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Recurring Boils?

frenchiemama

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frenchiemama Collaborator
frenchiemama
Posted

I have no idea if this is possibly celiac disease/DH related, but I get boils all the freaking time. Right now I have 4. I know that it's possibly related to my DH because I do tend to get secondary infections, but they generally aren't in places where I have DH (under my arms for example).

It just seems a little odd that I never had one in my life until 2 years ago when my DH started and my celiac disease symptoms started getting worse.

I've been on truckloads of antibiotics, I've tried the neosporin in the nose thing, I've tried tea tree oil washes and nothing works.

Any advice?

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gf4life Enthusiast
gf4life
Posted

I don't know if it is related to celiac disease or not, but I have had periods of boils before, as have 2 of my children and my husband. I don't know why it happens. The doctor keeps telling me that the bacteria is naturally found on everybodys skin and sometimes it just happens.

Last November I had gone to the ER and came away with a staph infection at the shot site (they had given me demerol) and by December I had one of the worst boils I have ever had. Since the doctor was smart enough to biopsy and run the labs on the puss, we were able to find out about the staph and I had to take 3 different kinds of antibiotics to get rid of it. For months after that I was getting lots of boils. I was so happy when they finally went away. I had a run of boils about 5 years ago in both armpits, too. It always seems to happen right before I go on vacation and end up on antibiotics when we are traveling!

My daughter got some bad ones for a while on her bottom when she was potty training and constantly taking her diaper off. The doctor thought that she was getting cracks in the skin from playing on the floor and that was allowing the bacteria in.

My middle boy has gotten some minor ones, that go away on there own, but my husband used to get them all the time as a child in the Philippines and has scars all over his body from it. He does not have celiac disease. He still gets some occasionally.

I wish I could give you some advice on how to get rid of them, but other than making sure you don't spread them (don't share towels, and wash everything that comes in contact with the boils in hot water, wash your hands constantly, etc...) there isn't much to say. I do sympathise with your pain. I hope you feel better soon.

God bless,

Mariann

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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