Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

1 Year Gluten Free

tomtom009

Recommended Posts

tomtom009 Apprentice
tomtom009
Posted

As I approach my one year Gluten free I wanted to share my story, maybe get some feedback.

It's been a tough battle but I am approaching one year of gluten free! It's been a weird time and I'm as confused as ever. To kinda recap, I'm a 29 year old male with a family history of celiac's...kinda (1 diagnosed person out of about 100 in my fam). My symptom was always just bloating, never ending bloating. Every day for about the last 6 or 7 years. I've never cheated on my gluten-free diet, although I suspect I've been CC'ed dozens of times. The problem is (if you can call it that), I have no reaction other then some minor bloating that just goes away. I eat out a lot but I always mention to the server about my intolerance. My home is bread crumb central, I've traveled over seas and ate out at numerous restaurants who had no clue what gluten even was. I've even had beer splash into my mouth by accident. I haven't had any stomach issues at all other then the bloating which just seems like a constant.

While the bloating has improved since before, it hasn't gone away. If I get really strict and cut out anything processed and stick to the real basics, it also gets better. The only thing that really messes me up is fruit. Can't eat it. No bananas, apples, grapes, oranges, kiwis, nothing. That really bloats me up. Veggies, meat, chicken, fish, rice, milk, all seem okay.

I was never officially diagnosed. the blood work came out negative but I was told it was because I had already been gluten-free for 2+ weeks. While I do feel better, I am still searching for answers. My stomach just sucks at digestion. At least it's kind enough to not give me the big D or any of that stuff. I just pray for the day I can wear a t-shirt without wondering if i'm gonna start bloating up like a pregnant woman at any moment.

Thanks for reading.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eatmeat4good Enthusiast
eatmeat4good
Posted

It sounds like fructose intolerance.

I read a post on here a few days ago by Mack the Knife saying his girlfriend had it. Do a search here for fructose intolerance and you will find it and a whole bunch of other people who have the same problem in addition to gluten.

There are several fruits that are higher than others and there are good lists if you google fructose intoelrance too. I don't think I have this problem so I haven't ever read enough to be able to give you any more information than that. But it is interesting to note that bloating it the main symptom for some of these people.

To your question- It is Celiac. Now to the question Are you? Well, I would assume that I was if I were you. Because you only have one serious symptom just means you prbably found it before it had the chance to do any more damage. Intolerance and Celiac are no different in terms of the sway a person feels. And even with an intolerance, more symptoms develop as time goes on if you doon't find the offending substance. So if you ARE Celiac, then you may have stopped gluten before the antibodies had a chance to build up to dangerous damaging levels. Consider yourself either or both. And then read up on fructose intolerance. I hope it helps.

Sounds like you are walking the gauntlet regarding gluten what with beer being splashed in your mouth and living in bread crumb central! That was amusing....it never ceases to amaze me how gluten can get us as we all walk this gauntlet of gluten free. :)

tomtom009 Apprentice
tomtom009
Posted
  • Author

It sounds like fructose intolerance.

I read a post on here a few days ago by Mack the Knife saying his girlfriend had it. Do a search here for fructose intolerance and you will find it and a whole bunch of other people who have the same problem in addition to gluten.

There are several fruits that are higher than others and there are good lists if you google fructose intoelrance too. I don't think I have this problem so I haven't ever read enough to be able to give you any more information than that. But it is interesting to note that bloating it the main symptom for some of these people.

To your question- It is Celiac. Now to the question Are you? Well, I would assume that I was if I were you. Because you only have one serious symptom just means you prbably found it before it had the chance to do any more damage. Intolerance and Celiac are no different in terms of the sway a person feels. And even with an intolerance, more symptoms develop as time goes on if you doon't find the offending substance. So if you ARE Celiac, then you may have stopped gluten before the antibodies had a chance to build up to dangerous damaging levels. Consider yourself either or both. And then read up on fructose intolerance. I hope it helps.

Sounds like you are walking the gauntlet regarding gluten what with beer being splashed in your mouth and living in bread crumb central! That was amusing....it never ceases to amaze me how gluten can get us as we all walk this gauntlet of gluten free. :)

thanks for the reply! i will definitively look into the fructose thing.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,929
    • Most Online (within 30 mins)
      7,748
    Mike Rowicki
    Newest Member
    Mike Rowicki
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • lehum
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By lehum · Posted

      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      Is this celiac?

      By Hmart · Posted

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Is this celiac?

      By trents · Posted

      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      I have a lot to learn!  Thank you
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.