Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety Attacks When Glutenend!


chili

Recommended Posts

chili Apprentice

I seem to get alot of anxiety attacks when I have been cross contaminated. I also get irritated with loud noises..my children playing and laughing seems intensified by 1000..I can't stop the nervous feeling and anxiety attacks that come. DOes anyone have any advice how to manage this panicky feeling, besides the obvious of not getting glutenend!! thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

I don't know if there is anything you can do to stop them. I got a prescription for Xanax for the episodes of contamination because the anxiety is so disconcerting. It does help. I take just .25 mg. only until the reaction is over. I feel much better now than when I was at the mercy of a glutening. I hope you get a better answer but that is the only thing that works for me.

JCastro Newbie

I get exactly the same feelings (anxiety and irritation with loud noises) when I am cross contaminated. I also have Xanax which helps. It also helps me to just remind myself that I am fine and its just that evil gluten again! Hope you find something that helps you!

Nads Rookie

I don't know if there is anything you can do to stop them. I got a prescription for Xanax for the episodes of contamination because the anxiety is so disconcerting. It does help. I take just .25 mg. only until the reaction is over. I feel much better now than when I was at the mercy of a glutening. I hope you get a better answer but that is the only thing that works for me.

Is Xanax habit forming? Do you feel even more anxious after taking it hen it wears off? Can you take it only as needed?

Thanks

maryphyl Newbie

I had a panic attack night before last--I had eaten gluten somewhere sometime before this. I did not recognize the panic as being a product of having consumed gluten but since it was irrational I guess it was.

eatmeat4good Enthusiast

Is Xanax habit forming? Do you feel even more anxious after taking it hen it wears off? Can you take it only as needed?

Thanks

Yes, you can use it only as needed. I was very concerned about it being habit forming. I read a lot before I took it. I had so much anxiety about taking Xanax that I had to take a Xanax just to calm down!

But seriously, yes, my first Dr. was very concerned about the addictive nature of the Benzodiazepines. However, it has been miraculous for me. Tiny dose calms me right down. I always have it in my purse. But I never have to take it more than a couple of days after a glutening. I do not ever have what they call "rebound anxiety" where you get withdrawal symptoms and all that.

My current Dr. assured me it was perfectly ok for me to take it even if I needed it every day. He said at .25 mg it is such a tiny dose that I shouldn't worry about taking it as needed. The people who may get the rebound anxiety are up to 1mg or above daily and if they stop abruptly they will get really bad anxiety. He told me not to worry about it unless I got to 4 pills a day AND found they weren't working. Then we would taper down slowly. Well, that has never happened. I have been using it as needed for 6 years and have never needed it for more than a few days nor have I felt any withdrawal or anything negative when I stopped taking it. I originally got it for the gluten anxiety that happened daily but I didn't know what it was that was causing my anxiety. Of course it works much better now that I have no gluten in me.

If I take more than 2 pills, I will get drowsy so you have to practice with what dose works for you, if you want to take it. Talk to your Dr. about it because really-I wouldn't be able to handle the anxiety of accidental gluten without it. Very helpful for me. I only get 20 pills at a time....so I am careful. Sometimes that lasts me for months. But I know it is there if I need it. Everybody is different though, and I have read about the rebound anxiety being terrible and yes, you are right to be concerned about addiction.

Yes, I use it only as needed. It is not a daily medication...

eatmeat4good Enthusiast

I had a panic attack night before last--I had eaten gluten somewhere sometime before this. I did not recognize the panic as being a product of having consumed gluten but since it was irrational I guess it was.

Hi Welcome!

Yes, panic attacks and anxiety are very common with glutening if you are Celiac or Intolerant. It is the first symptom I have.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jenny (AZ via TX) Enthusiast

I take Alprazolam, the generic for Xanax. I still have some by Mylan, which they have told me they are not making anymore. I recently filled a prescription by Sandoz. I called and they told me it was gluten-free, however they cannot guarantee. My prescription is for .5 mg and I usually split the pill in half.

I don't have to take them often, but when I do have that anxious feeling, it works great. I have also let it melt under my tongue to get in my system even faster. Very bitter though.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748

    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.