Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened By A "gluten Free" Product!


GlutenFreeManna

Recommended Posts

GlutenFreeManna Rising Star

As often as I read things here I should have known that FFL was not safe. I was so excited to find these in my store. They say "gluten free" and wheat free all over them. The ingredients are not much more than brown rice and filtered water. Well I'm having the worst gluten reaction I have had in 6 months after eating these twice this week. Everything else I ate this week was stuff I eat safely all the time--My fillings were cooked organic chicken, lettuce, refried beans (homemade), rice and chili powder (also homemade). SO I came here and did a search only to find these brown rice tortillas were recalled in Canada for having wheat in them and the "filtered water" they use in their other products contains barley! I'm so mad right now. These tasted great and worked the best out of everything I have tried for a wrap. I haven't found brown rice tortillas by any other company or anywhere else, only corn tortillas. Argh! Hopefully this will be a warning to others. Avoid Food For Life brown rice tortillas! You can't trust the label on this product. :ph34r::blink::angry: ***I need a pulling out my hair smiley**


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zus888 Contributor

Can't you call the FDA or something to have the product recalled? I didn't think they could mis-label a product legally.

gleegan Rookie

Thanks so much for posting this. I too had read other warnings from people, but was hoping that it was simply a problem in Canada. I have a couple in my fridge and was even going to eat one today. Now I will toss them out - not worth taking the risk. I hope you feel better soon; sorry for your horrible reaction - thanks for helping me avoid having one...

GlutenFreeManna Rising Star

Can't you call the FDA or something to have the product recalled? I didn't think they could mis-label a product legally.

Actually, there are currently no laws in the US regulating the words "gluten free". From what I have read laws have been proposed but they have not passed legislation. So a company can label something "gluten free" and it may not be. They ARE required to label wheat, however they are NOT required to label barley. I suspect these tortillas have barley water in them. Additionally, if they use something with gluten but the amount of gluten is very small the product may test "gluten free" with less than 20 ppm of gluten. The tests are not sensitive enough to detect to zero gluten. The most sensitive test is for 5 ppm I believe. Every country is different in what the regulations are for what amount can be declared "gluten free". I happen to be a very sensitive celiac and I react to things with less than 5 ppm gluten. I WILL be writing to FFL to give them a piece of my mind though. Maybe if they receive enough complaints they will stop claiming their products are gluten free. They may be wheat free, but they are not gluten free.

GlutenFreeManna Rising Star

Thanks so much for posting this. I too had read other warnings from people, but was hoping that it was simply a problem in Canada. I have a couple in my fridge and was even going to eat one today. Now I will toss them out - not worth taking the risk. I hope you feel better soon; sorry for your horrible reaction - thanks for helping me avoid having one...

Oh I'm sorry you have to toss them, but I'm glad I could help you avoid getting sick. They are so not worth it. :(

In case anyone else is interested the UPC on the bag I bought is 0 73472 00369 5 Lot# K0769DV

The UPC matches the ones recalled in Canada, but the Lot# is different. I bought mine at Bloom in Virginia Beach, VA. I plan to contact the store I bought these from as well to let them know about FFL's faulty labeling practices. I don't know if it will make them remove it from the store, but if I can save anyone else the trouble of getting sick it's worth a try.

glutenfreesavvy Rookie

GlutenFreeManna,

I'm soo sorry to hear about this...I, too, have been glutened by food labeled gluten free. These experiences have led to me to avoid most foods that are pre-made or packaged....it's just not worth it anymore...extremely frustrating, though...

I hope Food for Life will handle this appropriately...have you tweeted or posted on Facebook about it? That might make a bigger impact...

Warmly,

Faydra

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,995
    • Most Online (within 30 mins)
      7,748

    Naner4
    Newest Member
    Naner4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.