Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vision


PaleoMan

Recommended Posts

PaleoMan Newbie

Hi, I'm a new poster here, though I've searched info on this board before. I suppose the correct term for my condition would be gluten sensitive enteropathy since I didn't get a biopsy and therefore don't qualify clinically as celiac.

One of the more startling improvements I've experienced on a gluten-free diet is improvement of my nearsightedness. I haven't seen anyone else here mention that improvement, though I have seen mention of double vision and blurry vision. Has anyone else experienced an improvement in visual acuity? For the first time in over a decade I can see well enough to walk around in the house without my eyeglasses if I want to, and I can read without my glasses if I hold the material up close, also for the first time in many years. Also, my night vision seems to have improved a bit, after deteriorating in recent years.

I haven't found mention anywhere on the Net of nearsightedness being a symptom of celiac, but I have found it mentioned as a symptom of Marfan syndrome, which has celiac disease as one of its manifestations, and I do have several Marfan characteristics. I don't qualify clinically as having Marfan either, as my armspan to height ratio is 1.042, which is slightly below the minimum of 1.05 necessary to be categorized as having Marfan syndrome.

My sister also has experienced vision improvement since going gluten free. She also has some Marfan characteristics but also does not qualify as having clinical Marfan syndrome.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf4life Enthusiast

I certainly hope my vision clears up a bit. I've only been gluten-free for two months. I have astigmatism and a little bit of nearsightedness, and really bad night-blindness. My husband has to take off work if we have out of town doctors appts. since I don't want to get stuck out of town and not be able to see to drive home. So I hope this gets better after a while. How long have you been gluten-free?

And I'm not technically Celiac either, since my biopsy came back neg. but I do carry the gene and tested positive with Enterolab.

I'd like to know how many others had improvement of vision.

God bless,

Mariann :)

Guest Libbyk

Much to my shock, my vision has improved noticably since I have been gluten free. It wasn't all that bad to begin with, but I got hedaches and hated to drive at night. Now, not a problem.

Wow.

Libby

Lily Rookie

My night vision is improving since going gluten free :)

Lily

bluestar Newbie

My vision has not improved with the diet. My eyes are always dry and my vision in general has gotton worse. I have been on the diet for about 5 years. I thought that I might have sjorgens (it can be associated with c.d. as both are autoimmune diseases) but I don't. Once again, I must keep in mind that everything is not necessarily related to c.d. Any thoughts?

Marc

Guest aramgard

Marc, My vision has also gotten worse since I've been gluten free. My eyes are dry most of the time, but suddenly they will become very watery for a while then back to dry, itchy and blurry. They tested me for Sjogren's but said I didn't have it. Of course, the ENT doctor who tested me was not very helpful and just said I would have to learn to live with it. The allergist gave me Patanol, which is very expensive, but does help a little, especially when they get very itcthy. I think I was diagnosed much to late to improve some things in my life. Shirley

celiacfreeman Contributor

My night vision is sooo much better after 4 weeks gluten-free.

unbelievable difference.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



layla73 Newbie

hi,

I'm new here.My vision has gotten worse.I have been on a diet for 2 years.

I have diplopi and vertigo. :(

I went to a neurologist and he said that all those things might be cause of sixth nerve pulse or myasthenia gravis which is also an auto ımmun disease.

Do you have any suggestion?

THNKS..

  • 2 weeks later...
PaleoMan Newbie

Thanks for the replies, folks--sorry for my slowness in responding back. I'm no expert, but I found that going gluten-free was not enough for me. I found that I was sensitive to other foods, in addition to gluten, and that I have significant vitamin and mineral deficiencies from gluten. Because of my other sensitivities I am on a Paleo diet (which prohibits grains, cow's dairy, legumes and other "modern" foods) with citrus fruits and walnuts also excluded.

I am especially magnesium deficient. I read that magnesium deficiency is a common side effect of celiac disease, and that magnesium deficiency can cause constipation, near sightedness and other symptoms that I have. So I have been taking 1,500 mg magnesium (with calcium) daily and this has brought about additional improvements for me on top of the Paleo diet--especially with the constipation. My vision improvement has occurred in fits and starts and regresses when I accidentally eat the wrong foods. I am hoping that by sticking as much as possible to a strict Paleo diet and taking supplements that my vision will continue to improve.

