Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed With Celiac

shelly184

Recommended Posts

shelly184 Newbie
shelly184
Posted

I am a 60 year old woman and I have just been diagnosed with Celiac disease and have been gluten free 6 days and I am experiencing terrible headaches. I never get headaches and from what I've read this is a withdrawal symptom. How long does this last. Should I call my doctor? Aspirin, tylenol, advil, etc. doesn't help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jakeynogluten Newbie
jakeynogluten
Posted

I am a 60 year old woman and I have just been diagnosed with Celiac disease and have been gluten free 6 days and I am experiencing terrible headaches. I never get headaches and from what I've read this is a withdrawal symptom. How long does this last. Should I call my doctor? Aspirin, tylenol, advil, etc. doesn't help. seashells01

Hey there,

Headaches are definitely normal during the first couple of weeks, especially during the first week. Your body is detoxifying itself and that can lead to a lot of symptoms until you finally get over that hump. During my first week of gluten free I had a rollercoaster ride of symptoms but most went away shortly after. Also, remember that everyone's body responds a little differently and to be patient with your recovery.

Jakey

shelly184 Newbie
shelly184
Posted
  • Author

Hey there,

Headaches are definitely normal during the first couple of weeks, especially during the first week. Your body is detoxifying itself and that can lead to a lot of symptoms until you finally get over that hump. During my first week of gluten free I had a rollercoaster ride of symptoms but most went away shortly after. Also, remember that everyone's body responds a little differently and to be patient with your recovery.

Jakey

Thanks Jakey,

I also found out that my headache may have been caused by low blood sugar, felt much better after eating some soup and an apple. That may be why I have been so tired also. Headache still there but very weak.

shelly184 Newbie
shelly184
Posted
  • Author

Hey there,

Headaches are definitely normal during the first couple of weeks, especially during the first week. Your body is detoxifying itself and that can lead to a lot of symptoms until you finally get over that hump. During my first week of gluten free I had a rollercoaster ride of symptoms but most went away shortly after. Also, remember that everyone's body responds a little differently and to be patient with your recovery.

Jakey

I'm not sure you got my reply because I have no idea how this message thing works. Hope you got it.

cassP Contributor
cassP
Posted

Thanks Jakey,

I also found out that my headache may have been caused by low blood sugar, felt much better after eating some soup and an apple. That may be why I have been so tired also. Headache still there but very weak.

can u eat anything more substancial than soup & an apple?? like meat & vegtables... nuts.. vegtables & some EVOO... eggs?? turkey & avacado... i find that a HEALTHY low carb diet balances my sugar. if i only eat fruit or some gluten free cereal- i could have a sugar drop later...

jakeynogluten Newbie
jakeynogluten
Posted

I'm not sure you got my reply because I have no idea how this message thing works. Hope you got it.

I got your reply. CassP is giving you good advice also, those foods are staples in my diet. Good luck with your recovery.

shelly184 Newbie
shelly184
Posted
  • Author

can u eat anything more substancial than soup & an apple?? like meat & vegtables... nuts.. vegtables & some EVOO... eggs?? turkey & avacado... i find that a HEALTHY low carb diet balances my sugar. if i only eat fruit or some gluten free cereal- i could have a sugar drop later...

Oh yeah, I eat steak, chicken, potatos, rice and vegies. And found gluten free rice and corn chex right in the cereal aisle of my grocery store. I also found gluten free Bisquick today. Had chicken leg breaded with crushed corn chex, potatos and spinach last nite. Today I am feeling real good. Had gluten free rice/corn cake with cottage cheese this morning, soup and crackers for lunch and another apple and I have not had a headache all day. I even walked about 1 1/2 miles at lunch. My back that has been hurting for years suddenly doesn't hurt anymore. I must have been really sick from the gluten.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cassP Contributor
cassP
Posted

Oh yeah, I eat steak, chicken, potatos, rice and vegies. And found gluten free rice and corn chex right in the cereal aisle of my grocery store. I also found gluten free Bisquick today. Had chicken leg breaded with crushed corn chex, potatos and spinach last nite. Today I am feeling real good. Had gluten free rice/corn cake with cottage cheese this morning, soup and crackers for lunch and another apple and I have not had a headache all day. I even walked about 1 1/2 miles at lunch. My back that has been hurting for years suddenly doesn't hurt anymore. I must have been really sick from the gluten.

chicken leg BREADED with crushed corn chex, potatos and spinach??????!!! can i come over???

MelindaLee Contributor
MelindaLee
Posted

Oh yeah, I eat steak, chicken, potatos, rice and vegies. And found gluten free rice and corn chex right in the cereal aisle of my grocery store. I also found gluten free Bisquick today. Had chicken leg breaded with crushed corn chex, potatos and spinach last nite. Today I am feeling real good. Had gluten free rice/corn cake with cottage cheese this morning, soup and crackers for lunch and another apple and I have not had a headache all day. I even walked about 1 1/2 miles at lunch. My back that has been hurting for years suddenly doesn't hurt anymore. I must have been really sick from the gluten.

Shelly,

Welcome to gluten-free living! Sounds like you are already feeling the benefits! All my joint pain went away, too...and I didn't even realize it was related to celiac! Sounds like you are learning well how to cook! There are lots of great resources here. Don't forget to watch any medications you do choose to take for headaches/pain are gluten-free. I know advil is, as that is what I take. Welcome again! :D

shelly184 Newbie
shelly184
Posted
  • Author

Shelly,

Welcome to gluten-free living! Sounds like you are already feeling the benefits! All my joint pain went away, too...and I didn't even realize it was related to celiac! Sounds like you are learning well how to cook! There are lots of great resources here. Don't forget to watch any medications you do choose to take for headaches/pain are gluten-free. I know advil is, as that is what I take. Welcome again! :D

Thanks for the support. I guess I'm lucky that I like to and know how to cook. I'm looking at this as sort of a new adventure. I never was a bread, pasta or desert person so I feel fortunate there. The fact that they found I have Celiac is so fortunate in relation to the people suffering and not diagnosed. Now I know what was wrong and why I was feeling lousy all the time.

shelly184 Newbie
shelly184
Posted
  • Author

chicken leg BREADED with crushed corn chex, potatos and spinach??????!!! can i come over???

I also had a case of getting many surface cavities. On check up I had 7. I was diagnosed with a biopsy during an endoscopy. This is going to be a new adventure in cooking for me. It kills me that I have 2 delicious eggplant pameseans in my freezer that I will have to give away because of the breadcrumbs. But I will find a substitute for the breadcrumbs, maybe I'll try the cornchex. Can't wait to try it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract. They can stimulate IgG antibody production as your blood test shows. Even beans have lectins. You've simply eaten too many lectins and irritated your digestive tract. You may want to allow your digestive tract...
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. ...
    3. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.
    4. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding. I will have my first appt with a GI dr on March 4th I will not eat gluten again - at least not on purpose ...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748
    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.