Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac With Elevated Tsh

SOUPS

By SOUPS
in Related Issues & Disorders

Recommended Posts

SOUPS Newbie
SOUPS
Posted

Can celiac cause TSH elevations? I have been gluten-free for about 4 weeks and have an elevated TSH of 4.6, which has actually gone up from 3.5 when tested a month prior. I was put on Tirosint for the past 2 weeks but was experiencing chest pain and hypoglycemic symptoms that I was not experiencing prior to taking thyroid meds. Doc advised to stop taking thyroid pills to see if it's celiac causing my symptoms.

If it is celiac related, when can I expect to stop having these symptoms?

If it isn't celiac related, has anyone experienced the side effects from the thyroid meds that I was having and what are my other options?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cassP Contributor
cassP
Posted

Can celiac cause TSH elevations? I have been gluten-free for about 4 weeks and have an elevated TSH of 4.6, which has actually gone up from 3.5 when tested a month prior. I was put on Tirosint for the past 2 weeks but was experiencing chest pain and hypoglycemic symptoms that I was not experiencing prior to taking thyroid meds. Doc advised to stop taking thyroid pills to see if it's celiac causing my symptoms.

If it is celiac related, when can I expect to stop having these symptoms?

If it isn't celiac related, has anyone experienced the side effects from the thyroid meds that I was having and what are my other options?

my guess is that your Celiac is seperate from your TSH. and that like me, and many many others with autoimmune genes- you MAY also have Hashimoto's antibodies giving you a Hypothyroid. of course natural fluctuations may be possible- so it's good to continue to get your thyroid numbers checked. it is also a good idea to ask your doc to test you for all 3 Thyroid antibodies- so the doctor will have a better plan to treat you. ALL of my antibodies were elevated- so, i have Hypo & Hyper at the same time- this perhaps explains why i was having AWFUL Hyper effects from being on Synthroid (T4) alone. it wasnt till they added Cytomel (T3) that i began to feel better... now im trying Armour.

i, honestly, have never heard of the drug he put you on??? is it a T4??... i dont know if it's a good idea for you to not be on any meds... keep checking back with your doctor- and get those antibodies tested. a gluten free diet WILL help to lower those antibodies and calm the thyroid- but it may not be enough, and lifetime medication is most definitely likely... BUT- your TSH is not too high- so maybe you need to be on very little medication!! maybe whatever they put u on was too high a dose

?? hope that helped

SOUPS Newbie
SOUPS
Posted
  • Author

Thanks for the information.

I was tested for all three, my T3 was high normal, my T4 low normal.

Tirosint is a new T4 only medication, just like Synthroid but in a gel form.

Open Original Shared Link The reason I was on Tirosint instead of Synthroid is because I experienced the same type of symptoms on Synthroid and wanted to try a different medication.

I feel as if your conclusion of possibly being on the wrong dose is a good hypothesis and will go back to my doctor in 1 month unless I feel things worsening sooner, which I have a feeling WILL be the case.

Hoping for the best...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,175
    • Most Online (within 30 mins)
      7,748
    Chels22
    Newest Member
    Chels22
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...