Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Igg Results And Future Expectations?


Neali

Recommended Posts

Neali Rookie

Our 5 year old daughter showed results of IGG high to gluten, gliadin, wheat, spelt, yeast and moderate to egg whites, rye, soy bean and garlic.

From your experience, is there any chances that it can improve (go away?) with time?

She has been on gluten free diet for almost a year, with impressive changes/results.

And on diet free from all the other foods she showed reaction to, for about 1 month and 1/2, we have been recommended to keep it up for 3 months, I might anyway keep it going longer.

We opt for no other treatments so far, but might reconsider as she still presents some signs of not being fully recovered maybe (pale stools).

The Doctor Naturopath we dealt with said that it is possible that the wheat/gliadin/gluten problems would be for life :-( I guess based on the symptoms + results?

I worry a lot, and not knowing enough is the worse, I prefer to be "ready" for all kind of scenarios now, since this is quite recent to us - we've been struggling with "traditional" medecine "back home" in England as they kept saying she was healthy and nothing was wrong with her (always ill with tonsiltis and/or other infections, bloated tummy, eczema, complaining of tummy ache, head ache, nausea, diarhoea)because she was happy and -looking- healthy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



charliesmom Rookie

Has she been tested for celiac disease?

Neali Rookie

Hello Charliesmom,

No she hasn't.

In England the family doctors we had couldn't be concerned less (almost had me fully convinced that I was the problem and the one to be treated with prozac or else) :-(

And since we arrived here we haven't found a family doctor yet, we went for a naturopath, but she works with limitations, and she also said that the only way to check for celiac was with the endoscopy procedure - which, because of our past experience with medical services we were terrorised of putting her through, but since reading a few positive stories here, I start to re-think.

Aline

GlutenFreeManna Rising Star

Since she has been on a gluten free diet for a year testing for celiac will be negative, if she has it, it would show up false negative. The only way to get testing done would be to challenge her by feeding her gltuen --the equivalent of 3-4 slicces of bread-- for at least 3 months prior to testing. However, if you feed her gltuen again and her symptoms return then you have your answer and should keep her gluten free for good regardless of the test results (or if you can't keep her on gltuen long enough for the tests which is the case for many here). Celiac/gluten intolerance does not go away with time.

alex11602 Collaborator

Our 5 year old daughter showed results of IGG high to gluten, gliadin, wheat, spelt, yeast and moderate to egg whites, rye, soy bean and garlic.

From your experience, is there any chances that it can improve (go away?) with time?

She has been on gluten free diet for almost a year, with impressive changes/results.

And on diet free from all the other foods she showed reaction to, for about 1 month and 1/2, we have been recommended to keep it up for 3 months, I might anyway keep it going longer.

We opt for no other treatments so far, but might reconsider as she still presents some signs of not being fully recovered maybe (pale stools).

The Doctor Naturopath we dealt with said that it is possible that the wheat/gliadin/gluten problems would be for life :-( I guess based on the symptoms + results?

I worry a lot, and not knowing enough is the worse, I prefer to be "ready" for all kind of scenarios now, since this is quite recent to us - we've been struggling with "traditional" medecine "back home" in England as they kept saying she was healthy and nothing was wrong with her (always ill with tonsiltis and/or other infections, bloated tummy, eczema, complaining of tummy ache, head ache, nausea, diarhoea)because she was happy and -looking- healthy.

As far as doctors go I beg you to listen to your gut. Doctors do not know everything...for example, my 16 month old daughter is facing kidney failure (they are functioning at 65%) because the only doctors the insurance would cover insisted she was fine for the same reason (always smiling and happy, little did they know that she was in so much pain that their poking and proding didn't bother her). We finally were fed up with them (they diagnosed her over the phone with celiac and wouldn't do anything when she had bloody stools) and we went to another pediatrician who checked her blood levels and she is deficient in everything and her intestines are in really bad shape, but because the other doctors just blew us off my 16 month old child is facing total organ failure in the next 6 months. Our pediatrician actually just told us to try natural healing like massage and aromatherapy to stimulate her kidneys so that we wont lose her because no one else will even look at her because we no longer have insurance and it seems that it is all about money.

Anyway...sorry that I got so off topic. My point was pretty much find a doctor that will take you seriously because it is your child's life. I truely hope that you get the answers that you need. Good luck to you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Ginger38's topic in Related Issues & Disorders
      15

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Tazfromoz replied to Ginger38's topic in Related Issues & Disorders
      15

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - hjayne19 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Celiac Screening

    4. - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

    5. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,076
    • Most Online (within 30 mins)
      7,748

    Monica L
    Newest Member
    Monica L
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Thank you for your thoughtful contribution, @Tazfromoz. I live in the UK and the National Health Service funds free vaccines for people deemed to be at heightened risk.  I was pleasantly surprised to discover that as a coeliac in my 50s I was eligible for this vaccine, and didn't think twice when it was offered to me.  Soon after diagnosis I suffered mystery symptoms of burning nerve pain, following two separate dermatomes, and one GP said he felt that I had contracted shingles without the rash aka zoster sine herpete.  Of course, without the rash, it's a difficult diagnosis to prove, but looking back I think he was completely spot on.  It was miserable and lasted about a year, which I gather is quite typical. For UK coeliacs reading this, it is worth having a conversation with your GP if you haven't been vaccinated against shingles yet, if you are immunosuppressed or over 50. I have just googled this quickly - it is a helpful summary which I unashamedly took from AI, short for time as I am this morning!   My apologies. In the UK, coeliac patients aren't automatically eligible for the shingles jab unless they're severely immunosuppressed or over the general age for vaccination (currently 50+) but Coeliac UK recommends discussing the vaccine with a GP due to potential splenic dysfunction, which can increase risk, even if not routine for all coeliacs. Eligibility hinges on specific criteria like weakened immunity (chemo, certain meds) or age, with the non-live Shingrix vaccine offered in two doses to those deemed high-risk, often starting from age 18 for the immunocompromised.
    • Tazfromoz
      My understanding, and ex I erience is that we coeliacs are likely to suffer more extreme reactions from viruses. Eg we are more likely to be hospitalised with influenza. So, sadly, your shingles may be worse because you are coeliac. So sorry you had to go through this. My mother endured shingles multiple times. She was undiagnosed with coeliac disease until she was 65. Me at 45. I've had the new long lasting vaccine. It knocked me around badly, but worth it to avoid shingles.
    • hjayne19
      Hi all,  Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was doing some research and questioned either or not I might have celiac disease (since I didn’t have any gastric symptoms really). My family doctor ran blood screening for celiac. And my results came back: Tissue Transglutaminase Ab IgA HI 66.6 U/mL Immunoglobulin IgA 1.73 g/ My doctor then diagnosed me with celiac and I have now been gluten free for 3 months. In this time I no longer get night sweats my joint pain is gone and I’m still having trouble sleeping but could very much be from anxiety. I was since referred to an endoscopy clinic to get a colonoscopy and they said I should be getting a biopsy done to confirm celiac. In this case I have to return to eating gluten for 4-6 weeks before the procedure. Just wanted some advice on this. I seem to be getting different answers from my family physician and from the GI doctor for a diagnosis.    Thanks,  
    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.