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My Results - Please Help


Twenty4isours

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Twenty4isours Rookie

Hello,

I just picked up my results and here they are:

TTG IgA AB < 3 U/ml

<5 U/ML Negative

tTG IgG Ab < 3 U/ml

<7 U/mL Negative

Gliadin Antibody, IgA < 3 U/ml

<11 U/ML Negative

Gliadin Antibody, IgG 9

<11 U/Ml Negative

I was gluten free for a month prior to the test.

I've now been gluten free for almost 2 months and the difference is drastic. My gas is gone, my energy levels improved, I could remember things, going to the bathroom more and my depression disappeared.


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glufreecali Newbie

I agree, I felt like a "brain fog" lifted and it was crazy. I just dont have an immediate reaction to gluten (or so I thought) and the depression that hit for the 2-3 days post eating it (accidentally) was extremly brutal. I wasnt sure if that was even possible but aparently it is.

My energy is great w/o gluten, mental clarity and overall mood. I dont get "sick" but apparently my "reaction" is much worse than i thought.

Also, i do believe that the longer I am gluten free (about 5 months now) the heavier the reaction if I am glutened.

Scary.

Hello,

I just picked up my results and here they are:

TTG IgA AB < 3

tTG IgG Ab < 3

Gliadin Antibody, IgA < 3

Gliadin Antibody, IgG 9

I was gluten free for a month prior to the test.

I've now been gluten free for almost 2 months and the difference is drastic. My gas is gone, my energy levels improved, I could remember things, going to the bathroom more and my depression disappeared.

Marz Enthusiast

Hi there,

Do you have the full results? Most blood tests come with a range, for example < 4 is negative, and > 4 is positive. We need the ranges to say whether the results are negative or positive.

Did they do a total IgA count as well - that's to check if you have low IgA which would cause a potential "false negative" blood test.

Blood tests can be inconclusive - a positive result will confirm the diagnosis for sure, but a negative result doesn't rule out celiac disease. Lots of people including me have negative tests and biopsy, but diet proved that gluten is a problem, and so are strictly gluten-free anyway.

Twenty4isours Rookie

I had edited the test results.

Everything came back negative. I will be getting a biopsy done now that I have medical coverage. I'd like to see if I have any damage done to my villi. My feelings suggest I do have some sort of a malabsorption because of the white spots on my fingernails but I'm not really sure.

cyberprof Enthusiast

Hello,

I just picked up my results and here they are:

TTG IgA AB < 3 U/ml

<5 U/ML Negative

tTG IgG Ab < 3 U/ml

<7 U/mL Negative

Gliadin Antibody, IgA < 3 U/ml

<11 U/ML Negative

Gliadin Antibody, IgG 9

<11 U/Ml Negative

I was gluten free for a month prior to the test.

I've now been gluten free for almost 2 months and the difference is drastic. My gas is gone, my energy levels improved, I could remember things, going to the bathroom more and my depression disappeared.

Sorry to say, but your blood test was worse than useless, as it may lead you or your doctor to say that you don't have celiac. You will never know for sure unless you go back on wheat for several months, eating 3+ slices of bread a day. Even then, blood tests are amazingly inaccurate: The celiac blood test is notorious for "false negatives" whereas a positive result is almost never wrong.

If you feel better off gluten, take that as your diagnosis. Or go back on gluten (called a "gluten challenge") and get the tests if you need to prove it to yourself, your family or your employer. But most who have a good result of the diet like you find that going back on gluten is much too painful. Best of luck to you.

Twenty4isours Rookie

Sorry to say, but your blood test was worse than useless, as it may lead you or your doctor to say that you don't have celiac. You will never know for sure unless you go back on wheat for several months, eating 3+ slices of bread a day. Even then, blood tests are amazingly inaccurate: The celiac blood test is notorious for "false negatives" whereas a positive result is almost never wrong.

If you feel better off gluten, take that as your diagnosis. Or go back on gluten (called a "gluten challenge") and get the tests if you need to prove it to yourself, your family or your employer. But most who have a good result of the diet like you find that going back on gluten is much too painful. Best of luck to you.

Well thanks for the information. Last night I decided to eat a piece of rye bread to see what would happen to me since it's been a while. Well, about 15 minutes after eating it I was depressed and had to go lay down. I fell asleep at 8 pm (suprised I fell asleep so fast with ravaging stomach pains) and woke up at 8am this morning and felt like I was hit by a train. My whole body was sore and my stomach was rumbling and making a squeaking sound I've never heard before. My depression faded earlier this afternoon but my body is still sore. This most definitely sealed the deal but I want to get a biopsy done to see how much damage has been done to my stomach. I remember feeling spaced out, depressed, and lethargic ever since early 2nd grade (im now 21). I'm a totally different person now with a total different view on life!

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    • trents
      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
    • melthebell
      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
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