Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Results - Please Help


Twenty4isours

Recommended Posts

Twenty4isours Rookie

Hello,

I just picked up my results and here they are:

TTG IgA AB < 3 U/ml

<5 U/ML Negative

tTG IgG Ab < 3 U/ml

<7 U/mL Negative

Gliadin Antibody, IgA < 3 U/ml

<11 U/ML Negative

Gliadin Antibody, IgG 9

<11 U/Ml Negative

I was gluten free for a month prior to the test.

I've now been gluten free for almost 2 months and the difference is drastic. My gas is gone, my energy levels improved, I could remember things, going to the bathroom more and my depression disappeared.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



glufreecali Newbie

I agree, I felt like a "brain fog" lifted and it was crazy. I just dont have an immediate reaction to gluten (or so I thought) and the depression that hit for the 2-3 days post eating it (accidentally) was extremly brutal. I wasnt sure if that was even possible but aparently it is.

My energy is great w/o gluten, mental clarity and overall mood. I dont get "sick" but apparently my "reaction" is much worse than i thought.

Also, i do believe that the longer I am gluten free (about 5 months now) the heavier the reaction if I am glutened.

Scary.

Hello,

I just picked up my results and here they are:

TTG IgA AB < 3

tTG IgG Ab < 3

Gliadin Antibody, IgA < 3

Gliadin Antibody, IgG 9

I was gluten free for a month prior to the test.

I've now been gluten free for almost 2 months and the difference is drastic. My gas is gone, my energy levels improved, I could remember things, going to the bathroom more and my depression disappeared.

Marz Enthusiast

Hi there,

Do you have the full results? Most blood tests come with a range, for example < 4 is negative, and > 4 is positive. We need the ranges to say whether the results are negative or positive.

Did they do a total IgA count as well - that's to check if you have low IgA which would cause a potential "false negative" blood test.

Blood tests can be inconclusive - a positive result will confirm the diagnosis for sure, but a negative result doesn't rule out celiac disease. Lots of people including me have negative tests and biopsy, but diet proved that gluten is a problem, and so are strictly gluten-free anyway.

Twenty4isours Rookie

I had edited the test results.

Everything came back negative. I will be getting a biopsy done now that I have medical coverage. I'd like to see if I have any damage done to my villi. My feelings suggest I do have some sort of a malabsorption because of the white spots on my fingernails but I'm not really sure.

cyberprof Enthusiast

Hello,

I just picked up my results and here they are:

TTG IgA AB < 3 U/ml

<5 U/ML Negative

tTG IgG Ab < 3 U/ml

<7 U/mL Negative

Gliadin Antibody, IgA < 3 U/ml

<11 U/ML Negative

Gliadin Antibody, IgG 9

<11 U/Ml Negative

I was gluten free for a month prior to the test.

I've now been gluten free for almost 2 months and the difference is drastic. My gas is gone, my energy levels improved, I could remember things, going to the bathroom more and my depression disappeared.

Sorry to say, but your blood test was worse than useless, as it may lead you or your doctor to say that you don't have celiac. You will never know for sure unless you go back on wheat for several months, eating 3+ slices of bread a day. Even then, blood tests are amazingly inaccurate: The celiac blood test is notorious for "false negatives" whereas a positive result is almost never wrong.

If you feel better off gluten, take that as your diagnosis. Or go back on gluten (called a "gluten challenge") and get the tests if you need to prove it to yourself, your family or your employer. But most who have a good result of the diet like you find that going back on gluten is much too painful. Best of luck to you.

Twenty4isours Rookie

Sorry to say, but your blood test was worse than useless, as it may lead you or your doctor to say that you don't have celiac. You will never know for sure unless you go back on wheat for several months, eating 3+ slices of bread a day. Even then, blood tests are amazingly inaccurate: The celiac blood test is notorious for "false negatives" whereas a positive result is almost never wrong.

If you feel better off gluten, take that as your diagnosis. Or go back on gluten (called a "gluten challenge") and get the tests if you need to prove it to yourself, your family or your employer. But most who have a good result of the diet like you find that going back on gluten is much too painful. Best of luck to you.

