Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Regarding Magnesium Injections

Nanjee

By Nanjee
in Related Issues & Disorders

Recommended Posts

Nanjee Rookie
Nanjee
Posted

:) Hi cdford - I am a "newbie" - diagnosed with severe gluten intolerance through Entero Lab - I have also had Fibro for 20 years ;) Lived well with it until the last 4-1/2 years. Gluten intolerance has added some very bad things to the pot !!!

I have been browsing this site for a while now - and finally had the courage to make a few posts.

Your post reagrding magnesium injections mad me almost fall off of my chair !!!

I have been recieving mag injections - 1000 mg/weekly - for 5-1/2 months. I am SO excited to see that there is someone else out there who also uses mag IM.

It has relieved my migraines (mostly) - does help with some pain - gives me a little more energy - makes me feel warmer - shut down muscle spasms - they have been a Godsend after spending 4-1/2 years thinking I was certainly dying.

My husband has learned how to give the injections, so we will be able to do them at home. We also may use them a little more often - maybe 500 mg every 2nd or third day. We give them deep into the big old Glute muscles :)

Thanks also for posting the gluten-free brand names of Xylocaine - my internist will be ordering for me next week - and I am going to let him know this information.

There is such a wealth of knowledge here - I am sure it will take me quite a while to sift through it all.

I bet you never knew when you posted this that you would be helping out a newbie so much ----- thank you !!!

I am looking forward to getting to know you all better.

Hugs to you .......

Nanjee

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cdford Contributor
cdford
Posted

Thanks Nanjee. I am sorry that you are having to use the IM version. My endocrinologist says that they are not better, just more painful than the subcutaneous ones. They do work quickly and make a world of difference. I am glad to have given you some information and some encouragement. Keep me posted on how you are doing. You will probably see your FMS symptoms get much better over time. I know I have.

Do you also have more trouble with weather changes? Those thunder storms and weather fronts can be a real pain (both literally and figuratively).

Nanjee Rookie
Nanjee
Posted
  • Author

Thanks for your reply Donna :)

Yes - weather plays a big part in FM. I live in Wisconsin - and the humudity has been so high this summer it is sickening. Between that and the barometer going up and down several times a day - well inside with the a/c running is where I stay.

I actually feel "ill" going out into the heat and humudity.

I lived so well with FM for so long - and this set back has really been hard for me to take. I was used to going and going (like that bunny on TV !!!) - had flares - but could get them under control within a few days. Not only has the gluten intolerance thrown a wrench into the FM - but I didn't listen to my body very well - ran my own business and just kept going. Right now I have been unable to really work for the past 6-8 months. Time to get my body back into shape - one step at a time.

If nothing else - I have learned to appreciate life a little more, and not be so driven. Chronic pain certainly humbles a person. Luckily I have a good rheumy - and he is doing all he can to help me. The rest is up to me !!!

Magnesium is such a wonderful mineral - it is the most beneficial med to me right now. Pain meds cover the pain - but getting to the root of the pain is the goal.

Do you have blood levels done for red blood cell mag every so often ?? I need to get another mag level and Vit D level done again next week.

Not a fun illness - but it could be worse. More and more research is being done.

Wishing you a pain free day - and thanks again. I have printed out your message regarding the mag subq's - and will share this with my internist.

Hugs,

Nancy

cdford Contributor
cdford
Posted

I know about that heat thing! My pain levels may be much higher during the winter, but at least I can still think even through the pain meds. The heat just drains me. Being in Georgia, we get the heat and the humidity for several months out of the year. Praise God for A/C.

My blood levels have become stable for everything except my liver enzymes and my cholesterol since going gluten-free. The endo only tests once a year or so now. Just one of the long term benefits of being gluten-free...fewer needles in the long run.

Nanjee Rookie
Nanjee
Posted
  • Author

Hi Donna - hope you don't get sick of me asking about magnesium ???!!!!!!!

