Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Forum


Alison R

Recommended Posts

Alison R Rookie

I'm a 31 yr old Texas girl, who like many others I see here has not been a stranger in the doctor's office. I was diagnosed with "benign familial tremor disorder" in 1998, I couldn't tolerate the medication they gave me and I wasn't willing to let the neurologist shove two long metal rods into my brain and a battery pack in my chest, so I went off caffeine and have just dealt with the shaking for mare than ten years. At 20 I was hospitalized due to an allergic reaction to soy, so no soy since 1999. My health seemed okay......until I got pregnant soon after I turned thirty.

After a second miscarriage last year the dr. found a 5.5 cm fibroid. My now ex-obgyn wanted to immediately do a hysterectomy. I said no. Removed meat with antibiotics and hormones in August of 2010, and my fibroid has shrunk to less than 2 cm as of November.

I managed get away without surgery again, but other things have not been the same: I have lived with almost no energy....sometimes sleeping 18 hours a day (Mom thought it was depression...but I don't feel depressed just exhausted), I've been forgetting things and have to write lists for everything, and not only have my tremors gotten worse, but I have been having mild seizures and seeing spots several times a day. Doctors have been clueless and have just tried to treat symptoms....but nothing has worked.

I have always had minor GI issues and bloating, but still nobody had connected it to possible celiac, in fact I had never even heard of it until December 27, 2010.

My fiance has had his own issues, an itchy skin rash on his thighs for over 5 months, foul gas most of his life, and recurring IBS-like issues to name a few. We spent Christmas day with his family and I knew he would have some issues because none of the food was healthy.....everything was breaded, veggies were nowhere to be found, but I didn't expect him to be stuck in the bathroom for several days and missing work. He thought it was a virus, I thought otherwise and did a google search. Thank goodness for google! I wanted him to go get a celiac panel done immediately....he's dragging his feet on that, but we went gluten free anyways on Jan 4th.

In just over a week we can both notice a difference. Not only has his rash started to subside, his gas and other intestinal issues have gotten much better, AND I'm feeling quite a bit better too!

I only went gluten free to be supportive of him. but my energy is rising, my sluggish digestive system is getting more regular, AND I haven't had any seizures in two days, I'm not shaking, and I'm not seeing spots. Maybe it's too early to say these things are gone for good, but I'm not waiting for a diagnosis....removing gluten has helped too much. I'm not saying I'm back to the old me (not even near it), but I'm hoping to get back to working full time soon.....and who knows - maybe I'll even be able to start running again in the next few months. This year is beginning to look bright for us and I hope to be a healthy, all be it caffeine-free, gluten-free, soy-free, bride later this year. :)

If anyone has great gluten-free cake recipes, I'd love you to pm them to me.....I am now planning to make my own gluten free wedding cupcakes....I'd like our family to know that gluten free can taste good. (Especially since I think a handful of them are probably celiacs themselves.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

I really love The Allergen-Free Baker's Handbook by Cybele Pascal, How to bake without gluten, wheat, dairy, eggs, soy, peanuts, tree nuts and sesame. The cupcakes are awesome!

If you are going to make them gluten free, why not make them free of most food allergens for everybody to enjoy! Even vegans!

Congratulations!

Alison R Rookie

Thank you. I will have to look into that one.

My mother, trying to be supportive, went out and bought just about every gluten free flour she could find this week. So right now I have nine different packages of flour and two packages of xanthan gum and a package of guar gum in my pantry (along with several mixes and a small stash of pasta) for a family of two. I better get baking.....don't want this to all go to waste. :(

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,326
    • Most Online (within 30 mins)
      7,748

    Jaxon Reed
    Newest Member
    Jaxon Reed
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.