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Symptoms Over Time

Mama Melissa

By Mama Melissa
in Coping with Celiac Disease

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Mama Melissa Enthusiast
Mama Melissa
Posted

Hey Guys,

I was at my monthly celiac meeting and we got to talking about glutening symptoms.I was shocked to hear half of the people at the meeting had no symptoms atall ,some of them only got diagnosed because a relate was diagnosed.What i wanted to know is after being on the gluten free diet for a long time im talking yearsss do your symptoms lessen or eventually go away???I kno i have heard you get more sensitive at first, but how could people who started off with worse damamge than i had have no symptoms and i had stomach problems with less damage soo confused:(

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Loey Rising Star
Loey
Posted

Hey Guys,

I was at my monthly celiac meeting and we got to talking about glutening symptoms.I was shocked to hear half of the people at the meeting had no symptoms atall ,some of them only got diagnosed because a relate was diagnosed.What i wanted to know is after being on the gluten free diet for a long time im talking yearsss do your symptoms lessen or eventually go away???I kno i have heard you get more sensitive at first, but how could people who started off with worse damamge than i had have no symptoms and i had stomach problems with less damage soo confused:(

Hi Melissa,

Some of us are more sensitive than others. I, myself, have an ulcer and IBS in addition to Celiac. The people in your support group who don't have symptoms are very lucky. I can't answer your question about how long it takes before our symptoms go away because I was only diagnosed last May and have the added medical issues. I just wanted to make sure there was an answer to your post so you'd know you're not alone. I know that someone with more experience and more answers will post a response soon. Just know I'm here if you need to vent.

Loey

Mama Melissa Enthusiast
Mama Melissa
Posted
  • Author

Loey im sorry you have the additional problems and likewise i am here for you to vent as well:)We will get threw this i'm thankful for you guys xoxoox

AZGirl Rookie
AZGirl
Posted

Hey Guys,

I was at my monthly celiac meeting and we got to talking about glutening symptoms.I was shocked to hear half of the people at the meeting had no symptoms atall ,some of them only got diagnosed because a relate was diagnosed.What i wanted to know is after being on the gluten free diet for a long time im talking yearsss do your symptoms lessen or eventually go away???I kno i have heard you get more sensitive at first, but how could people who started off with worse damamge than i had have no symptoms and i had stomach problems with less damage soo confused:(

I am brand new to this, but I am shocked about how intense my reactions are. A few months ago I didn't feel well at all, but I was getting through my days eating gluten and not ever connecting the dots of what was making me feel so bad.

Yesterday I got glutened after being gluten free for only 4 months and my head was spinning with all the things that were happening to me just from "trace" amounts of gluten. It was overwhelming and truly scarey.

Sometimes when I read through the forums I get nervous thinking that other intolerances are sure to follow. It feels like everyone has more than just one thing they have to watch. As far as I know I only have gluten and an allergy to pineapple to beware of. I hope it stays like that forever, but I am wary that Celiac Disease is just the doorway to other things I don't want.

Sorry to be a downer, but it's my very real concern.

Loey Rising Star
Loey
Posted

Loey im sorry you have the additional problems and likewise i am here for you to vent as well:)We will get threw this i'm thankful for you guys xoxoox

Back at you girlfriend. we WILL get through this together. And we're lucky enough to have a whole community to support us. BTW, I just moved from NJ. If you feel like it PM me where you live. I'll be going back to visit this summer. Perhaps we could meet. Patti (jerseyangel), that goes for you, too!

XXOO

Loey wub.gif

P.S. Enjoy your beautiful babies. My baby is finishing his first semester of college!

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      Seeking advice on potential gluten challenge

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      Oops! @Staticgypsy, I’ll get the book! Thank you! 
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      Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was many years into gluten-free eating (and was much more careful at that point), I’m just baffled. Many, many thanks to you both. 
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