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My Mom Just Got Diagnosed At 63- Anyone Else With A Later In Life Diagnosis?

SaraKat

By SaraKat
in Coping with Celiac Disease

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SaraKat Contributor
SaraKat
Posted

Hello- I was dx'd back in fall 2010 and I told everyone in my family to get get tested. My sister and dad were negative and my mom just found out she is positive. She will have the endoscopy in a couple weeks, but her blood tests were very high. She has 0 symptoms and the Dr also did other blood work and all her iron/nutrient levels were normal.

How is that possible to have celiac at 63 and have no symptoms and all normal blood work?

Anyone else get dx'd later in life?

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kathymacn Newbie
kathymacn
Posted

Hello- I was dx'd back in fall 2010 and I told everyone in my family to get get tested. My sister and dad were negative and my mom just found out she is positive. She will have the endoscopy in a couple weeks, but her blood tests were very high. She has 0 symptoms and the Dr also did other blood work and all her iron/nutrient levels were normal.

How is that possible to have celiac at 63 and have no symptoms and all normal blood work?

Anyone else get dx'd later in life?

Like your mother, I had no overt symptoms, gastrointestinal or otherwise. The only "symptom" was high liver enzymes on a routine blood test. I was sent to a gastroenterologist, who repeated the blood tests, the results of which indicated that I had celiac disease. The subsequent endoscopy and biopsy confirmed the diagnosis. At the time I was 65 years old and VERY unhappy at having to adjust to the gluten-free lifestyle, since I felt well. I've been gluten free since 2002, and will be 75 on my next birthday.

It's wonderful that your family all agreed to be tested .... so many refuse to even consider it.

ravenwoodglass Mentor
ravenwoodglass
Posted

I was diagnosed later in life but as you can see from my signature I did have lots of symptoms. Not all celiac symptoms are gut related so if she has arthritis, headaches, fatigue, moodiness etc those could also be symptoms.

There are also asymptomatic celiacs. Being asymptomatic doesn't mean that damage isn't being done.

Glad she got tested and they discovered this before serious illness set in.

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