Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Making Me Uproot Myself


LivesIntheSun

Recommended Posts

MJ-S Contributor

From a purely "gluten" perspective, Andalucia in Spain would not be my first choice. They fry everything, usually with flour.

You can ask for food plain "a la plancha", and I think you'd get better results than in Colombia, but there are other parts of Spain where you'd be safer. What about Valencia/Murcia? They are very vegetable/paella oriented. Also Madrid/Barcelona are the most cosmopolitan and "food aware".


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



FooGirlsMom Rookie

Thanks for your kind words Foogirlsmom. So are you generally Paleo now then? I'd be really interested to know what brand of shake you buy.

I've been "off the map" for the last week after another glutening- switched off phone, unplugged computer, just tried to wait it out, I can't trust myself not to do or say stupid things when I'm like that.

Sorry it took me so long to reply. I've been off the board here for about 2 months. Busy!

Unfortunately, I have not located a gluten free shake mix (yet) that I can use. The reason is that I'm highly reactive to soy (except soy lecithin). There are mixes out there I can try but with my husband still unemployed, and not used to our normal income, I am reticent to invest $20+ on something I might hate. I need to do my research because I prefer it is also low carbohydrate.

You asked about Paleo-- yes---I'm back to that. When I first went gluten-free in October I could not handle proteins very well and gravitated more toward a balance of gluten-free grains, meats, veggies & fruits. It has taken 5 months of healing for me to be able to go back to the Paleo/Atkins type of diet. I've been on it a week now and I feel TERRIFIC. Someone posted in the Coping section about Candida and Gluten. Candida overgrowth was the first major health meltdown I had. It was in the 90s that I figured out that a lower carb diet (and if I ate grains make sure it was quinoa, buckwheat, amaranth or millet) healed me up. I never made the gluten connection until last October. Being on a meat/veggie diet makes me feel awful for about 3-5 days, then I receive a burst of energy and I feel healthy/normal again. I feel better right now than I have in 2 years (when I went off Paleo and was eating gluten & carbs again)

If I solve my shake mix dilemma, I'll post it to the Coping page.

Take Care,

FooGirlsMom

If I f

LivesIntheSun Apprentice

Hi Foogirlsmum,

I'm very interested in your success with the Paleo Diet. As I said, I've also had a big problem with candida. I had years of cystitis and bladder problems until I was recommended to try an anti-candida diet. I found that no sugar, alcohol, refined carbs or fruit was enough to heal my bladder, and I do wonder if going totally paleo would be even better for my health in general. But I have tried it and I just couldn't cope with the hunger. I had to eat such large amounts of meat and consume so much oil to fel satiated (and even then I didn't, all I could think about was food), it wasn't good. I was weak and very hungry, and I didn't like eating such huge amounts of meat so often. But I was inspired by you saying that you felt bad for a few days but then much better. My question is, what exactly do you eat and how do you avoid too much repetition? Do you find that you have to eat very large amounts of meat to ward off hunger? Have you cut out lentils and beans too?

Thanks!

MEH Apprentice

A few thoughts, fellow travel mate.

I am very stubborn. I try to make life work for me. Captian of my ship. Squarely at the wheel. Not going to let a little thing like gluten interfere with my life, right?

But I'm coming around to seeing, as you have, how difficult it is to live a gluten free life. Maybe I'm not in charge after all. Not in this round, anyway.

Having said that, please don't give up your life in Columbia if you really love it that much. Have things shipped in. Budget a package that your mother sends you every month full of good products. Befriend a local butcher, baker, candlestick maker----whomever you need to talk to and see if you can't recruit the right people to make it work. I know how hard it is to be abroad and try to eat gluten-free. Trust me, I know. But it's not impossible---not if your life really works for you where you are. Be creative in your problem solving.

Maybe you've already tried this...and if so... I'll hang up my flag. I am thinking of leaving my travel job for the same reason, but I have a whole lot less control over my environment than you do---as I travel all over, from one place to another quite a bit. If you really can't make it work, then there's no way out, except to move.

But do it when there is no other alternative left open to you. That way, when you move, you won't have any regrets.

LivesIntheSun Apprentice

Hey MEH, thanks for the solidarity!

I felt, like you did, that something like gluten wasn't going to affect what I did and where. But really, I'm busting my a** trying to be 100% gluten free, and I manage it 99 times out of 100, but the hundredth time where I get glutened, I get really sick, and I'm bouncing back more slowly every time and I'm scared. And food being so omnipresent, the 100th time comes around pretty quickly. The thing is, as butterfl8 pointed out, its all about making choices. And my choice seems to be between being here, the only person I know with a problem with gluten, no awareness at all (except for those I've eduated ;) ) , not eating anything I haven't prepared myself from scratch (but even nuts, packets of lentils, ground coffee etc cross contaminated), not eating out at all. Right now I'm exhausted, and I still get glutened fairly frequently, it literally isn't working out right now. There's the physically getting ill and being knocked out for a few days or a week, and then there's the emotional part of feeling unsupported by the country in general- no labelling laws, no advocacy groups, no services. I couldn't find a single celiac in the whole country to share info with! I think I'm an individual who does need more support than than that.

From what I can see, at least in Spain they label food properly, there are very active groups of celiacs, directories of restaurants you can eat in safely, and specialist gluten free foods. After turning it over every which way I think I may have made the choice that it would be worth making the move to feel more supported and for my life to just be easier and frankly safer, and also that being mobile, somewhat spontaneous with eating, and travelling around on weekends are actually really important to me. I know a lot of people don't have these kind of options, but right now I do- I'm single, no kids, as a teacher I can pick up work pretty easily. If I can make it work, the whole of the rest of my life might be healthier. And if I don't like it there I guess I can come back here and somehow make it work!

It may be that I find that I still get glutened constantly in Spain, and like for many people, preparing everything from raw ingredients and only eating at home becomes the only option, time will tell. But I think maybe now is the time to try it, and I'd also have regrets if I didn't give it a go. This thread has been really helpful for me in terms of consolidating my thoughts, I've come to terms with the idea and my choices and reasoning a lot more in the last few weeks, and I feel better.

margotb Rookie

I appreciate your dilemma! Colombia is wonderful. I was actually in Colombia for three months last year and the celiac symptoms started when I was in Cali and eating pan de queso every day. So much bread, god, I had no idea!

I want to put in a pitch for Argentina. I was in Buenos Aires last year and earlier this year and found the level of celiac awareness to be much higher than in the United States. There are many many products that are "apto para celiacos" so there are some possibilities for snacka and even frozen empanadas, pizzas, medialunas and more in dieteticas (health food stores).

What's fascinating too is that a Brazilian friend sent me the link for a 1992 gluten labeling law passed in Brazil that is better than what we have in the States now--and Brazil followed up in 2003 with an even stronger law requiring that a product says if it contains gluten or not. So. . . I have yet to be in Brazil as a celiac (spent a lot of time there before diagnosis) but it seems intriguingly advanced.

I am going to research this more, if anyone has any insights on other countries' labeling laws in South America, Asia, and outside the US, Europe, and Australia, please let us know!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.