Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Deficiencies And Recovery Time


krishna

Recommended Posts

krishna Apprentice

Hi,

I've been on a gluten free diet for 6-7 months now and have been taking B12 injections every month and Vitamin D3 pills. Today my doctor went over my report and found out I am really low in Iron. Previously I was medium-low but now I'm low but not anemic (still not deficient). So he started me on Iron supplements and will do my tests again in a month. My B12 after taking about 12 injections (last 6 months) is still not that high. It is kind of medium, like 520 something. The range I believe is from 200-1200.. not sure of the units. My doctor says if you take injections then it depends on the time you get tested after taking the injection (mine was after 3 weeks after getting the 12th injection) because the body starts absorbing B12 and B12 levels start to fall. Therefore, he now recommends to take B12 supplements instead of the injections because taking them will project a more realistic B12 number next time he does the tests.

I was wondering how long does it take for B12 and Iron levels to become stable and not change even after stopping supplements? My doctor says it takes anytime between 1 - 2 years but I wanted to get your opinion here.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I agree with your doctor but you may see results sooner. When you get the B12 supplements get the sublingual form as the ones in the swallowed pills are not going to be able to be absorbed. The sublingual will go directly into your bloodstream.

krishna Apprentice

Thanks! My doctor also recommended the sublingual type and I've got it already. I keep having panicky/nervous like feeling and feel low sometimes and at other times I feel normal but not so great either. There's always tightness around my abdomen area. Does anyone have the same or similar type of experience?

gf-soph Apprentice

Have you had your folate levels tested? Since you are low in B12 and iron it's important to get it checked, as it also causes anemia.

I found that it took a long time to get my iron and b12 levels stable, and a long time for my d to rise at all.

I started showing low levels in 2007, and had intermittent injections for iron and b12 until mid 2008, when a good dr got me to go gluten free, and started treating the deficiencies more aggressively. I needed iron injections as I couldn't absorb any from my gut. I had a lot of injections for both until about mid 2010, when I found out that additional food intolerances were impairing my digestion. Once I had got these under control my levels have stabilised and even increased since then, and have been very stable in the last 3 months.

So for me, it took 2 years after gluten free, but I was continuing to malabsorb for 18 months anyway. For you the process may be a lot quicker, especially if you can take the iron supplements.

I found that my iron levels tended to not move much, and my B12 went up and down a lot when I was getting injections. I had a lot of B12 at various points, and i did get high readings like 1400 or so. They went down in a month or two to 800, then to 500 pretty quickly. Your body may be better at getting rid of the excess, or it may be utilising the b12 better, I can't say. I found that my body often dumped the extra injectables, I once went from a b12 of 1000 to 200 in 3 weeks. The best advice I can give it to monitor at least every month until you see nice consistent levels.

Your dr's suggestion about switching to the b12 pills is a good one, as it's a truer reflection of what your body can absorb. If your levels increase on the pills then you can be pretty confident that your levels will be more accurate, but when you get an injection there's too much at once for your body to use it all.

krishna Apprentice

Thanks everyone, I will take your advice seriously!

My doctor told me to take B12 sub-lingual 5mg or 5,000mcg daily. He said its the highest dose he sells in his clinic. Do you think it is too strong to take daily? I was reading online that between 1mg-3mg B12 sub-lingual is recommended. Please advice!

Thanks again!

ravenwoodglass Mentor

Thanks everyone, I will take your advice seriously!

My doctor told me to take B12 sub-lingual 5mg or 5,000mcg daily. He said its the highest dose he sells in his clinic. Do you think it is too strong to take daily? I was reading online that between 1mg-3mg B12 sub-lingual is recommended. Please advice!

Thanks again!

Go ahead and take it. If you have excess in your system you will simply excrete it. There is no toxic level for B12 as it is water soluable. Your doctor can retest in a few months to see if you can step down to a lower level.

krishna Apprentice

Go ahead and take it. If you have excess in your system you will simply excrete it. There is no toxic level for B12 as it is water soluable. Your doctor can retest in a few months to see if you can step down to a lower level.

Thanks!

On this website, under the "seasonings" section it says that yeast extract has gluten (barley), is it true? Any read something like this before?

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Ginger38 posted a topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Russ H commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Coeliac UK Research Conference 2025

    5. - Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders
      5

      Basic metabolic panel results - more flags


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,375
    • Most Online (within 30 mins)
      7,748

    Sher Lee
    Newest Member
    Sher Lee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.