Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Found Out...

dd6444

By dd6444
in Coping with Celiac Disease

Recommended Posts

dd6444 Rookie
dd6444
Posted

Hi everyone, just joined a few days ago, this is my first post. I was just diagnosed with celiac disease by a stool sample (the results came back on my 17th birthday... what a great present...lol) and I've been on a gluten free diet since then, which was July 7th, so its been a little bit over two weeks. I've started to feel worse after I started the gluten-free diet. Among other things, I've had more nausea, less appetite, and I've been losing more weight. I also dont know if this is from celiac, but my insomnia is worse too (did anyone else have insomnia?). I didn't know what was happening, but after I read through a few posts here, I saw that other people had gotten worse and then better, so I'm not worried anymore, I'm just trying to hang in there until I start feeling better. I've been really good about eating gluten free stuff, and my parents are very helpfull. Well, I cant think of anything else, and if you've made it to the end of my post, congratulations. You get a gluten free cookie. Thank you all for the wealth of information on this board.

--Dave

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


steve-o Apprentice
steve-o
Posted

Hang in there Dave, it'll get better. I've been gluten-free for almost 2 months now, and I went through all the same stuff you're describing. I went through a "gluten withdrawal" period of about a month, where I felt really rotten...but then it got much better, and has been ever since.

If you're still having issues with nausea, you might try cutting out dairy from your diet too. Nausea is a common symptom of lactose intolerance, which is highly associated with celiac disease. I found that cutting out dairy made my nausea go away...but we're all different, so this may or may not work for you.

Also, make sure you're taking a good multivitamin.

Misa Rookie
Misa
Posted

Hiya Dave

I'm new to this too.....Five weeks now and already feeling so much better alround. But....the first three weeks were difficult. The fatigue, muscle pain, headache and bloating got worse. And I also became very aggressive (which isn't part of my personality at all) and have had to do some humble apologizing now that I'm cool, calm and collected B) . I also woke up several times a night, felt nauseas and lost alot of weight to the point were clothes became baggy. Suddenly during the course of week four everything changed for the better. And my weight is up to what it was previously.

I guess my point is, lots of things can happen, many great and some not so good. It seems the beginning can be a bit bumpy.

Good luck, Misa

KaitiUSA Enthusiast
KaitiUSA
Posted

Hey...welcome to the board.

It may be overwhelming a bit at first but it gets easier. I have been gluten free since January of 2004. Just be prepared there are gluten free products that taste like crap but then there are just great brands that you can find about to try.

When you go gluten free though do not expect an instant change. I didn't really see a difference till the third month. By the 8th month I was back to normal. Everyone has different healing times so don't be worried about that , your body will heal and you will feel better but you have to let it work at it's own pace.

I agree about taking a multi...I think a liquid multi may be best at this point because they are ultra absorbable.

Other things that help are enzymes and probiotics...they are not for everyone but I swear by them...they helped me so much.

This site will really help you out. I wish I had this when I first started the diet.

Anyway, feel free to contact me if you just want to talk or if you need any help :D

printmaker81 Rookie
printmaker81
Posted

Hey Dave, welcome to the board. I'm going through the same thing as you. I was diagnosed back in May. I definitely felt worse after going on the diet, particularly my nausea and dizziness. I'm still waiting on a lot of my symptoms to dissappear, but I've stopped losing weight!! Plus, there is a feeling that I am somehow less toxic (though it's hard to explain). It sounds like you have a good attitude, so just stick with it and have faith that things will eventually improve.

I'd also suggest looking at non-food products, shampoos and soaps may have gluten in them.

I ditto the probiotics, they have really helped me. Plus, you may want to avoid soy and dairy products even if you don't have an intolerance to them because they can be hard to digest especially for a healing gut.

Good luck

dd6444 Rookie
dd6444
Posted
  • Author

Thanks for the support guys :)

I'm taking all sorts of vitamins and stuff... also i've been avoiding dairy products, and soon I'm gonna have a test for food allergies.. B)

cgd Newbie
cgd
Posted

Hi, I just started the gluten-free diet a little over a week ago. It's been good in some ways, no more headaches, but I can relate about some things being worse. I feel full and bloated a lot, and I'm bone-tired. I've always had insomnia, so this is nothing new. Losing weight would be fine with me--I'm atypical in that I'm about 20 lbs overweight. Welcome!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.