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Does My Daughter Have It Now?


ILOVEOMC

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ILOVEOMC Enthusiast
:D My son was diagnosed in March and his younger sister is complaining of things which make me think she is developing it. She had the blood panel done in May and nothing showed positive. She complains of her tummy hurting, feeling like she is gonna throw up, burping and saying it came up in her mouth, and head hurting occasionally. Do you think she has it too?

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KaitiUSA Enthusiast

Sounds like a possibility. How old is she? Is she over 2? Because if she is under 2 then testing can be inaccurate. She may be starting to develop a problem...I would definitely monitor it closely especially knowing there are other celiacs in the family. Do you know what testing she had done? Some tests are more specific then others.

ILOVEOMC Enthusiast

She just turned 6 and she had the complete panel like my son did. If she is feeling the pain then I think there must be damage and a scope would detect that. I made an appointment with the GI but they can't see her until end of Sept.

KaitiUSA Enthusiast

Definitely don't want to see her suffer through those symptoms. She is obviously having a problem with something.

Ever considered getting an Enterolab done for her? They test for the gene, gluten sensitivity,malabsorption, and I think other things as well.

Have her symptoms started since being tested?

ILOVEOMC Enthusiast

What is an Enterolab? Her symptoms have gotten more specific and pronounced since the testing. Before the testing when she would complian of these things I thought it was just becase her brother was getting diagnosed and there was a lot ot talk in the house of tummy aches and such. He is doing better and she is still complaining.

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    • trents
      This kind of question is always difficult to give a definitive answer to because of so many variables. One such variable is the sensitivity of the individual celiac to small amounts of gluten cross contamination. An amount that causes a reaction in one celiac many not in another, or at least not be discernable which, of course, does not exactly equate to being "safe".
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      I see that Cracker Barrel restaurants have a gluten free menu (not all locations, but one confirmed that they do). I was wondering if it is safe for my 5 year old son with celiac disease? 
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      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
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