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Went Gluten-Free In August.. Weight Issues Since 07


PadmeMaster

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PadmeMaster Apprentice

In August, my mom found something about Gluten Free dieting helping with pains such as I had. Ever since I was 5 months old, I've had joint pains. I've been to doctors: When I was 5, when I was 10, 15, etc. When I was 16ish, The doc told me that I have Hyper Mobility Joint Syndrome, and that it's "benign." If that was true, I have a very very severe case, but I have a good reason to believe it isn't.

August '10 I went Gluten Free. At the time, it consisted of eating potatoes and Gluten Free Chili (Hormel marks their "with beans" Chili as gluten free; it was the only one I could find at the time). I made a few mistakes, at least, though. I destroyed most of my knee pain in the first month, but still had wrist pain. At the time, I weighed about 150/160 after losing weight (and gaining it back) with HcG diet in the past. I hurt my wrist pretty bad in September (moving baskets into a hotel; we were traveling for work) and wore a wrist brace for about 2 months because of it. After that, I had no wrist pain until I drank a "Green Machine" (one of the Naked Juices) without checking it. That's when I knew for sure that I had a gluten intolerance. I now eat a ton of prepared foods, mostly recommended by someone with Celiacs that plays a game I play. Of course, they are high sugar/carbs/calories/fat, and cost $5-7 for a small container.

So now, after moving and eating badly (understatement: Hamburgers without the bread are just as bad as WITH the bread, if you eat a large fry instead of a small.) I weigh almost 185, my highest yet. I am not fond of meat (unless in taquito form) and am not interested in doing HcG again because it works best with meats (recommended plan; we've tried smoothies instead though). What I'd like is something like Nutrisystem where someone tells me what to eat.

So IS there a program like that for those of us who need Gluten Free?


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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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