Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain/swelling - Elimination Diet


PBJMD

Recommended Posts

PBJMD Newbie

Hi everyone,

I am 31 and have been experiencing worsening joint pain, swelling, and stiffness in both hands, knees, feet, and TMJs for about 2 years. I was diagnosed with celiac in November and have been gluten-free ever since. Since my symptoms have persisted, I gave up dairy in April with no improvement. I then gave up nightshades, corn, egg, caffeine, and chocolate in May and still have noticed no improvement. Desperate to feel better, I started an elimination diet on July 1. I'm now on Day 8 and my symptoms - if anything - have gotten a little worse. Does anyone else have experience with arthritis and/or elimination diets? I know it's common to feel worse before you feel better on the elimination diet, but when should I start to feel better? Also, the diet wants me to start adding back potentially reactive foods (starting with lemons and limes) around Day 10. Should I do that even if I feel no better? I would be so grateful if anyone can offer any help as this has truly been crippling my life and I am very desperate to feel better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Are you on any medications or supplements? If so have you checked with the maker to be sure they are gluten free? If not you should do so. Note that some supplements can have wheat and barley grass and still be labeled gluten free so do read all ingredients on them.

It may not be the case for you but for me eliminating soy helped a great deal with joint pain and swelling.

You mention you are on an elimination diet, what form are you on? With my allergist guided elimination he started me off with only five different foods, nothing other than water as a beverage and designed my starting point to ensure that I had adaquate calories and nutrition. My starting point included only foods I very rarely ate as he said I would be less likely to react to them.

Also if you joint pain is related to celiac it can take some time to ease. In my case it was at least 2 or 3 months before I had any noticeable relief but others might notice relief sooner or even later than that.

Do be sure to take the precautions you need to at home, new toaster, strainer, replacing scratched non-stick pans and wooden cutting boards and utensils. Don't bake with wheat flour for others as it will be airborn and can CC you that way. It would also be a good idea to make sure that all toiletries are gluten free.

Hawthorn Rookie

Have you looked into the anti inflammatory benefits of certain foods? I find oily fish very good for helping with joint aches and pains. If you google anti inflammatory diet there is a ton of information out there.

Good luck with the elimination diet :)

Beth C from MA Newbie

I had Rheumatoid Arthritis for two decades before my very recent Celiac diagnosis. From what I've researched and from other folks I know it seems that some people with arthritis and celiac do see some relief of their joint pain/swelling after going gluten-free. Others truly do have both conditions, which would not be unusual, since Celiac is an autoimmune disorder and so is arthritis. One person I know was diagnosed with Rheumatoid Arthritis and was fully symptomatic and taking several common R.A. medications. It took several months but after a while her R.A. symptoms subsided and she's now off all her medications. In other cases, though, the two conditions co-exist and the person truly does have both. Personally, I've only been gluten-free since 6/20/11 - much too early to tell but we shall see if there ends up being any connection for me or not.

Good luck in your efforts! Wishing you (and all of us) all the best on our journey to be as healthy as we can be.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      how much gluten do I need to eat before blood tests?

    3. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    5. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,260
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
    • suek54
      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.