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Celiac And Thyroid


bbdailey

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bbdailey Explorer

Hey everyone im new here...Im 23 and was recently diagnosed with hashimotos disease. I immediately went on a gluten free diet and felt better after a couple of weeks but seemed to kind of platuea in my recovery. My thyroid problem is in the very early stages so Im thinking that the problem may lie somewhere else. Im starting to think that I do have celiac disease and that it will just take time to heal. My question is....does anybody else have hashimotos disease along with celiac disease? Also do you just cut out gluten or dairy/soy/etc?


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cassP Contributor

oh boy... yes i have celiac, hashimoto's, and graves'. its very common to have thyroid disorders & celiac simultaneously.. very common... or even other autoimmune disorders.. sometimes the same genes are involved with a predisposition.

so why do u think your Hashimoto's is only in the early stages?? i too thought that maybe mine had only been about 6 yrs old... but now i think ive had it for over 20 years.... share your thoughts, i am interested... and learning more and more everyday about the scope of thyroid disease. for example, i just learned that Hashimoto's often leaves patients with Low stomach acid, and of course slow motility ... this totally leads to all kinds of digestive problems and malabsorption. so now when i feel like i cant digest things- im like- "um, did i eat to may food intolerances??? did i get glutened? or am i going slightly hypo again??"

the symptoms can overlap for sure.

so, yes i completely avoid gluten. 2nd i do my best to avoid Soy & Corn. and 3rd i am a dairy addict- but i know i have GOT to get off it- as sometimes it makes me feel like ive been glutened. like a Casein induced enteropathy. :(((

okay brainfog.... dont hesitate to ask more questions.. i feel like ive learned a lot lately... tho i still have questions too...

AVR1962 Collaborator

Hey everyone im new here...Im 23 and was recently diagnosed with hashimotos disease. I immediately went on a gluten free diet and felt better after a couple of weeks but seemed to kind of platuea in my recovery. My thyroid problem is in the very early stages so Im thinking that the problem may lie somewhere else. Im starting to think that I do have celiac disease and that it will just take time to heal. My question is....does anybody else have hashimotos disease along with celiac disease? Also do you just cut out gluten or dairy/soy/etc?

I have a growth on my thyroid which I am currently on meds to try and shrink. I am on a gluten-free, high fructose-free diet and I take a digestive defense aide for a slight dairy intolerance.

bbdailey Explorer

The reason I think my hashimotos is in the early stages is because of all the blood tests. Last november until this april I had 3 tsh tests two of which were at 1.9 and the other at 5.5. The most recent tsh test was a 3.2 so that doesnt seem too crazy. My TPO antibodies were 203 in April and 252 in July. This is the one thing that confused me(made me think it may not be celiac and maybe just a gluten intolerance) because the antibodies went up and I had been gluten free since I discovered that I had Hashimotos in late april. Is that common? It has been around 3 months off gluten and although I do feel a lot better than before I still have lots going on with my digestive tract( stomach is in knots all the time,constipation,etc) among other lingering symptoms. Does this sound like the typical healing process for celiac or does anybody have suggestions for what else may be causing my stomach problems?

CassP: you mentioned low stomach acid with hashimotos...what are the symptoms with that and how do you go about fixing that?

cahill Collaborator

I have Hashimoto's in addition to Celiac's. I saw my endocrinologist yesterday and she thinks my Hashimotos has just about destroyed my thyroid. :( So it looks like I am almost totally reliant on the synthyroid ( or some other such drug) from here on out.

In addition to being gluten free,I would encourage you to also eliminate soy from your diet.

cassP Contributor

The reason I think my hashimotos is in the early stages is because of all the blood tests. Last november until this april I had 3 tsh tests two of which were at 1.9 and the other at 5.5. The most recent tsh test was a 3.2 so that doesnt seem too crazy. My TPO antibodies were 203 in April and 252 in July. This is the one thing that confused me(made me think it may not be celiac and maybe just a gluten intolerance) because the antibodies went up and I had been gluten free since I discovered that I had Hashimotos in late april. Is that common? It has been around 3 months off gluten and although I do feel a lot better than before I still have lots going on with my digestive tract( stomach is in knots all the time,constipation,etc) among other lingering symptoms. Does this sound like the typical healing process for celiac or does anybody have suggestions for what else may be causing my stomach problems?

CassP: you mentioned low stomach acid with hashimotos...what are the symptoms with that and how do you go about fixing that?

interesting... ya, i think the tsh test is not a good indicator honestly... it CAN be one of the indicators for the doctors as they are working out the dose... but tsh is not always indicative of the stage of the disease or how u feel. my TSH was 4.6 in 2004 or 2006.. but i honestly think it may have started when i was 8 or 9. i had a nail condition since i was 8, and it completely disappeared after i got on thyroid medication. ive also been DEPRESSED most of my life.. and on a diet, etc... the disease can also go in and out of remission i think untill it decides to go full force- and then it's progressive from there on out.

your antibodies are certainly high enough to indicate that you've had this for some time... but dont freak out, mine are 512. going gluten free will definitely alleviate your thyroid condition- but it's not a miracle fix like it is for celiac- it will take some time to see a difference in those antibodies... the disease is progressive- so it is completely normal for you to have Celiac or Gluten Intolerance, but still have your Hashimoto's antibodies go up after 3 months on a gluten free diet. there are other environmental triggers that affect those abs besides gluten... soy, fluoride.. some say dairy, STRESS, a vitamin D deficiency, pregnancy.. etc...

u should definitely test your vitamin levels: B12, D, and a full Iron panel including Ferritin & saturation... and also check your adrenals..... in order to improve this disease and FEEL BETTER- you really have to come at all angles.

i also suggest you eat 2-3 brazil nuts every day- for the Selenium. studies show that after a year of taking Selenium- the TPO antibodies were significantly diminished. (u can overdose on selenium, and brazil nuts have a lot- hence- take only 2-3).

uh- signs of low stomach acid?? any indigestion really... when u feel like so many different foods give u a stomach ache.. or u feel you have to eat very small amounts in order to avoid a stomach ache... believe it or not- acid reflux can be a sign of low stomach acid, and also an H. Pylori infection- as they thrive in low acidity. vitamin deficiencies can be a sign of Low stomach acid. there are many ways to correct it- but it takes time- and u have to be careful too... i gotta go to bed- i'll try to remember to add more.... a real gentle way to help it is to take apple cider vinegar before meals... there's also Betaine HCI-> but it is pretty identical to stomach acid- so u really have to start out slow.

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    • catnapt
      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
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