Well thanks for the information. Last night I decided to eat a piece of rye bread to see what would happen to me since it's been a while. Well, about 15 minutes after eating it I was depressed and had to go lay down. I fell asleep at 8 pm (suprised I fell asleep so fast with ravaging stomach pains) and woke up at 8am this morning and felt like I was hit by a train. My whole body was sore and my stomach was rumbling and making a squeaking sound I've never heard before. My depression faded earlier this afternoon but my body is still sore. This most definitely sealed the deal but I want to get a biopsy done to see how much damage has been done to my stomach. I remember feeling spaced out, depressed, and lethargic ever since early 2nd grade (im now 21). I'm a totally different person now with a total different view on life!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,757
    • Most Online (within 30 mins)
      7,748

    Vicki Small
    Newest Member
    Vicki Small
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      The genetic testing results you provided indicate that your child carries two copies of the HLA-DQ2.5 beta chain (DQ Beta 1 *02:01, *02:01), which is a high-risk genetic marker for celiac disease. However, the alpha chain (DQ Alpha 1 *05:01, *05) is only partially present, as HLA-DQ2.5 typically requires the alpha chain *05:01 paired with the beta chain 02:01. Since your child has two copies of the beta chain (02:01) but only one full *05:01 alpha allele (the other appears truncated as *05), this suggests they are heterozygous for HLA-DQ2.5 rather than homozygous. The term "permissive for celiac disease" means your child has genetic susceptibility but not necessarily the highest-risk genotype (homozygous DQ2.5). Since celiac disease development also depends on environmental triggers and other factors, further testing (such as antibody screening or biopsy) may be needed to confirm a diagnosis. Consulting a genetic counselor or gastroenterologist can help clarify these results and next steps.
    • Jenny (AZ via TX)
    • DebJ14
      As my doctor said, you don't have to eat breakfast food for breakfast.  I may have a leftover piece of chicken and left over squash or eggs or I am actually more likely to skip breakfast as I do intermittent fasting.  In that case I eat lunch around 11:30 and have some guacamole and a salad with chicken or tuna.  For dinner I have pork, shrimp, chicken, lamb, or turkey with half a baked sweet potato and some broccoli, green beans, beets, carrots or cauliflower.  I do not eat any grains on the advice of my doctor.  I do not eat commercially processed products, even if they say they are gluten-free.  I make Warrior Bread every few weeks.  It has no yeast and contains almond flour and dried sweet potato.  Very tasty too.  A good book to help in this regard is No Grain, No Pain by Peter Osborne.  Thankfully, I can eat coconut and nuts and use those flours in baking and also use nut milks in cooking.  Since I am allergic to chocolate and vanilla, lemon is my go to flavor for something sweet.  My migraines totally disappeared once I went gluten and casein free.  I can occasionally eat certain high fat cheeses that are low in casein, as well as grass fed butter.  I use lots of Organic Olive and Avocado oil. The problems I thought I had with nightshades went away when I went fully organic.  And, the rest of my issues went away by avoiding the foods I tested positive to as well as avoiding all grains. I will be the first one to say that it is a very expensive way of eating, but thankfully we can afford to eat that way.  The good news is that I take no prescription meds at age 72.  At 54 before diagnosis, I was a mess and on a boatload of pharmaceuticals.  
    • lmemsm
      With that many foods removed from your diet, what do you eat?  I also have histamine issues and migraines so that takes out certain trigger foods and high histamine vegetables.  Have allergies to coconut and issues with nuts so those are out.  I'm beginning to think I may have to remove dairy and some of the grains beyond wheat to get allergies under control.  Just having so many issues figuring out what to make at meal times.  What's a typical breakfast look like for you?  Thanks.
    • knitty kitty
      @Healthforme, No prescription needed for thiamine hydrochloride, Benfotiamine, and TTFD (Tetrahydrofurfuryl Disulfide).  They are available over the counter.   Thiamine Mononitrate is not recommended because the body doesn't absorb or utilize it well.  
×
×
  • Create New...