Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Ever Just Not Care?


Janelson

Recommended Posts

Rikki Tikki Explorer

Hi and welcome to everyone:

I spent eight weeks at my mom's because I was so sick I couldn't carry on anymore, so many of you are new to me. Anyway, I put on 20 lbs. while I was there!

It is very hard, so much of our lives involve food, going to someones house, out to eat, just sitting around talking.

I think most of us went through all of the emotions you are feeling. It does get better though, just one day you will get done being angry and see that there are so many worse diseases.

What I am trying to say is I think it's normal to be angry at first, but I promise it will pass.

Not that there won't be times when you think it sucks, maybe even cheat as I did, then you will get so tired of being sick and the way it drains your body that you will realize that it's just not worth eating that gluten stuff. It can feel overwhelming, but that's why we are here, to help and support each other.There were many people on this board that helped me see that. It will just come to you one day and then it will be ok.

Remember for each of us that get a diagnosis, thousands are either having silent damage or are so ill and don't know why. Probably being told by their doctors that it's all stress, IBS or in their head. I think that's what makes me grateful, for many years I really believed it was all stress. While I wish I didn't have it I am also grateful that at least I know why I was so ill.

Hey, there is a new topic, what is everyone grateful for?

If you just want to talk just email any of us and we will get back to you!

It appears I just went on and on, I just wanted to welcome all the new people. :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ianm Apprentice
Hey, there is a new topic, what is everyone grateful for?

<{POST_SNAPBACK}>

celiac disease or gluten intolerance was the best thing that ever happened to me. I went through 36 years of pure hell because of it but now I am being rewarded for sticking it out. I used to be obese but I am now down to 160lbs and actually have abs. I got rid of a dopey wife who just couldn't accept my disease and traded her in for a wonderful new girlfreind. I almost lost my job but now I have so many great things happening career wise. The opportunities being presented to me are almost overwhelming. I now have so much energy that most "normal" people can't keep up with me. My girlfreind says... Ummmmmm I can't talk about that here. :lol: :lol:

When I finally figured out what the problem was I heartily embraced the gluten-free lifestyle and have never looked back. Discovering you have celiac disease means that you have been given a second chance at life. Embrace it now because you may not get a third chance. I am not very religous but God does provide a path for your life but it is up to you to find it and follow it. This doesn't mean it will be easy but you will be rewarded for your efforts.

cmom Contributor

I normally do very well on my gluten-free diet and accept it as my life. However, last week I had my "non-caring" moment. I was fixing taco salad, thought I still had a packet of gluten-free taco seasoning, but didn't. My dear husband, who is very supportive, went to the store to get me a packet. We live in a small town and the selection is very poor. He came home with Taco Bell seasoning in which the first ingredient was wheat flour. Poor husband didn't think of reading the label on that. He felt bad but I was so aggravated that he couldn't just go to the store and pick up something for me that I used it and ate it with the rest of the family. Also, lately, it has bothered me when we've been away from home and couldn't just pull in to any restaurant and get something to eat like everyone else does. But I know I will overcome! :lol:

Rikki Tikki Explorer

Good Ianm, I am glad everything is going good for you! What is everyone else grateful for?

Guest nini

I was obese prior to my dx and now after losing 80 pounds I am well on my way to being the healthy slim looker that I know I am! That's what I'm grateful for!

Oh and the fact that my daughter will not have to go through years of being sick with no one knowing what was causing her symptoms and not calling her a hypochondriac because they couldn't find a physically apparent reason...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.