Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Over Time


Mama Melissa

Recommended Posts

Mama Melissa Enthusiast

Hey Guys,

I was at my monthly celiac meeting and we got to talking about glutening symptoms.I was shocked to hear half of the people at the meeting had no symptoms atall ,some of them only got diagnosed because a relate was diagnosed.What i wanted to know is after being on the gluten free diet for a long time im talking yearsss do your symptoms lessen or eventually go away???I kno i have heard you get more sensitive at first, but how could people who started off with worse damamge than i had have no symptoms and i had stomach problems with less damage soo confused:(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Loey Rising Star

Hey Guys,

I was at my monthly celiac meeting and we got to talking about glutening symptoms.I was shocked to hear half of the people at the meeting had no symptoms atall ,some of them only got diagnosed because a relate was diagnosed.What i wanted to know is after being on the gluten free diet for a long time im talking yearsss do your symptoms lessen or eventually go away???I kno i have heard you get more sensitive at first, but how could people who started off with worse damamge than i had have no symptoms and i had stomach problems with less damage soo confused:(

Hi Melissa,

Some of us are more sensitive than others. I, myself, have an ulcer and IBS in addition to Celiac. The people in your support group who don't have symptoms are very lucky. I can't answer your question about how long it takes before our symptoms go away because I was only diagnosed last May and have the added medical issues. I just wanted to make sure there was an answer to your post so you'd know you're not alone. I know that someone with more experience and more answers will post a response soon. Just know I'm here if you need to vent.

Loey

Mama Melissa Enthusiast

Loey im sorry you have the additional problems and likewise i am here for you to vent as well:)We will get threw this i'm thankful for you guys xoxoox

AZGirl Rookie

Hey Guys,

I was at my monthly celiac meeting and we got to talking about glutening symptoms.I was shocked to hear half of the people at the meeting had no symptoms atall ,some of them only got diagnosed because a relate was diagnosed.What i wanted to know is after being on the gluten free diet for a long time im talking yearsss do your symptoms lessen or eventually go away???I kno i have heard you get more sensitive at first, but how could people who started off with worse damamge than i had have no symptoms and i had stomach problems with less damage soo confused:(

I am brand new to this, but I am shocked about how intense my reactions are. A few months ago I didn't feel well at all, but I was getting through my days eating gluten and not ever connecting the dots of what was making me feel so bad.

Yesterday I got glutened after being gluten free for only 4 months and my head was spinning with all the things that were happening to me just from "trace" amounts of gluten. It was overwhelming and truly scarey.

Sometimes when I read through the forums I get nervous thinking that other intolerances are sure to follow. It feels like everyone has more than just one thing they have to watch. As far as I know I only have gluten and an allergy to pineapple to beware of. I hope it stays like that forever, but I am wary that Celiac Disease is just the doorway to other things I don't want.

Sorry to be a downer, but it's my very real concern.

Loey Rising Star

Loey im sorry you have the additional problems and likewise i am here for you to vent as well:)We will get threw this i'm thankful for you guys xoxoox

Back at you girlfriend. we WILL get through this together. And we're lucky enough to have a whole community to support us. BTW, I just moved from NJ. If you feel like it PM me where you live. I'll be going back to visit this summer. Perhaps we could meet. Patti (jerseyangel), that goes for you, too!

XXOO

Loey wub.gif

P.S. Enjoy your beautiful babies. My baby is finishing his first semester of college!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,589
    • Most Online (within 30 mins)
      7,748

    GigiConnie
    Newest Member
    GigiConnie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • amantelchi
      I'd like to clarify: Is the pain you describe in the area just below your chest constant, or does it only appear when you start moving?
    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.