Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Genetic Inheritance Of Cd

Emma's Mom

Recommended Posts

Emma's Mom Rookie
Emma's Mom
Posted

Hello there! I am brand new to this board and I have a quick question. I'm on information overload right now as I suspect that my DD has celiac disease.

I know that celiac disease is genetically linked...so my question is - if my DD has celiac disease, doesn't that mean that I must have celiac disease as well (I know genetics isn't always that simple)...even though it may not have manifested itself (or have been triggered) yet? Further...if I have celiac disease, doesn't this mean that one of my parents must have had celiac disease (I suspect my mother and sister both have it with the more reading I do). The only person I know that has confirmed celiac disease is my maternal grandmother at this point.

Any genetic experts out there :) Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

No, if you have it neither one of your parents have to have it. They may have the gene for it but not have it activated or they could indeed have it but nothing is for sure.

It does run in families but not everyone gets it. If you have a relative with it then you should be tested though

pugsnapps Newbie
pugsnapps
Posted

Getting your family to go get tested is a bit harder if they are not having symptoms.

Coming from a divorced family - both my parents claim "it's not from my side". I finally got my mother to at least do a blood test. It came back negative, I tried to explain to her that it still does not mean she is free and clear. It just means that if she does have it that it isn't active. I wish a more difinative test could be developed. I had most of the symptoms all my life, but it was after a bad horseback riding accident that landed me in the hospital a little over two years ago that they symptoms when crazy.

I know I recieved the Thyroid issues from my Dad's side, The acid reflux from both sides and unfortuneatly both sides of the family have had things that could be linked to Celiac.

Good luck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,852
    • Most Online (within 30 mins)
      7,748
    Suzanne Clarke
    Newest Member
    Suzanne Clarke
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Suze046
      Alcohol

      By Suze046 · Posted

      Hey! I’m recently gluten free and yes I really struggle with alcohol now. I haven’t really drank in 2 months as it just made me feel awful the next day in terms of stomach ache mainly. I’ve had a couple of glasses of white wine here and there (mainly low sulphate) but every time it gives me a gut ache. I think it’s because but guy is so damaged from my journey to discovering my gluten intolerance and hopefully this will improve but honestly I’m just not bothered about having a drink now. I can’t even touch Prosecco or champagne I think the bubbles really upset me! 
    • Suze046
      Gluten-Free Newbie

      By Suze046 · Posted

      That is helpful thank you I hadn’t thought of that! 
    • Awol cast iron stomach
      Work friends & food

      By Awol cast iron stomach · Posted

      I just wanted to share my support for you. Rant away. We all know that, and have experiences like that at some point. I am sorry for that very unpleasant, and emotionally isolating reminder of your medical condition. Which always is exacerbated by the hunger. I will admit many of my family friends, and coworkers found it easier to exclude me than to accommodate me. I also have to be very strict with cross contamination so in hindsight they did me a favor.  The sting however can often still be unearthed when I read experiences like yours.  I am sorry you had that occur. I hope you, and the coworkers can find the easy more accommodating experiences again after this unfortunate incident. Best wishes. 
    • Awol cast iron stomach
      Diagnosed gluten allergy but not Celiac

      By Awol cast iron stomach · Posted

      "...hemorrhoids, constipation and diarrhea" . Heard of indeed. Experienced too. In hindsight, I can remember from age 2 having, and trying to convey my issues. I went 38 years misdiagnosed. So yes one can have these issues. I did have to go back on gluten for a gluten challenge. I failed that challenge and 6 days in they give me permission to stop, and I proceed with my scopes as scheduled. Post those 6 days I had gained 13 intolerances. I had to remove many foods, and reintroduce them back in. Nine years later I have two that remain gluten, and corn. I found it helpful to follow a whole foods diet. I also found autoimmune (AIP) protocol diet/recipes, and Paleo diet/recipes helpful. I still enjoy many of those homemade version recipes. I still continue to make my own salad dressings even if I can find a gluten-free store bought version. Fresh taste best to this palate now.  I did give up many grains I was off many and reverted to coconut flour and almond flour as work arounds .  I still remember the first time my gut experienced the reintroduction of quinoa. It wasn't sure if it wanted to flare or not. In 30 minutes it reported back ok this will pass. Many foods were removed post gluten challenge for me for 2 years and 4 months. At the 2 year 4 month mark is when my body said ok let's eat again, but don't ever feed me gluten again! I wish you the best.   
    • Scott Adams
      Gluten-Free Newbie

      By Scott Adams · Posted

      if you have already learned that Gluten is the cause of your symptoms, of course there is no need to add it back into your diet— your decision could save you a lot of needless suffering. One thing to consider is that if you do have celiac disease, your first- degree relatives may also need to get screened for it, because, like diabetes the disease is genetic, although many of its triggers seem to be environmental factors. You may want to consider getting a genetic test for celiac disease, so you can at least warn your relatives if it turns out that you do carry a celiac gene.
×
×
  • Create New...