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lollipop155

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lollipop155 Rookie

Hi there, my names Helen, im 42 and live in the UK. Ive just been told by my doctor to try a gluten free diet for a while. For over a year now ive had what appeared to be IBS , recently it seems im becoming more and more intollerant to food. I cant eat burgers, sausages etc as they give me a bloated stomach and terrible pain. Other foods bloat me and make me uncomfortable like potatoes, chips, apples, fruit juices etc. Some foods just bloat me without making it too uncomfortable, like ice cream! It literally takes minutes to happen and after meals i end up looking pregnant. It just seems more and more foods are doing it! I did try gluten free bread and it was much better. There are very few foods that i can eat without a reaction. Can anyone offer any advice, thanks, Helen x


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YoloGx Rookie

Hi there, my names Helen, im 42 and live in the UK. Ive just been told by my doctor to try a gluten free diet for a while. For over a year now ive had what appeared to be IBS , recently it seems im becoming more and more intollerant to food. I cant eat burgers, sausages etc as they give me a bloated stomach and terrible pain. Other foods bloat me and make me uncomfortable like potatoes, chips, apples, fruit juices etc. Some foods just bloat me without making it too uncomfortable, like ice cream! It literally takes minutes to happen and after meals i end up looking pregnant. It just seems more and more foods are doing it! I did try gluten free bread and it was much better. There are very few foods that i can eat without a reaction. Can anyone offer any advice, thanks, Helen x

hi Helen. Welcome to the celiac.com forum!

Its likely very worth it for you to try out eating gluten free. The best gluten free diet, especially initially, is to eat veggies, whole grain rice, meat and water.

You have to avoid what is called cross contamination (CC) from gluten to really get the full benefit. It may also be that you are suffering from leaky gut syndrome caused by damaged villi (usually damaged by the gluten). It takes a while to heal--so meantime its wise to stay off milk products.

You should also replace your cutting board, toaster and any food implements you use that is made of wood in order to avoid more CC. If you have a wooden table, get a table cloth. I replaced my plastic table mats too. Your oven and iron pots should be put through the self cleaning cycle to get rid of trace gluten. I also found it best to avoid gluten in make up and lip gloss as well as in various soaps, cleaners and toiletries, not to speak of certain building materials like pre-mixed plaster.

There is a host of information on the board here. Just search whatever subject you want. There are also lists of trace gluten chemicals and food additives etc. found in foods listed in the info section that you should find useful.

If you don't get relief, consider going on a fast for a few days and reintroduce foods slowly one at a time every 2 days or so. Keep a journal so you can note how you feel. I found it helpful to take my pulse too (the Coco pulse test) to get even more info.

Avoid sugar, again especially at first, and especially given you have so much bloating. It could be candida overegrowth or some kind of bacterial dysbiosis which sugar feeds.

For me I found I also have salicylic acid sensitivity, which is a whole other story. Being sensitive to aspirin is a big clue for that one. Other common sensitivities are corn, soy, casein, coconut, the tomato/potato family. Some too have to be careful of pre-made gluten free flours since there can be very trace CC going on.

Good journey to you! I am betting you will find relief very soon.

Bea

lollipop155 Rookie

Wow thank you very much for your reply, i visited the supermarket today for a really good look at the range of gluten free stuff, i was surprised really, it seems gluten is in so much stuff!I will study this site which i must say is a godsend, thank you again, Helen xx

lovegrov Collaborator

And the good news is that if your problem is indeed gluten, you very likely will eventually start tolerating most of those foods that seem to bother you now -- as long as they don't have gluten.

richard

YoloGx Rookie

And the good news is that if your problem is indeed gluten, you very likely will eventually start tolerating most of those foods that seem to bother you now -- as long as they don't have gluten.

richard

Richard is so right. I can now eat eggs whereas they used to give me migraines. Ditto with my partner who now can eat onions and garlic with no problem. For some of us however being completely gluten-free can also uncover other hidden food allergies and sensitivities. You will likely need to heal your gut for a while in any case--so its often important to eat simply at first and then observe your reactions (if any) when you add in new foods.

The other good news is that its very likely your gut will feel so much relief. You may notice other things too like a clearer, less anxious mind, your body feeling fewer aches and pains, improved overall health and stamina, fewer dental carries and improved gums, sleeping better, weight loss etc. etc. So it is way worth it.

lollipop155 Rookie

Oh wow! That is a bit of good news! Thank you x

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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