Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could It Be Dermatitis Herpatiformis?


stavreski

Recommended Posts

stavreski Newbie

Hi all,

In the process of waiting to be tested for Celiac desease, I happen to have these extremely itchy, small, acne-like red things appearing all over my body (on my back and chest). They started to show up these past months. Could it be Dermatitis Herpatiformis? Can someone who happened to have them help? I haven't had acnes on my body in my life, it seems they are not deep like acnes are, and they are very itchy...

Thanks,

A.

gjo_110207_2700.webp

gjo_110207_2705.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

im not exactly sure- mine was a little more crowded and blistery- but from what people say on here- they can look a little different from case to case. itchiness makes them suspicious.

can you go to a celiac educated dermatologist- they can biopsy the skin ADJACENT to a sore- and test for the antibodies- if you come out positive- then you are 100% positive for celiac- no need for any blood or biopsies.

not every dermatologist is aware of DH- so you'll need to find the right one- but if you can afford- i would do it ASAP before the rash goes away- it could be invaluable information

stavreski Newbie

Thanks cassP for your reply.

I'll try to find a competent dermatologist tomorrow.

vegan lisa Rookie

I was just looking online for information about this rash. I have exactly the same thing. It looks the same, and your description is spot on. Unfortunately, I didn't have any spots last time I was at the doctor, so I've never gotten a doctor to look at it.

I've been gluten free for awhile, but I made my family a gluten meal on Sunday, and sure enough, I was super itchy by the end of Monday. Today my torso is covered in itchy, angry welts.

Please post an update if you've seen a dermatologist. I'm totally curious about what this might be.

Thanks!

Lisa

hnybny91 Rookie

Those look exactly like mine. Mine are spread out all over my body - no big clusters. Mine have never been biopsied but they stopped apprearing when I went gluten free - unless I get glutened or eat iodine.

divamomma Enthusiast

My daughter complains almost daily of an itchy back and has spots that look similar to yours. Not all over, sporadic not clustered. Not sure if hers is DH or not but it seems likely. She is almost one month gluten free and has shown significant improvement in other areas but is still itchy every day.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,059
    • Most Online (within 30 mins)
      7,748

    VictoriaNaoma
    Newest Member
    VictoriaNaoma
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.