Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease Makes It To Dear Abby


rtc

Recommended Posts

rtc Apprentice

This was part of a thread about families accommodating (or not)

the vegan tastes of some family members.However,this family host

refused to accommodate the needs (not preferences) of a 9 year

old child...way to go:

Open Original Shared Link

Go figure.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SilverSlipper Contributor

Yeah, I posted about it somewhere on here - perhaps under the Parents of Children forum? My Dad had called me right after the column on vegans came out to tell me that he would no longer accomodate my daughter's Celiac. I was upset and Dear Abby was one of the 'victims' of my temper. My main point was that one can be a gracious host and accomodate just about anything. Over the years, I have made changes in my menu for those with peanut allergies, vegetarians, no pork, low fat, etc. I have always done that because I want people to feel welcome in my home and know that I am concerned for their health and/or respectful of their lifestyle and/or religion. It doesn't take a lot to plan a main dish that works for everyone and a side item or two for those with special diets.

And that's all I ever asked for my daughter. Some relatives would do just that, main dish and a side item or two (we would fill in the rest). Some made sure that there were either duplicate dishes (gluten and gluten-free) or the entire meal was gluten free. But this year, my Dad decided he was tired of 'cooking funny' and over the expense. (And when we arrived on T-giving Day, they told my daughter 'There's your seven dollar box of crackers we bought for you'.)

We tried to work around it and somewhere along the way she became glutened anyway.

So, we sent an email out to our entire family, declining all holiday meal invitations (though we would love to visit without food) and inviting them to our house for a Christmas party. We asked people to bring items to take to a family here in town who has a son with Celiac Disease (we sponsored through our school system). Some people brought nothing (like my Dad) and some (like my aunt) spent $50 or so on gluten free items (specialty mixes, crackers, etc or fresh fruit and veggies). (On a side note, we filled two large plastic buckets with food items - it was great!).

I had many relatives call me yesterday when the column came out, but not my Dad (although I'm sure he knows about it by now). I don't think they realized how hurt I was by what had happened.

Anyway, we are preparing for Christmas and will have a house full of people stopping by tomorrow for chili and Christmas goodies. Really, it works out better this way for us. I know the food is safe. Plus, my oldest has autism and it's stressful at other's houses. She's able to stay in her 'comfort zone' here.

Merry Christmas!

plantime Contributor

I saw that column, and thought how your dad sounded a lot like my sister-in-law. I have celiac and food allergies, so I try to accomodate all of my meal guests. The entire meal is something I can eat, but I make sure I have dishes and know the ingredients of everything for everyone else. It doesn't cost any more than I would have spent to begin with, and it makes a fun relaxing time for all.

I really am sorry about your dad's reaction.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

    2. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      1

      New issue

    4. - knitty kitty replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Blood Test for Celiac wheat type matters?

    5. - trents replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,086
    • Most Online (within 30 mins)
      7,748

    kk007
    Newest Member
    kk007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      I agree.  If someone has Barrett's Esophagus, at least here in the UK, as I understand it under normal circumstances a PPI needs to be taken long term (or similar medication).  I have two friends with this.  The PPI it does have side effects but they still have to take it.  
    • knitty kitty
      Do talk to your doctor about making changes to your medication.    I'm not a medical doctor.   I'm a microbiologist.  I studied nutrition before switching to microbiology because I was curious what vitamins were doing inside the body. I would hate to give advice that jeopardizes your health, so do discuss things with your doctor.   
    • knitty kitty
      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.