When you have a few free minutes, would you be willing to share some of the background you have with Mag IM's (SubQ's) with me ??? I would really like to share this info with my internist - who has been a Godsend.

How long have you been doing the injections ? How often do you inject them ?

Can a person get TOO much magnesium ? (I don't feel that way right now - I feel like I need another injection !!!)

My internist has been SO good - he's willing to go out on a limb and try new things. He and I, I think, are both surprised as to how well the Mag IM's deliver antispasmodic properties to my muscles. Obviously - this is a VERY mush needed mineral in my body.

I have tried and tried the oral mag - all different types - and just end up with super loose stools - I don't want that again !!! :o

With the mag IM's - my intestines almost seem to "calm down". Natures own muscle relaxant !!!!

Right now my shoulders, neck, and head feel as if they were in a vice. Makes me very nauseated, and dizzy. Within one hour of injection - my head feels so much clearer - and the pain is gone.

But then to wait another week for the next injection - it's just too long of a wait. :(

My husband has now learned to give the shots - I draw them up and he injects - and I am thinking that 500 mg every 2-3 days may help me tremendously. Maybe not this dose forever - but for right now I am looking at quality of life and comfort.

I have never had FM pain this severe in 20 years - but my upper body muscles just can not release themselves. I have to call the nurse tomorrow to put in a prescription to the pharmacy.

I know some people who take 1000 mg Orally of mag every day - wish I could be one of them !!! Maybe some day ???

Thank you so much in advance for your support. Again - you will never know how much you have helped this "newbie" :) Blessings to you !!!

Hugs,

Nancy

Nanjee Rookie
Nanjee
Posted
  • Author

I'm bumping this up for Donna .

Thank you :+)

Nancy

cdford Contributor
cdford
Posted

Thank you, Nancy. I have had a full week and haven't gotten back to this one.

I will be glad to share any info I can on the mag sulfate injections. They have been wonder drugs for me over the past few years. I began in the mid/late 90s. If your doctor would like to contact my endocrinologist who prescribed them, I'm sure Dr. Delcher would be happy to give him even more info.

I like the smaller subq shots because I can use them as needed and I get a very quick (minutes) hit from them. When my hand is curled so badly that my nails are cutting into my palm, they will begin to loosen almost before the end of the shot.

You probably can get too much magnesium, but I am not certain where that break point would be. I know that we need more than most people because our bodies do not use it properly and our muscles use too much.

You may also want to ask if you can get a prescription muscle relaxer such as Soma (gluten-free generics available) on a short term basis to let you relax a little. If the problem is just shortness of magnesium, they might not help in the long run anyway.

There is another post going right now on FMS that has a good list of meds in it. I just added it today along with a long post with encouragement and positive steps to take.

E-mail me and I will share the detailed info on the doctor if you would like it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nanjee Rookie
Nanjee
Posted
  • Author

Hugs to you, Donna ----- email on it's way.

Such a nice person to take time to share with me ......

I just can't thank you enough :)

Nancy

  • 2 weeks later...
Nanjee Rookie
Nanjee
Posted
  • Author

Hi Donna :)

Just a quick thank you - again - for all the info regarding Mag injections.

I pick up all of my "little vials" today - 500 mg IM every 4-5 days.

We'll see if that amount is enough to cover the awful headaches and muscle spasm. Sure hope so !!!

At least my internist is willing to try - and that means so much. A good doctor never stops learning, I think.

He looked at all the info you gave me, and ordered the gluten free med.

Hope you are doing well - and that the heat and humudity isn't too bad. FM does NOT like barometer changes, or high dew points. Our barometer has been going up and down for the past 2 weeks - humidity and dew points as if this were Florida - YUCK :angry:

I truely wait for autumn - sounds crazy - but autumn in Wisconsin is the best I ever feel.

Thanks again, Donna ............

Hugs,

Nancy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,964
    • Most Online (within 30 mins)
      7,748
    Cbear
    Newest Member
    Cbear
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.