Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Other Conditions Along With Celiac, Sound Familiar?


cozynana

Recommended Posts

cozynana Newbie

I am trying to put all the pieces together. I have had a 2 1/2 year illness. During this period I started the transition of menopause (which seemed to set of the following), had a precancerous uterus and ovaries removed, diagnosed with celiac and trigonitis with interstital cystits symptoms, terrible hormonal flushes and nausea, botched colonoscopy, and terrible fatigue. I also found out I have a very low white blood count, malabsorbtion issues, and do not clear estrogen well and always much sicker around what use to be that time of the month. I am hoping someone else has had something similar and has advice to give about these issues. I am tired of being sick and tired!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

I am trying to put all the pieces together. I have had a 2 1/2 year illness. During this period I started the transition of menopause (which seemed to set of the following), had a precancerous uterus and ovaries removed, diagnosed with celiac and trigonitis with interstital cystits symptoms, terrible hormonal flushes and nausea, botched colonoscopy, and terrible fatigue. I also found out I have a very low white blood count, malabsorbtion issues, and do not clear estrogen well and always much sicker around what use to be that time of the month. I am hoping someone else has had something similar and has advice to give about these issues. I am tired of being sick and tired!!!!!!

yes- usually a lot of problems or diseases come along with Celiac. or vitamin deficiencies from malabsorption.

i myself, also have Hashimoto's & Grave's... and have often suspected that i would have developed full blown Interstitial Cystitis had i not stopped eating gluten. when i have too much fructose, or when i get accidentally glutened- i get that feeling again- like im getting a bladder infection.

with your fatigue- have u had your thyroid checked???? it's so common to have thyroid issues with gluten intolerance.

also- i would love to hear if other have Low WBCs... i do not, but my best friend & mom recently had the Low WBCs, and i'd like to hear others' input on this.

Takala Enthusiast

Hang in there and stick to the gluten free diet as closely as possible.

Celiac/gluten intolerance goes along with cystic ovaries, fibroids, endometriosis, etc. It also, imo, causes cystitis because mine cleared up completely after I went gluten free. The explanation would be that with properly absorbing minerals, the kidneys filters are no longer tasked with trying to regulate blood calcium the way they had to before and aren't catching all this calcium.

In 2008 I had one enlarged and rogue ovary with a cyst/tumor taken out, the surgeon would have taken everything but I said, no, minimalist, because I knew that if everything goes that means more potential bone loss without the estrogen. I also have reacted so poorly to artificial hormones before in bc pills I had no intention of taking anything else. (natural progesterone cream, for awhile, had helped some but the artificial progest. is a known depressant and very bad stuff.) This relieved a lot of pain symptoms, but made the hot flashes worse. FINALLY this past winter after nearly 3 years, the hot flashes started dying down to where they do not bother me most of the time now.

I wish I had figured out the gluten-free diet need sooner, I could have saved myself many problems.

JustDucky Newbie

Hang in there and stick to the gluten free diet as closely as possible.

Celiac/gluten intolerance goes along with cystic ovaries, fibroids, endometriosis, etc. It also, imo, causes cystitis because mine cleared up completely after I went gluten free. The explanation would be that with properly absorbing minerals, the kidneys filters are no longer tasked with trying to regulate blood calcium the way they had to before and aren't catching all this calcium.

In 2008 I had one enlarged and rogue ovary with a cyst/tumor taken out, the surgeon would have taken everything but I said, no, minimalist, because I knew that if everything goes that means more potential bone loss without the estrogen. I also have reacted so poorly to artificial hormones before in bc pills I had no intention of taking anything else. (natural progesterone cream, for awhile, had helped some but the artificial progest. is a known depressant and very bad stuff.) This relieved a lot of pain symptoms, but made the hot flashes worse. FINALLY this past winter after nearly 3 years, the hot flashes started dying down to where they do not bother me most of the time now.

I wish I had figured out the gluten-free diet need sooner, I could have saved myself many problems.

Wow Takala - I'm a newb, and I didn't know about the endometriosis link - I had an endometrioma surgically removed five years ago. Thanks for the info.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Scott Adams replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Unexpected gluten exposure risk from cultivated mushrooms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,326
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Matthias
    • Scott Adams
      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese spreads, beer-washed rinds, smoke-flavored cheeses, and anything with added seasonings or “natural flavors,” where cross-contact can happen. As for yeast, you’re also correct — yeast itself is gluten-free. The issue is the source: brewer’s yeast and yeast extracts can be derived from barley unless labeled gluten-free, while baker’s yeast is generally safe. When in doubt, sticking with whole, unprocessed cheeses and products specifically labeled gluten-free is the safest approach, especially if you’re highly sensitive.
    • Scott Adams
    • Matthias
      Thanks a lot for your response! Can you maybe specify which kind of cheeses I should be cautious about? Camembert/Brie and blue cheeses (the molds of which are nowadays mostly grown on gluten-free media, though, so I've read, right?) or other ones as well? Also, I was under the impression that yeast is generally gluten-free if not declared otherwise. Is that false?
    • Scott Adams
      I agree with @trents, but thank you for bringing this up here!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.