Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low-carb Awakening


sunface21

Recommended Posts

sunface21 Newbie

Hi everyone-

Since I was 10 or so (I am 26 now), I can remember having these canker sores in my mouth- sometimes very severe, like 9 or 10 huge sores at a time. Sometimes I couldn't even eat because they were so painful. I went to the doctor many times to get help, but it was usually attributed to stress, etc. I am somewhat of an anxious person, so this did not seem to be too far off the mark. Over the past 16 years, I became used to them and accepted them as a part of my life. I went to the dentist recently and she mentioned something about Celiac's Disease (first time I had ever heard of it) and I have been doing some research. I do have fatigue during the day, but nothing I wouldn't consider a normal rise/fall in blood sugar due to highly processed carbs....I don't seem to have any other symptoms related to Celiac's. Just fatigue and mouth sores.

Recently, I went on South Beach and was on the phase where you cut out carbs completely (and so I was ingesting no breads or pastas during this time) and the sores went away. I lost the weight I wanted and rewarded myself with a weekend where I ate all the carbs I wanted, like pancakes and cookies- and the sores came back. I went back to carb-free, and they went away again.

I guess my questions are:

1. Does this sound like Celiac's, GI, or GS?

2. If it is not Celiac's, and this is as bad as my symptoms will get, what happens if I just ignore it? I don't seem to have any intestinal type symptoms related to eating gluten...just the mouth sores.

3. What do I need to do to get diagnosed, if I do have celiac disease, GI or GS?

I have been reading some of the other posts, and I realized that I do not have some of the debilitating symptoms that others are exhibiting- so would it be detrimental to just stick to my low-carb lifestyle and eat gluten every now and then?

Thanks for any advice you can give! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

It sounds like it could be Celiac or Gluten Intolerance... to be tested for celiac you would have to be consuming gluten (a lot of it for a while before testing) ... there is a whole panel of specific blood tests you would want to have done... That info is floating all over this site, and maybe someone with more technical no how can post them for you.

A lot of people are self diagnosing gluten intolerance by the success that they achieved on a low carb diet. My theory is that the reason these diets work is because of the elimination of gluten containing foods from the diet and then, just like any other fad diet, when you reintroduce gluten containing foods, the diet stops working... I think this is because way more people are gluten intolerant than is currently thought.

ianm Apprentice

Nini I agree with your low carb theory completely. It was when I tried the Atkins diet that my poor health made a drastic turn for the better. There is a chapter in the Atkins book about food intolerances and that led me to believe I have Celiac or am gluten intolerant. I won't get tested because I won't eat gluten and go back to the mess I used to be. I also used to have a mouth full of canker sores but they all went away when I went gluten-free.

Carriefaith Enthusiast
1. Does this sound like Celiac's, GI, or GS?

2. If it is not Celiac's, and this is as bad as my symptoms will get, what happens if I just ignore it? I don't seem to have any intestinal type symptoms related to eating gluten...just the mouth sores.

3. What do I need to do to get diagnosed, if I do have celiac disease, GI or GS?

Some people can have celiac disease and have no symptoms at all, but they still have intestinal damage. I think that you should be tested for celiac especially since you noticed improvements with the sores on the low carb diet. To get diagnosed I would go to your doctor and ask for the tissue transglutamase blood test or the celiac blood panel. I'd tell the doctor that you noticed improvements with your sores on the diet and would like to see if celiac disease is the cause.

skbird Contributor

Count me in the boat of those who self-diagnosed after going low carb. The low carb bread is full of gluten - when I tried that stuff out, not only did it taste terrible, but it caused me lots of problems.

I get canker sores, too. In fact, last Friday I was at the rheumatologist, and we were talking about the sores I get. He told me they were most likely due to my gluten-intolerance, as opposed to anything regarding rheumatology (lupus and some other connective tissue diseases also have mouth sores as a symptom). I was surprised my rheumatologist seemed to know more about Celiac and gluten than any other doctor I've been to. I lucked out!

Stephanie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

    2. - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Is this celiac?

    3. - Serena Rodriguez replied to klmgarland's topic in Dermatitis Herpetiformis
      9

      Help I’m cross contaminating myself,

    4. - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

    5. - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      9

      Help I’m cross contaminating myself,


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,924
    • Most Online (within 30 mins)
      7,748

    Mckshane
    Newest Member
    Mckshane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
    • Serena Rodriguez
      You've already identified the issue. You cannot have ANY gluten in your home EVER. It's not optional for everyone who lives with you to have a dedicated gluten free diet! And anyone who comes to visit you cannot bring anything gluten-containing into your home. All gluten containing items need to be thrown away, beauty/bath products included. All pots/pans, dishes, utensils need to go through the dishwasher. Anything too porous or delicate for the dishwasher needs to be thrown away and replaced. Your toaster needs to be thrown away and replaced. Your oven, stovetop, and all surfaces throughout your home (bedrooms and bookshelves too) need to be thoroughly washed. All of this needs to happen in the same day because you risk contaminating other parts of your home if you do only part of the job. There's no such thing as a "safe" amount of gluten in your home. Not putting your foot down means greater risks into the future for vitamin deficiencies, diabetes, damage to your thyroid, cancer, rheumatoid arthritis, and more.
    • tiffanygosci
      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.