.. vegtables & some EVOO... eggs?? turkey & avacado... i find that a HEALTHY low carb diet balances my sugar. if i only eat fruit or some gluten free cereal- i could have a sugar drop later...

jakeynogluten Newbie
jakeynogluten
Posted

I'm not sure you got my reply because I have no idea how this message thing works. Hope you got it.

I got your reply. CassP is giving you good advice also, those foods are staples in my diet. Good luck with your recovery.

shelly184 Newbie
shelly184
Posted
  • Author

can u eat anything more substancial than soup & an apple?? like meat & vegtables... nuts.. vegtables & some EVOO... eggs?? turkey & avacado... i find that a HEALTHY low carb diet balances my sugar. if i only eat fruit or some gluten free cereal- i could have a sugar drop later...

Oh yeah, I eat steak, chicken, potatos, rice and vegies. And found gluten free rice and corn chex right in the cereal aisle of my grocery store. I also found gluten free Bisquick today. Had chicken leg breaded with crushed corn chex, potatos and spinach last nite. Today I am feeling real good. Had gluten free rice/corn cake with cottage cheese this morning, soup and crackers for lunch and another apple and I have not had a headache all day. I even walked about 1 1/2 miles at lunch. My back that has been hurting for years suddenly doesn't hurt anymore. I must have been really sick from the gluten.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cassP Contributor
cassP
Posted

Oh yeah, I eat steak, chicken, potatos, rice and vegies. And found gluten free rice and corn chex right in the cereal aisle of my grocery store. I also found gluten free Bisquick today. Had chicken leg breaded with crushed corn chex, potatos and spinach last nite. Today I am feeling real good. Had gluten free rice/corn cake with cottage cheese this morning, soup and crackers for lunch and another apple and I have not had a headache all day. I even walked about 1 1/2 miles at lunch. My back that has been hurting for years suddenly doesn't hurt anymore. I must have been really sick from the gluten.

chicken leg BREADED with crushed corn chex, potatos and spinach??????!!! can i come over???

MelindaLee Contributor
MelindaLee
Posted

Oh yeah, I eat steak, chicken, potatos, rice and vegies. And found gluten free rice and corn chex right in the cereal aisle of my grocery store. I also found gluten free Bisquick today. Had chicken leg breaded with crushed corn chex, potatos and spinach last nite. Today I am feeling real good. Had gluten free rice/corn cake with cottage cheese this morning, soup and crackers for lunch and another apple and I have not had a headache all day. I even walked about 1 1/2 miles at lunch. My back that has been hurting for years suddenly doesn't hurt anymore. I must have been really sick from the gluten.

Shelly,

Welcome to gluten-free living! Sounds like you are already feeling the benefits! All my joint pain went away, too...and I didn't even realize it was related to celiac! Sounds like you are learning well how to cook! There are lots of great resources here. Don't forget to watch any medications you do choose to take for headaches/pain are gluten-free. I know advil is, as that is what I take. Welcome again! :D

shelly184 Newbie
shelly184
Posted
  • Author

Shelly,

Welcome to gluten-free living! Sounds like you are already feeling the benefits! All my joint pain went away, too...and I didn't even realize it was related to celiac! Sounds like you are learning well how to cook! There are lots of great resources here. Don't forget to watch any medications you do choose to take for headaches/pain are gluten-free. I know advil is, as that is what I take. Welcome again! :D

Thanks for the support. I guess I'm lucky that I like to and know how to cook. I'm looking at this as sort of a new adventure. I never was a bread, pasta or desert person so I feel fortunate there. The fact that they found I have Celiac is so fortunate in relation to the people suffering and not diagnosed. Now I know what was wrong and why I was feeling lousy all the time.

shelly184 Newbie
shelly184
Posted
  • Author

chicken leg BREADED with crushed corn chex, potatos and spinach??????!!! can i come over???

I also had a case of getting many surface cavities. On check up I had 7. I was diagnosed with a biopsy during an endoscopy. This is going to be a new adventure in cooking for me. It kills me that I have 2 delicious eggplant pameseans in my freezer that I will have to give away because of the breadcrumbs. But I will find a substitute for the breadcrumbs, maybe I'll try the cornchex. Can't wait to try it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Hmart
      - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end...
    2. trents
      - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So...
    3. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

      I have a lot to learn! Thank you
    4. DebJ14
      - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies. I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved. Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. ...
    5. Hmart
      - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative. I have gone gluten free. In week 1 I had a flare-up that was similar to...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,925
    • Most Online (within 30 mins)
      7,748
    Linda Stark
    Newest Member
    Linda Stark
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Hmart
      Is this celiac?

      By Hmart · Posted

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Is this celiac?

      By trents · Posted

      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      I have a lot to learn!  Thank you
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      Is this celiac?

      By Hmart · Posted

      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.