Negative For Celiac But Positive For Gluten

[Molly R]

I'm pretty new here but have been reading a lot of these posts. I have been tested (blood and biopsy) for celiac and both were negative. But a stool sample shows that I am gluten intolerant. Appears one of my parents passed this trait on to me. I have been VERY strictly gluten free for the past two weeks, and feeling the effects of withdrawal, so I know I'm on the right track having removed it from my diet.

I wasn't really shocked when I got the results of the blood and biopsy because I wasn't having intestinal trouble, just fatigue and light headed symptoms for the past number of years. But I almost fainted for real when I got the results of the other test. I thought being gluten intolerant was what celiac disease is. My doctor said not necessarily but I seem to read the opposite here. Am I just a freak????

[cassP]

no you're not a freak- but rather quite normal i think. and i think you may be misunderstanding what you're reading on here... maybe?? Celiac & Non Celiac Gluten Intolerance are not exactly the same thing- but they are both very serious and require strict adherence to the diet. so far the medical community only seems to be able to have a label & a set of antibodies assigned to the disease: "Celiac".. it's really just the tip of the iceberg.. and really quite confusing- you can see Celiacs on here with no stomach or skin issues.. and then you'll see people with skin problems and sick as a dog- and yet all their tests come out negative. yet they feel better on the diet.

sorry- am i just making it more confusing?? the bottom line is- if gluten makes you feel bad- (AND you have test results suggesting an intolerance)- then u should never eat it. gluten intolerance can lead to so so so many other ailments in the body besides the small intestine. you really dont need an official "celiac" label to suggest that gluten is damaging your body.

hope that helped :/

ps- if you look at all of our "signatures", you can see just how many additional illnesses gluten ingestion can result in

[Molly R]

Thanks so much for the reply! Not confusing at all! I think I'm getting the hang of it.