PaleoMan Newbie
hi,

I'm new here.My vision has gotten worse.I have been on a diet for 2 years.

I have diplopi and vertigo. :( 

I went to a neurologist and he said that all those things might be cause of sixth nerve pulse or myasthenia gravis which is also an auto ımmun disease.

Do you have any suggestion?

THNKS..

Myasthenia gravis is certainly consistent with vertigo and diplopia (double vision), and Myasthenia gravis is associated with celiac disease. Multiple gluten-triggered autoimmune disorders involve damage to the inner and/or middle ear.

Vertigo can also be caused by inner ear damage from autoimmune inner ear disease, which is also associated with gluten sensitivity and celiac disease. This disease tends to involve deficiencies in magnesium and/or potassium and other nutrients.

You may have also noticed over the years that your balance in doing things like bicycling, somersaulting, underwater back somersaults, etc., is not as good as other people. Perhaps you may have noticed a ringing or background noise in one or both ears on occasion over the years or dizziness when rising suddenly from a chair or the floor. These manifestations would be further indication of a middle or inner ear problem. Scanning of your ear canals could reveal bone thinning and/or damage to the ear's hair cells.

You should also get checked for nutritional deficiencies such as magnesium, calcium, potassium and B-vitamins, which can contribute to inner ear damage and the resulting vertigo. An environmental doctor or doctor familiar with celiac disease and nutritional deficiencies would likely be more open to doing these tests and recommending supplements than the average general practitioner.

  • 3 weeks later...
Tye-Kon Newbie

I was diognosed a few months ago and since then have been on a gluten free diet. I have noticed that I can see better at night and my vision isn't as blurry as it use to be, especially when I first wake up in the morning. I also have dry itchy eyes that become watery for no reason. I thought it was my allergies, I guess its just one more symptom of Celiacs! I wish my stomach problems would go away as quick as my vision problem did!HaHa Tye-kon

jaimek Enthusiast

I have been gluten-free for about 3 months now and have noticed that my eyes are crusty and a little stuck together when I wake up in the morning. I know, sounds gross but it has only been since going gluten-free. They also get very blood shot and I look like I got punched in the face. Haven't seen a doctor for this since I am just sick of going to the doctors. So, guess since other people have eye problems that it could be related to the Celiac? It doesn't affect my vision though. Anyone else experience this? ;)

Guest aramgard

Sounds like either an allergy or a bacterial infection. I had a terrible eye problem and the allergist put me on eye drops, Patanol, which really worked wonderfully. If not you might try an over the counter allergy eye drop. Shirley

celiacfreeman Contributor

my eyes only feel like that within 2 hours of having had gluten.

It is the only way I know that I've ingested something I should not have.

I would go over everything again and Check your not getting some in any form, such as stamps, toasters, or other hidden sources.

wwebby Apprentice

I am not gluten-free right now because I am getting tested again on the 29th, but last year, when I went gluten-free for a few months, to sort of test myself, I noticed a weird weird improvement in my eyesight. It wasn't really that I could see better, as in "less blurry." it was more that everything seemed brighter, sharper, and more vivid. It was really cool. Also, my ears cleared up. I loved seeing more vividly. I can't wait to go gluten-free again! I hate waiting for testing...

Guest Addicted2Gluten

I was diagnosed with extreme nearsightedness in one eye and needed to where glasses, since going off gluten (it took a few months) my eyesight came back was better than perfect 20/10. But, now that I'm just finishing up my 2-3 month gluten challenge my eyesight is worse again.

jaimek Enthusiast

Well, I found the culprit of my eye problem. The shampoo I was using had wheat in it. It was causing the severe redness under/in my eyes and the dry, puffiness. Needless to say, I threw it away. Weird cause it didn't cause that reaction before I went gluten-free but I guess my body is now having more serious reactions to gluten since cutting it out.

plantime Contributor

Jaimek, I read your post, and immediately went ot look at my shampoo! The conditioner,Matrix Curl Life defining system, has hydrolyzed wheat protein in it! I'll have to keep an "eye" on how I might react to that! Thank you for the "Head's" Up on it!

(all puns obviously intended)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.