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Sibo & Gluten Free Diet


redheadsmom

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redheadsmom Rookie

Hi everyone, I'm fairly new here and recently diagnosed SIBO (small intestine bacteria overgrowth). I'm currently on a high does antibiotic for 14 days after testing positive via the Hydrogen Breath test.I was tested for Celiac via blood work in May and was negative. My GI wanted me to get and Endoscopy but due to insurance reasons I turned it down. I have numerous symptoms of Celiac and have suffered from GI problems, severe bloating, GERD, and Psoarisis so I firmly believe I have a Gluten Intolerance if not Celiacs. I'm currently on day 3 of being gluten free. Is there anyone else that has dealt with SIBO while on a gluten-free diet? Will being gluten-free help the SIBO from returning? I'm so lost I'm not even sure why I have SIBO and if it's another symptom/problem that comes with Celiac. If anyone has any advice I would greatly appreciate it!

Jessica


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beachbirdie Contributor

Hi everyone, I'm fairly new here and recently diagnosed SIBO (small intestine bacteria overgrowth). I'm currently on a high does antibiotic for 14 days after testing positive via the Hydrogen Breath test.I was tested for Celiac via blood work in May and was negative. My GI wanted me to get and Endoscopy but due to insurance reasons I turned it down. I have numerous symptoms of Celiac and have suffered from GI problems, severe bloating, GERD, and Psoarisis so I firmly believe I have a Gluten Intolerance if not Celiacs. I'm currently on day 3 of being gluten free. Is there anyone else that has dealt with SIBO while on a gluten-free diet? Will being gluten-free help the SIBO from returning? I'm so lost I'm not even sure why I have SIBO and if it's another symptom/problem that comes with Celiac. If anyone has any advice I would greatly appreciate it!

Jessica

I don't know anything about "SIBO", but I can tell you that my daughter-in-law has been struggling with intestinal health for a while and it turns out she has a clostridium difficile infection. She has had a hard time getting rid of it, and is now on the Open Original Shared Link. She is improving greatly. The principle of the diet is to starve the bad bacteria by not providing the sugars that they eat. The antibiotics will disrupt your intestinal flora even more, you might look into some good probiotics.

Have they ruled out Crohn's? Crohn's and celiac can both cause a positive hydrogen breath test.

Probably a good bet to go gluten free if not completely free of things that feed the bacteria. Much cheaper than doctors, tests, and pills!

redheadsmom Rookie

I don't know anything about "SIBO", but I can tell you that my daughter-in-law has been struggling with intestinal health for a while and it turns out she has a clostridium difficile infection. She has had a hard time getting rid of it, and is now on the Open Original Shared Link. She is improving greatly. The principle of the diet is to starve the bad bacteria by not providing the sugars that they eat. The antibiotics will disrupt your intestinal flora even more, you might look into some good probiotics.

Have they ruled out Crohn's? Crohn's and celiac can both cause a positive hydrogen breath test.

Probably a good bet to go gluten free if not completely free of things that feed the bacteria. Much cheaper than doctors, tests, and pills!

Thank you for your reply! No, Crohns has not been ruled out but my GI doesn't think that's what I have.

mushroom Proficient

Antibiotics can wreak havoc with your GI tract by destroying all the natural good bacteria (as well as the bad ones you are trying to get rid of), and allowing other evils like c. diff to take over. Then you have to take (sometimes) an antibiotic to get rid of the c. diff and it becomes a vicious circle. As the pp said, your first line of defense against antibiotics is to take a good probiotic at the same time to attempt to head off the bad guys. Also, if you are not lactose intolerant, eat lots of yogurt (or the SCD 24-hour yogurt which digests the lactose for you).

I am currently having to take an antibiotic which has on the warning label that I could end up with c. diff up to six months later :unsure: This is the third such antibiotic that I have started (for cellulitis) since I did not tolerate either of the first two. I had to call my doctor again and ask if there weren't something else that would kill the bacteria without killing the patient in the process :lol: I end up like this because I suppress my immune system with Humira to treat my psoriatic arthritis. :blink:And even though I am taking the best probiotics I can find, I will almost certainly end up with a UTI (happens 9 out of 10 times for me) and then end up having to take another antibiotic for that. :rolleyes:

It is ironic that I end up taking so many antibiotics since I believe they should be avoided if possible and taken only when necessary.

I treated a previous c. diff infection with an alternative medicine MD using supplements and a gentian formula which stool testing had shown it was sensitive to - I elected this as opposed to antibiotics since I had just come off a prolonged course of antibiotics which gave me the c. diff in the first place.

