Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Upset...not Only Can't They See Me Sooner


okieinalaska

Recommended Posts

okieinalaska Apprentice

I called directly to the Gastro Doc's office today and spoke with someone about getting an appointment possibly before Christmas. The lady promised to call me back in 20 minutes and then never did. I waited an hour and a half to call back and then no one remembered talking to me and of course I didn't know the name.

So I explain all over again and he checks the schedule (the doc is of course taking a couple of weeks off over the Holidays I find out) and yes Jan 13 is the first available appointment. I ask a question about the endo and he says we have to schedule that. I said the lady who made the appointment told me this WAS the endo, you mean I have to wait even longer? I am in pain, eating a normal diet and they told me I had to keep eating that way till my appointment.

So he goes and puts me on hold and comes back and tells me the gastro doc says if I am in pain to stop eating that diet. I tell him I am worried about messing up my test results and my other doc told me to eat normally so I wouldn't. He just repeated again what the endo doc said.

Then when I asked more questions, it's likely I will have to wait 2 weeks out from that appointment to get the endo. When I told him the referral line told me this WAS the endo he just said "Yeah, they aren't the sharpest tools in the shed over there". And that I would have to first meet the doc and talk about my issues and the blood work then they would schedule the endo.

(which totatly makes sense but that is not what I was told)

Ugh. I could just cry.

Amy in AK


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

If I remember correctly your blood test levels are pretty high. I would do what the GI doctor said and stop eating gluten. You may find when you go to the doctor that with your blood test results and your response to the diet that he doesn't feel he needs an endo to 'diagnose' you. Contact the doctor that referred you and ask that they send your records so that the GI can see what your symptoms were on gluten. You could call the GI office again to make sure that is what is a possibility. Some doctors will 'officially' diagnose that way. Some doctors will also do a call back after hours so you can talk directly to them, that might be something to ask about also so you can hear it directly from the doctor.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,534
    • Most Online (within 30 mins)
      7,748

    RUKen
    Newest Member
    RUKen
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
    • Jmartes71
      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.