Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fda - New gluten-free Labeling Proposal


GottaSki

Recommended Posts

GottaSki Mentor

I received the email below from the Celiac Disease Foundation asking for anyone interested to add their name to a letter to the FDA with regard to proposed gluten-free labeling. Not sure if this has already been posted, but I thought I'd share. Below please find the link for the letter to the FDA along with the email I received:

Open Original Shared Link

"Dear CDF Friend,

As you may already know, the Food and Drug Administration recently published its gluten-free labeling proposal, opening a consumer comments period through October 3, 2011.

Many individuals want to comment on the proposal but may not be sure of what to write or how to frame their comments or perhaps find it complicated to navigate through the process. In an effort to help those who have requested some guidance, the American Celiac Disease Alliance(ACDA) in collaboration with many within the Celiac community, including Celiac Disease Foundation, has developed very useful resources for your information as follows: 1) a list of Frequently Asked Questions(FAQs); B) a letter focusing on several key points for which FDA is seeking comments; c) expert analysis of the safety assessment accompanying the FDA proposal by Dr. Stefano Guandalini, Medical Director of the Celiac Disease Center at the University of Chicago as well as a member of both CDF's Medical Advisory Board and ACDA.

You are invited to sign on to the letter. All responses and "signatory" names will be sent by ACDA to the FDA by the deadline of October 3rd. Below are the links for the ACDA materials (posted on its "sister" site 1in133.org). Please go to the links and take action about the vital issue of the gluten-free labeling ruling.

Letter

FAQ / Resources

Expert's Analysis

Thank you for being Champions of our collective mission by making your voice heard."


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



thleensd Enthusiast

I received the same email today, and am concerned about 20 ppm being considered gluten-free. Many of us react to these low-gluten amounts.

I hope that many of us (even if you do not personally experience an outward reaction to 15ppm) will voice that issue.

GottaSki Mentor

I too am extremely sensitive, having had severe reactions to minute amounts of gluten cc. How does one know what a safe minimum is? What would be an example of 20ppm or less?

Thanks!

thleensd Enthusiast

Parts per million is kind of difficult to imagine, because it's milligram per kilogram of food. So, it really depends on how much potentially tainted food you're eating. Less than 20ppm could mean 0 or it could mean 19.

According to this website: Open Original Shared Link

GottaSki Mentor

I remain unclear on the less than 20ppm section of the proposed labeling guidelines, but am glad that there will be required labeling for gluten by the end of 2012. For no other reason than to make manufacturers aware of how harmful gluten can be to many of us.

Thanks for the info thleensd!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    2. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,748
    • Most Online (within 30 mins)
      7,748

    NYC Sidewalk Repair
    Newest Member
    NYC Sidewalk Repair
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.