Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Varying Types Of Reactions-- All From Gluten?


GFshay

Recommended Posts

GFshay Apprentice

I'm only about a month into the gluten-free diet and have been quite careful. I'm avoiding most processed foods and whenever I do eat processed stuff I make sure it's not made in a shared facility.

That said, I've been having random bouts of very different symptoms. I'd say about 60% of my week each week has been symptomatic in some way. Sometimes it's been foggy brain and vertigo, other times it's been stomach pain or D, and sometimes it's bloating but no pain or D. I'm trying to learn what my pattern of reaction is to getting glutened, but so far it's been a total mystery every time. Each bout lasts 3-4 days. Very frustrating. At least before my diagnosis I had D on a pretty regular basis and knew how to manage it (lots of Imodium)...

Should I assume all of these are possible signs of gluten cross-contamination? I wouldn't be surprised if I have other sensitivities but I'm trying not to get too anxious over the whole thing by tracking my every bite of food just yet. I figure I need time for my villi to heal before I can know what's causing what.

Is it possible to have totally varying reactions in the same person, all to gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



adab8ca Enthusiast

Hi there

A month gluten-free is not very long at all. Celiac is a great mimic and the symptoms can vary wildly. My symptoms were neurological in various forms. I have been gluten-free just over 2 months and still have many symptoms. I developed NEW symptoms after going gluten-free (vertigo/lightheadedness) that seems to subsiding somewhat. You won't get better overnight. That being said, I can't speculate if it is Celiac, if you have other food intolerances because everyone is SO different. However, I would definitely give it more time before I started worrying too much.

Good luck!

Ada

GFshay Apprentice

I'm glad to hear I'm not the only one with new symptoms (same thing with me: vertigo etc), although I'm sorry to hear you're experiencing that.

I keep hearing everyone's voices in my head to "give it time" and just be patient... easier said than done, right? Anyway, thanks for the reassurance. I need to get out my head a bit, I think.

cassP Contributor

yes- symptoms vary GREATLY whether to gluten or during healing.

ALSO- for me personally- it took me 2-3 weeks to feel significantly better. and in that first 2-3 weeks, i could have gluten like pain/symptoms from ANYTHING!!! including drinking water. that's just the way it is- untill your body is pretty much healed & normalized- you can almost feel sick from anything. during this transition period, you really can identify additional food intolerances.

but it's a pretty good idea to avoid dairy for a few months for sure

Looking for answers Contributor

Have you tried to temporarily cut out other major allergens, such as soy and dairy? This may help you through the recovery process and then you can try introducing them back slowly. Dairy really hurts my digestive track as well.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,059
    • Most Online (within 30 mins)
      7,748

    VictoriaNaoma
    Newest Member
    VictoriaNaoma
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.