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Joint And Muscle Pain

DHSherry

By DHSherry
in Coping with Celiac Disease

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DHSherry Newbie
DHSherry
Posted

I was diagnosed with DH several years ago and take 100mg of Dapsone which keeps my skin clear. I have been Gluten lite and never went gluten free for the Dapsone resolved my major issue as the other symptoms where very minimal until now. 6 months ago I began experiencing foot and toe pain, then calf and knee pain. I was sent off for a sleep study and diagnosed with Sleep Apnea. Although I feel better on CPAP. I still have this joint and muscle pain. Positive celiac, (already knew due to biopsy years ago)lyme disease negative, slightly elevated ANA. My appt with Rheumotologist after waiting 5 months is Weds. My questions is did anyone experience, wierd foot, toe pain and pain in your calves like your muscles had shrunk? im scared it's lupus, but hoping it's as easy as removing gluten totally out of my diet. Any advice when I see the doctor? Neurologist seems to think its just not sleep. My general PA, seems to know very little. I feel like i'm falling apart with no answers.

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GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Some of my worst symptoms were actually joint point and muscle weakness. You need to go gluten free completely. All you have done is mask the symtpoms. Continuing to eat even a small amount of gluten is doing damage to you body even if you don't have bad gastro-intestinal syptoms. You should still get checked for other auto-immune diseases such as lupus, however. Untreated celiac (which is what you have since you have not been gluten free) often goes hand in hand with other auto-immune diseases. Also have your thyroid checked and your vitamin levels checked. You may not get diagnosed with anything else at this point, but the possibility should be enough to make you get serious about your going 100% gluten free.

kim:) Apprentice
kim:)
Posted

Hi,

You may not know but many forms of arthritis are connected to Celiac Disease along with many other diseases/limitations. I am 17 but I also have joint pain and I am on an extremely strict gluten-free diet..so I would ask you doctor what all joint/disease/limitations are connected to Celiac Disease and if you can not come up with anything with a doctor(s) then I hopefully they will discover what else the problem could be.

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