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What To Eat?

jcmi10236

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jcmi10236 Newbie
jcmi10236
Posted

I have found some things that I can eat that do not bother me. Gluten is in almost everything! All the special flours and recipe ideas sound like a lot of work to me. I like simple when it comes to the kitchen. I am a 37 yr old who is down to about 97 lbs 5'3 and cant seam to put the weight back on. I feel like I am slowly dying. I am not sure if its gluten, soy, dairy. I just know that when I get rid of those things I feel much better.

My symptoms are tummy and back pain. The physical therapist says my muscles just tighten up. Couldnt figure it out BUT since I have gotten rid of the gluten to the best of my knowledge the muscles have stopped tightening. I dont sleep with aheating pad every night and the bladder is even better.

Help me enlarge my food choices. I obviously am not that creative. With the bladder disease and then this I am limited in every way. I have 2 children and want to live again, just seams so far out of reach.

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Fairy Dancer Contributor
Fairy Dancer
Posted

I am trying a whole foods diet consisting of fish, lean meat (white mostly but occasionally red), vegetables, fruit, nuts and in my case low fat dairy (as as far as I know I am ok with dairy produce for the time being). Most whole foods as long as they are not whole grains should be gluten free. I also get most of my starches from sweetcorn (unless you have a corn sensitivity which I don't as far as I'm aware), potatoes and rice. Foods like rice with a source of protein should help with weight gain if that is what you are aiming for. Oily fish can also provide the body with essential fatty acids and healthful fats as well.

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    • trents
      Medication

      By trents · Posted

      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      Medication

      By knitty kitty · Posted

      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      Medication

      By Julie 911 · Posted

      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Medication

      By trents · Posted

      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
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