Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed With Celiac

shelly184

Recommended Posts

shelly184 Newbie
shelly184
Posted

I am a 60 year old woman and I have just been diagnosed with Celiac disease and have been gluten free 6 days and I am experiencing terrible headaches. I never get headaches and from what I've read this is a withdrawal symptom. How long does this last. Should I call my doctor? Aspirin, tylenol, advil, etc. doesn't help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jakeynogluten Newbie
jakeynogluten
Posted

I am a 60 year old woman and I have just been diagnosed with Celiac disease and have been gluten free 6 days and I am experiencing terrible headaches. I never get headaches and from what I've read this is a withdrawal symptom. How long does this last. Should I call my doctor? Aspirin, tylenol, advil, etc. doesn't help. seashells01

Hey there,

Headaches are definitely normal during the first couple of weeks, especially during the first week. Your body is detoxifying itself and that can lead to a lot of symptoms until you finally get over that hump. During my first week of gluten free I had a rollercoaster ride of symptoms but most went away shortly after. Also, remember that everyone's body responds a little differently and to be patient with your recovery.

Jakey

shelly184 Newbie
shelly184
Posted
  • Author

Hey there,

Headaches are definitely normal during the first couple of weeks, especially during the first week. Your body is detoxifying itself and that can lead to a lot of symptoms until you finally get over that hump. During my first week of gluten free I had a rollercoaster ride of symptoms but most went away shortly after. Also, remember that everyone's body responds a little differently and to be patient with your recovery.

Jakey

Thanks Jakey,

I also found out that my headache may have been caused by low blood sugar, felt much better after eating some soup and an apple. That may be why I have been so tired also. Headache still there but very weak.

shelly184 Newbie
shelly184
Posted
  • Author

Hey there,

Headaches are definitely normal during the first couple of weeks, especially during the first week. Your body is detoxifying itself and that can lead to a lot of symptoms until you finally get over that hump. During my first week of gluten free I had a rollercoaster ride of symptoms but most went away shortly after. Also, remember that everyone's body responds a little differently and to be patient with your recovery.

Jakey

I'm not sure you got my reply because I have no idea how this message thing works. Hope you got it.

cassP Contributor
cassP
Posted

Thanks Jakey,

I also found out that my headache may have been caused by low blood sugar, felt much better after eating some soup and an apple. That may be why I have been so tired also. Headache still there but very weak.

can u eat anything more substancial than soup & an apple?? like meat & vegtables... nuts.. vegtables & some EVOO... eggs?? turkey & avacado... i find that a HEALTHY low carb diet balances my sugar. if i only eat fruit or some gluten free cereal- i could have a sugar drop later...

jakeynogluten Newbie
jakeynogluten
Posted

I'm not sure you got my reply because I have no idea how this message thing works. Hope you got it.

I got your reply. CassP is giving you good advice also, those foods are staples in my diet. Good luck with your recovery.

shelly184 Newbie
shelly184
Posted
  • Author

can u eat anything more substancial than soup & an apple?? like meat & vegtables... nuts.. vegtables & some EVOO... eggs?? turkey & avacado... i find that a HEALTHY low carb diet balances my sugar. if i only eat fruit or some gluten free cereal- i could have a sugar drop later...

Oh yeah, I eat steak, chicken, potatos, rice and vegies. And found gluten free rice and corn chex right in the cereal aisle of my grocery store. I also found gluten free Bisquick today. Had chicken leg breaded with crushed corn chex, potatos and spinach last nite. Today I am feeling real good. Had gluten free rice/corn cake with cottage cheese this morning, soup and crackers for lunch and another apple and I have not had a headache all day. I even walked about 1 1/2 miles at lunch. My back that has been hurting for years suddenly doesn't hurt anymore. I must have been really sick from the gluten.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cassP Contributor
cassP
Posted

Oh yeah, I eat steak, chicken, potatos, rice and vegies. And found gluten free rice and corn chex right in the cereal aisle of my grocery store. I also found gluten free Bisquick today. Had chicken leg breaded with crushed corn chex, potatos and spinach last nite. Today I am feeling real good. Had gluten free rice/corn cake with cottage cheese this morning, soup and crackers for lunch and another apple and I have not had a headache all day. I even walked about 1 1/2 miles at lunch. My back that has been hurting for years suddenly doesn't hurt anymore. I must have been really sick from the gluten.

chicken leg BREADED with crushed corn chex, potatos and spinach??????!!! can i come over???

MelindaLee Contributor
MelindaLee
Posted

Oh yeah, I eat steak, chicken, potatos, rice and vegies. And found gluten free rice and corn chex right in the cereal aisle of my grocery store. I also found gluten free Bisquick today. Had chicken leg breaded with crushed corn chex, potatos and spinach last nite. Today I am feeling real good. Had gluten free rice/corn cake with cottage cheese this morning, soup and crackers for lunch and another apple and I have not had a headache all day. I even walked about 1 1/2 miles at lunch. My back that has been hurting for years suddenly doesn't hurt anymore. I must have been really sick from the gluten.

Shelly,

Welcome to gluten-free living! Sounds like you are already feeling the benefits! All my joint pain went away, too...and I didn't even realize it was related to celiac! Sounds like you are learning well how to cook! There are lots of great resources here. Don't forget to watch any medications you do choose to take for headaches/pain are gluten-free. I know advil is, as that is what I take. Welcome again! :D

shelly184 Newbie
shelly184
Posted
  • Author

Shelly,

Welcome to gluten-free living! Sounds like you are already feeling the benefits! All my joint pain went away, too...and I didn't even realize it was related to celiac! Sounds like you are learning well how to cook! There are lots of great resources here. Don't forget to watch any medications you do choose to take for headaches/pain are gluten-free. I know advil is, as that is what I take. Welcome again! :D

Thanks for the support. I guess I'm lucky that I like to and know how to cook. I'm looking at this as sort of a new adventure. I never was a bread, pasta or desert person so I feel fortunate there. The fact that they found I have Celiac is so fortunate in relation to the people suffering and not diagnosed. Now I know what was wrong and why I was feeling lousy all the time.

shelly184 Newbie
shelly184
Posted
  • Author

chicken leg BREADED with crushed corn chex, potatos and spinach??????!!! can i come over???

I also had a case of getting many surface cavities. On check up I had 7. I was diagnosed with a biopsy during an endoscopy. This is going to be a new adventure in cooking for me. It kills me that I have 2 delicious eggplant pameseans in my freezer that I will have to give away because of the breadcrumbs. But I will find a substitute for the breadcrumbs, maybe I'll try the cornchex. Can't wait to try it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. MauraBue
      - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Have Tru Joy Sweets Choco Chews been discontinued??

      Help! My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac. Her favorite candy in the world is tootsie rolls. I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase. Have they been discontinued?? Does anyone have another recommendation...
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      how much gluten do I need to eat before blood tests?

      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others thanks again for all the great info
    3. suek54
      - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later. The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied...
    4. knitty kitty
      - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too. I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy). Niacin has been used since the 1950's to improve dermatitis herpetiformis. I try to balance my iodine intake (which will cause flairs...
    5. suek54
      - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,260
    • Most Online (within 30 mins)
      7,748
    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • MauraBue
      Have Tru Joy Sweets Choco Chews been discontinued??

      By MauraBue · Posted

      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By knitty kitty · Posted

      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.