Interceception

[Luka]

I am 36 years old and have been sick for at least ten years that I can remember...diagnosed with "IBS" by many doctors. Three years ago I went to the emergency room after passing out from a little bit more than usual pain that I felt every day (from eating saltines thinking that would soothe my stomache). They thought I had Crones disease but discovered that my large intestine and my small intestine had intercecepted.

After removing 7" of intestine (including the valve between the large and small intestine) there was an incocnlusive diagnosis. Later I was referred to one GI then another and finally I found a nutritionist who knew something about Ciliacs. She told me I may have a wheat intolerence. How is it that of the 7 doctors I have seen not one asked me or discussed Ciliacs. I have been gluten-free (except for mistakes) for about a year now and have never felt better.

Anybody else with a similar ecperience? Ever heard of Ciliac causing Interceception?

[Jnkmnky]

No, I haven't. But your story underscores the critical need for early diagnosis.

[granny]

Hi Luka,

I don't know if that's what my sugery was called but I also went to the ER and had exploratory surgery after a very painful afternoon and night. They found that my small intestines had twisted and an adheasion had become entangled into the mess. After taking out 3 1/2 feet of my intestines to clear out the tangle and to clear out the gangreen that had set in, I was in ICU for 3 days and then another 4 days in a room before being released.

That is what kicked my celiac disease into high gear. I didn't have a normal bowel movement for over a year and was going an average of 25 times a day. It totally comsumed my life and I couldn't leave my home for fear of an accident.

I was so thrilled when my doc. suggested that I might have Sprue, and that eatting wheat free would probably help. I honestly didn't think it was possible to eat wheat free but was willing to try. I went on-line that night and found this site and read till the wee hours, learning everything I could.

Since I wasn't able to leave my home and we live in a very small town, my children would pick up bread and stuff from the health food store in the town they worked in and slowly I improved. As I improved I realized that we couldn't afford for me to continue the expense of the breads, so I started baking my own bread and followed advise from here on building a new way of eatting. I've found that I can eat just about anything, with a little adapting it to gluten-free, and am so thrilled to have the health I do today. I still have problems but they are much better.

I was never officially tested because my doc. agreed that the improvement on the diet was good enough for a diagnosis. I didn't want the expense of the tests. I wish I'd had them in some ways but will never eat gluten to prepare for tests. It's not worth it to me. I'm 59 years old and reasonable healthy and happy. The diet is a drag sometimes but it's worth it and so much better than some of the things I feared during the terrible diarrhea stage.

I hope this helps in some way. It's nice to talk to someone who had a similar situation. granny

[Meirav]

Hi Luka,

I just saw what you wrote when I researched interceception in Google. I do realize that it was a year and a half ago. I am a 36 years old female and I am also looking for the connection between celiac and interceception. I had that about a year ago and had 1' of my intestints removed (both large and small). Since then I cannot tolerate gluten. I don't know what was there first, the chicken or the egg but I do know that I feel much better with a gluten-free diet. I was never tested for celiac but I know that I am positive for the gene. Were you able to gather more information since your incidence?

[georgie]

My cousin just recently had this experience with an appendix op and bowel all wrapped and adhered. He has had symptoms of IBS all his life - probably 20 years - but now I am wondering about Celiac. He had blood testing in hospital after the op - but I still wonder. None of his family are taking me seriously. They think the blood test is accurate.

[Michael33556]

I had an interceception twice. Once at 6months and another at 18 months old. I have had a lifetime of problems, and just went gluten free a couple of months ago, have been doing much better. I recently realized the interceception occurred right when I would have gone on real food, and Im sure wheat based products had to be some of the first things I was given.

I'm 39 now and realizing I could have been feeling much better for all these years is pretty frustrating. However the future looks brighter and all I can do is try to help someone else! I did a web search for interceceptions and there really isn't a whole lot of info out there. There does seem to be quie a few cases where interceception occurs shortly after being introduced to whole foods. I have a feeling it may be an early sign of Celiac.

[Fiddle-Faddle]

Are you talking about "intussusception?" I could not find any condition called "interceception."

If "intussusception" is the term you mean, you might want to pm one of the moderators and ask them to change the spelling of the title of the thread. Otherwise, people who might reply might not recognize the word.

It's quite a doozy of a word, isn't it? But probably nothing compared to the pain you must have felt!

One interesting aside: the rotavirus vaccine was pulled from the market several years ago because it carried a higher risk of intussusception in infants. Wonder if those of you who might have suffered an intussusception might have had it triggered by a vaccine?

[ctpac]

I'm 37 and have had 2, possibly 3 intussusceptions in my life (first episode mild and CT showed thickened small bowel that no one could explain). I just had lab work for celiac and it was all off the charts. My insurance won't pay for a capsule endoscopy to try to find out the cause of the intussusception and whether it was related to the celiac. Though they did make me go through a colonoscopy before they denied the claim (and it was so much fun). I don't know how these two things can't be related. Now in addition to worrying if I have some underlying malignancy, I have to take on the insurance company....oh, and my life insurance company turned me down, how great is that? Anybody had to fight to get a capsule endoscopy?