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Newly Diagnosed Celiac, What Is The "normal" Cycle Of Recovery

reijnen

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reijnen Newbie
reijnen
Posted

2 weeks ago I was diagnosed with Celiac disease. I am a professional athlete and I ony showed symptoms for 6 weeks before being diagnosed. I was neg. on the blood test but biopsy showed moderately damaged villi. In the first week gluten free I saw a fair bit of improvement training went back up to 3 hours from only being able to do 1 hour (normal is 6hrs+). After traveling internationally and being glutened by beef jerky (didn't even think to look), I have felt like crap this whole week. For me the bulk of the symptoms are fatigue, muscle aches and joint aches, my stomach is not digesting aweosme but I don't seem to have a lot of other GI issues. I am young, fit and had a very quick diagnosis it seems weird to me that I would recover some in the first week and then be completely back to go in the second week. I am EXTREMELY careful with my diet as my job depends on me feeling 100% I am doing everything right, supplements, I always cook at home and only the best ingredients. I understand recovery can be a bit up and down for people who have been suffering many years but I have only been suffering for 6 weeks, I feel like recovery would be very quick for me.

Thank you for any input, also are there any athletes out there? Feel free to DM me.

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sb2178 Enthusiast
sb2178
Posted

I was very active (marathons, high bike mileage) prior to diagnosis, but was quite sick for a while and have not returned to my previous routines due to a variety of life circumstances. But, if you had damage in your intestines, it's likely you just did not have overt symptoms rather than being perfectly well.

However, I found that glutening affects fatigue and joints for about a week if it's once very veyr occasionally but if I get hit more than once in a short time period it lasts about two weeks or so. Given feedback here, it's quite variable.

On the upside, I react much less about a year later than I did for the first few months. It really took me 6 months to stabilize. It's not instant gratification, although the worst of the GI issues tend to clear up quickly.

xabbar Newbie
xabbar
Posted

2 weeks ago I was diagnosed with Celiac disease. I am a professional athlete and I ony showed symptoms for 6 weeks before being diagnosed. I was neg. on the blood test but biopsy showed moderately damaged villi. In the first week gluten free I saw a fair bit of improvement training went back up to 3 hours from only being able to do 1 hour (normal is 6hrs+). After traveling internationally and being glutened by beef jerky (didn't even think to look), I have felt like crap this whole week. For me the bulk of the symptoms are fatigue, muscle aches and joint aches, my stomach is not digesting aweosme but I don't seem to have a lot of other GI issues. I am young, fit and had a very quick diagnosis it seems weird to me that I would recover some in the first week and then be completely back to go in the second week. I am EXTREMELY careful with my diet as my job depends on me feeling 100% I am doing everything right, supplements, I always cook at home and only the best ingredients. I understand recovery can be a bit up and down for people who have been suffering many years but I have only been suffering for 6 weeks, I feel like recovery would be very quick for me.

Thank you for any input, also are there any athletes out there? Feel free to DM me.

Just wanted to mention that it seems once you take gluten out of your diet and then ingest some, accidently or not, the effects seem to be more intense and quicker. I'm not an expert but I would guess your body becomes even more sensitive once you are on the diet. Also it might be worth checking your sensitivity to dairy - many people who are gluten intolerant/celiac cannot deal with dairy either.

Good luck!

xabbar

  • 3 weeks later...
reijnen Newbie
reijnen
Posted
  • Author

Just wanted to mention that it seems once you take gluten out of your diet and then ingest some, accidently or not, the effects seem to be more intense and quicker. I'm not an expert but I would guess your body becomes even more sensitive once you are on the diet. Also it might be worth checking your sensitivity to dairy - many people who are gluten intolerant/celiac cannot deal with dairy either.

Good luck!

xabbar

How do you test your intolerance to dairy? I had a LEAP test done and it said I wasn't sensitive to dairy

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