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Going To Gi Doc - Need Your Advice

nuttmegs17

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nuttmegs17 Apprentice
nuttmegs17
Posted

Hi!

From reading this forum, it sounds as though not every doc (not even the "experts") understand the symptons, tests, etc for Celiac Disease.

I know I am my best advocate. It has taken me so long to get on this Doc's schedule I am terrified of it being a waste of time.

I am consuming gluten in prep for this visit. I had been off it only 2 or 3 weeks and started back up again (maybe on the first? can't remember). I see him on the 30th of this month.

What blood tests and other tests to I need to be sure he does? Anyone have a checklist? It just seems so many docs are very ill informed. Do I need to point out certain things to him (like the fact that even if the villa is only inflammed that is a predictor?) I'm nervous b/c while he has a great reputation (and apparently hard to book!) I see nothing on his profile that shows his area of expertise is Celiac....

Please advise! Thank you!

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  • Posts

    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Fiber Supplement

      By trents · Posted

      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Wow, that's alot of info, Thanks!!!! I had my intake with Nutrionist where we went over basics and then will have follow up where we will talk about all the questions I've come up with (including the fiber question and so many more). I'll talk to her about the info you provided as well.  Thanks again (newbie here 😀)
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