As to whether celiacs are more prone to c. diff, I have not read anything on the subject but believe it is quite possible since our ability to absorb nutrients (and concomitantly our ability to fight off infections) is impaired to start with. I have heard of people having success with the SCD in treating it. Even though your testing was negative, with your symptoms you are at the least gluten intolerant if not diagnosable celiac at this time, which means you should avoid gluten just as strictly as a celiac.

Hope you are successful in getting rid of the c. diff because it is miserable.

Looking for answers Contributor

Hi,

One of the best pieces of advice I was given on this forum was learn about the GAPS diet (it's nearly the same as the Specific Carb. Diet, but is a little more methodical, in my opinion). I'm leaving on vacation soon, so I haven't been able to do the full blown diet because it will be hard enough for me to navigate my no gluten, dairy, nut, soy diet overseas, let alone GAPS. However, when I return I'm diving in. I, too, have SIBO. I'm pretty certain it was caused by some antibiotics I took last June 2010 for a dental issue. I haven't been the same since, despite accompanying my treatment with probiotics. Anways, I'm doing the first phase of the diet now (but I throw in some normal foods here and there so I won't get sick on vacation) and I can't tell you how great it's been. The days I stick with the soup I feel amazing and have no symptoms. When I throw in illegal foods, my symptoms come back. Anways, check it out and see what you think. Also, check out Grapefruit See Extract as a complementary treatment with GAPS.

redheadsmom Rookie

Hi,

One of the best pieces of advice I was given on this forum was learn about the GAPS diet (it's nearly the same as the Specific Carb. Diet, but is a little more methodical, in my opinion). I'm leaving on vacation soon, so I haven't been able to do the full blown diet because it will be hard enough for me to navigate my no gluten, dairy, nut, soy diet overseas, let alone GAPS. However, when I return I'm diving in. I, too, have SIBO. I'm pretty certain it was caused by some antibiotics I took last June 2010 for a dental issue. I haven't been the same since, despite accompanying my treatment with probiotics. Anways, I'm doing the first phase of the diet now (but I throw in some normal foods here and there so I won't get sick on vacation) and I can't tell you how great it's been. The days I stick with the soup I feel amazing and have no symptoms. When I throw in illegal foods, my symptoms come back. Anways, check it out and see what you think. Also, check out Grapefruit See Extract as a complementary treatment with GAPS.

Thanks to both of you for your replies, I appreciate it! I know antibiotics aren't good to take but I'm kinda freaked out by this diagnosis so I'm listening to the doc! They have no answers for me (surprise, surprise) by I was told by the GI to NOT take my probiotics until after I'm done with the antibiotic treatment. I have been on a probiotic since January. I'm on day 4 of the gluten-free diet so I'm hoping between that and the antibiotics I will start feeling better soon, that is if I don't end up with another common infection from the antibiotics. It's a never ending cycle!

Jessica

Simona19 Collaborator

Hi everyone, I'm fairly new here and recently diagnosed SIBO (small intestine bacteria overgrowth). I'm currently on a high does antibiotic for 14 days after testing positive via the Hydrogen Breath test.I was tested for Celiac via blood work in May and was negative. My GI wanted me to get and Endoscopy but due to insurance reasons I turned it down. I have numerous symptoms of Celiac and have suffered from GI problems, severe bloating, GERD, and Psoarisis so I firmly believe I have a Gluten Intolerance if not Celiacs. I'm currently on day 3 of being gluten free. Is there anyone else that has dealt with SIBO while on a gluten-free diet? Will being gluten-free help the SIBO from returning? I'm so lost I'm not even sure why I have SIBO and if it's another symptom/problem that comes with Celiac. If anyone has any advice I would greatly appreciate it!

Jessica

Hi!

I was on gluten free diet, but I had problem with digestion of sugar and fats. I saw a doctor at Columbia University Hospital in New York and she tested me for SIBO. I was positive. My body made high amounts of methanol. The Hydrogen breathing test was done in September. After I was taking two antibiotics for 14 days twice a day. At the end of them I had one funny side affect : I had BM after every meal. I didn


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beachbirdie Contributor

Just another idea, you don't specify if they named what bacteria are causing the overgrowth. If it IS a C.diff bacteria, then after the course of antibiotics you might get your hands on Open Original Shared Link (I offer only one brand, there are others)...it has been shown very effective in helping heal the intestinal lining. Avoid, at least for a time, probiotics with FOS (fructo-oligosaccharides), they feed the bad as well as the good bacteria. There is some indication that the bifidum might contribute to overgrowth as well.

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    • catnapt
      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
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    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
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    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
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