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My Results - Please Help


Twenty4isours

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Twenty4isours Rookie

Hello,

I just picked up my results and here they are:

TTG IgA AB < 3 U/ml

<5 U/ML Negative

tTG IgG Ab < 3 U/ml

<7 U/mL Negative

Gliadin Antibody, IgA < 3 U/ml

<11 U/ML Negative

Gliadin Antibody, IgG 9

<11 U/Ml Negative

I was gluten free for a month prior to the test.

I've now been gluten free for almost 2 months and the difference is drastic. My gas is gone, my energy levels improved, I could remember things, going to the bathroom more and my depression disappeared.


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glufreecali Newbie

I agree, I felt like a "brain fog" lifted and it was crazy. I just dont have an immediate reaction to gluten (or so I thought) and the depression that hit for the 2-3 days post eating it (accidentally) was extremly brutal. I wasnt sure if that was even possible but aparently it is.

My energy is great w/o gluten, mental clarity and overall mood. I dont get "sick" but apparently my "reaction" is much worse than i thought.

Also, i do believe that the longer I am gluten free (about 5 months now) the heavier the reaction if I am glutened.

Scary.

Hello,

I just picked up my results and here they are:

TTG IgA AB < 3

tTG IgG Ab < 3

Gliadin Antibody, IgA < 3

Gliadin Antibody, IgG 9

I was gluten free for a month prior to the test.

I've now been gluten free for almost 2 months and the difference is drastic. My gas is gone, my energy levels improved, I could remember things, going to the bathroom more and my depression disappeared.

Marz Enthusiast

Hi there,

Do you have the full results? Most blood tests come with a range, for example < 4 is negative, and > 4 is positive. We need the ranges to say whether the results are negative or positive.

Did they do a total IgA count as well - that's to check if you have low IgA which would cause a potential "false negative" blood test.

Blood tests can be inconclusive - a positive result will confirm the diagnosis for sure, but a negative result doesn't rule out celiac disease. Lots of people including me have negative tests and biopsy, but diet proved that gluten is a problem, and so are strictly gluten-free anyway.

Twenty4isours Rookie

I had edited the test results.

Everything came back negative. I will be getting a biopsy done now that I have medical coverage. I'd like to see if I have any damage done to my villi. My feelings suggest I do have some sort of a malabsorption because of the white spots on my fingernails but I'm not really sure.

cyberprof Enthusiast

Hello,

I just picked up my results and here they are:

TTG IgA AB < 3 U/ml

<5 U/ML Negative

tTG IgG Ab < 3 U/ml

<7 U/mL Negative

Gliadin Antibody, IgA < 3 U/ml

<11 U/ML Negative

Gliadin Antibody, IgG 9

<11 U/Ml Negative

I was gluten free for a month prior to the test.

I've now been gluten free for almost 2 months and the difference is drastic. My gas is gone, my energy levels improved, I could remember things, going to the bathroom more and my depression disappeared.

Sorry to say, but your blood test was worse than useless, as it may lead you or your doctor to say that you don't have celiac. You will never know for sure unless you go back on wheat for several months, eating 3+ slices of bread a day. Even then, blood tests are amazingly inaccurate: The celiac blood test is notorious for "false negatives" whereas a positive result is almost never wrong.

If you feel better off gluten, take that as your diagnosis. Or go back on gluten (called a "gluten challenge") and get the tests if you need to prove it to yourself, your family or your employer. But most who have a good result of the diet like you find that going back on gluten is much too painful. Best of luck to you.

Twenty4isours Rookie

Sorry to say, but your blood test was worse than useless, as it may lead you or your doctor to say that you don't have celiac. You will never know for sure unless you go back on wheat for several months, eating 3+ slices of bread a day. Even then, blood tests are amazingly inaccurate: The celiac blood test is notorious for "false negatives" whereas a positive result is almost never wrong.

If you feel better off gluten, take that as your diagnosis. Or go back on gluten (called a "gluten challenge") and get the tests if you need to prove it to yourself, your family or your employer. But most who have a good result of the diet like you find that going back on gluten is much too painful. Best of luck to you.

Well thanks for the information. Last night I decided to eat a piece of rye bread to see what would happen to me since it's been a while. Well, about 15 minutes after eating it I was depressed and had to go lay down. I fell asleep at 8 pm (suprised I fell asleep so fast with ravaging stomach pains) and woke up at 8am this morning and felt like I was hit by a train. My whole body was sore and my stomach was rumbling and making a squeaking sound I've never heard before. My depression faded earlier this afternoon but my body is still sore. This most definitely sealed the deal but I want to get a biopsy done to see how much damage has been done to my stomach. I remember feeling spaced out, depressed, and lethargic ever since early 2nd grade (im now 21). I'm a totally different person now with a total different view on life!

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    • Wheatwacked
      Hi @Ginger38, By now you know that these things improve without gluten. I once saw an interview with a corporation executive where he proudly declared that his wheat products are more addictive than potato chips. Dr Fuhrman (Eat to Live) said find foods that are friendly to you to be friends with.  
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      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
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      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
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