Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Glutened Response

mscrzy1

Recommended Posts

mscrzy1 Newbie
mscrzy1
Posted

My daughter hasn't been tested for celiac's yet, although her dr. is fairly certain that is what we are dealing with. My question is for parents whose kids vomit as a reaction to gluten. My daughter has been having problems where she will vomit in the middle of the night and have no other symptoms of a stomach flu. If it's gluten related, do your kids vomit immediately after eating gluten or is it delayed? We ate last night at 6:30pm. She threw up this morning at 5am. She has no other symptoms of a flu..no fever, no sweating, no loss of energy, no achiness, and she's eating just fine now. In fact, she's wanting to eat and eating with no problems. I'm purposely having her avoid all gluten today so as to possibly differentiate if it's the flu or not. I asked her if her stomach hurt last night after eating and she said that it didn't start hurting until the middle of the night. I'm asking to see if it's possible that it was gluten related since she has absolutely no symptoms of the flu with this. This isn't the first time this has happened and it's starting to happen more and more. Any of your kids have a delayed glutened response like this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

Is she wide awake when she trows up or still out of it?

Anyway, that isn't that delayed. Some people don't start getting symptoms till 3 days later :blink:

It is very possible that it is related, however i would continue to get her tested just to verify it is before doing anything else.

mscrzy1 Newbie
mscrzy1
Posted
  • Author

Is she wide awake when she trows up or still out of it?

Anyway, that isn't that delayed. Some people don't start getting symptoms till 3 days later :blink:

It is very possible that it is related, however i would continue to get her tested just to verify it is before doing anything else.

Thank you for your quick response. She is awake because the stomach ache wakes her. :(

suziq0805 Enthusiast
suziq0805
Posted

My daughter hasn't been tested for celiac's yet, although her dr. is fairly certain that is what we are dealing with. My question is for parents whose kids vomit as a reaction to gluten. My daughter has been having problems where she will vomit in the middle of the night and have no other symptoms of a stomach flu. If it's gluten related, do your kids vomit immediately after eating gluten or is it delayed? We ate last night at 6:30pm. She threw up this morning at 5am. She has no other symptoms of a flu..no fever, no sweating, no loss of energy, no achiness, and she's eating just fine now. In fact, she's wanting to eat and eating with no problems. I'm purposely having her avoid all gluten today so as to possibly differentiate if it's the flu or not. I asked her if her stomach hurt last night after eating and she said that it didn't start hurting until the middle of the night. I'm asking to see if it's possible that it was gluten related since she has absolutely no symptoms of the flu with this. This isn't the first time this has happened and it's starting to happen more and more. Any of your kids have a delayed glutened response like this?

My son isn't diagnosed with celiac, but it's something we suspect right now. He does vomit after eating gluten. He's only 13 months old, but every time he's had wheat/gluten he vomits about 2 hours later. He'll be fine for about 2 hours after eating it, but then he begins vomitting- and sometimes the vomitting can last 30 minutes, sometimes hours with dry heaving. He hasn't had gluten for a few months now, but he has a return appointment with his pediatric GI in a few days so I think we have to try it again to know if it's something that's still an issue. I'm hoping that if he does still have the reaction that this will be the last time I have to give him gluten for a long time! I feel so guilty giving it to him, but I guess the doctor wanted to wait until after he turned 1 to see if it's still an issue and then go from there.

  • 2 weeks later...
Starbuck Newbie
Starbuck
Posted

Hi. My son was diagnosed with Celiac when he was 3 years old. He is now 7. Poor guy almost made it through 1st grade without incident but today (with only 4 days left) his teacher accidentally glutenated him! He starts vomiting approximately 2 to 4 hours after he ingests gluten. And this lasts for about 4 hours. He is exhausted when this happens and it's horrible to watch. Thankfully, he is sleeping now after I gave him a suppository of Promethegan (anyone else use this)? His doctor prescribed it and this is the first time I had to use it. So far it seems to be working. He only vomited once this afternoon, I gave him the suppository, then he went to sleep. I'm worried that this is just going to prolong things. Anyway, I just wanted to post that my son always has a delayed reaction to gluten, which unfortunately begins and ends with vomiting.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,912
    • Most Online (within 30 mins)
      7,748
    westman3d
    Newest Member
    westman3d
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.