Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eating Gluten Pre-Test? & Ears Hurting?

jjchenoa

Recommended Posts

jjchenoa Rookie
jjchenoa
Posted

Hi I'm new here. I just came from the doctors (my endocrinologist, for low thyroid) and she is going to (blood) test me for celiac. I have experimented with the gluten-free diet on and off and am pretty positive I am at least gluten sensitive or intolerant. I'm excited that she's testing me but I have been gluten-free for 5 weeks. She says this doesn't matter, that the antibodies are in my blood anyway. I have only read the opposite, that I must eat gluten for a period before the test. I'm wondering what the opinion here is...and for how long must I eat gluten before I'm tested, if that's true.

Secondly, I've noticed while gluten free that my ear canals ache whenever I was exposed to gluten in the air! Like once I was boiling noodles for my family and another time my husband opened a beer under my nose and both times my ears ached. I thought I was imagining it until I began eating gluten again yesterday to prepare for my test and my ears hurt every time I eat it! So strange. Just wondering if it's common.

Thank you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pain*in*my*gut Apprentice
pain*in*my*gut
Posted

Hi I'm new here. I just came from the doctors (my endocrinologist, for low thyroid) and she is going to (blood) test me for celiac. I have experimented with the gluten-free diet on and off and am pretty positive I am at least gluten sensitive or intolerant. I'm excited that she's testing me but I have been gluten-free for 5 weeks. She says this doesn't matter, that the antibodies are in my blood anyway. I have only read the opposite, that I must eat gluten for a period before the test. I'm wondering what the opinion here is...and for how long must I eat gluten before I'm tested, if that's true.

Secondly, I've noticed while gluten free that my ear canals ache whenever I was exposed to gluten in the air! Like once I was boiling noodles for my family and another time my husband opened a beer under my nose and both times my ears ached. I thought I was imagining it until I began eating gluten again yesterday to prepare for my test and my ears hurt every time I eat it! So strange. Just wondering if it's common.

Thank you.

Well, I can tell you that I was gluten free for only 2 WEEKS when I saw my GI doc, and he said I needed to go back on gluten for 4-6 weeks to get an accurate biopsy result. I don't know how long you have to be gluten free before it would effect the blood results, but 5 weeks seems like long time and you risk getting falsly negative results. If you want to increase your chances of getting accurate results, and you can tolerate it, go back on gluten for 4-6 weeks, and then do the blood work.

It's funny you mentioned that you have ear pain...I have been having issues with my left ear since resuming gluten! It feels like an ear infection, but I have no other signs that it's an infection other than off and on pain. Makes me wonder if it's the gluten.... :unsure:

jjchenoa Rookie
jjchenoa
Posted
  • Author

Well, I can tell you that I was gluten free for only 2 WEEKS when I saw my GI doc, and he said I needed to go back on gluten for 4-6 weeks to get an accurate biopsy result. I don't know how long you have to be gluten free before it would effect the blood results, but 5 weeks seems like long time and you risk getting falsly negative results. If you want to increase your chances of getting accurate results, and you can tolerate it, go back on gluten for 4-6 weeks, and then do the blood work.

It's funny you mentioned that you have ear pain...I have been having issues with my left ear since resuming gluten! It feels like an ear infection, but I have no other signs that it's an infection other than off and on pain. Makes me wonder if it's the gluten.... :unsure:

Thanks for your response. For now I am planning to eat gluten until the end of September then take the test. Then I will go gluten-free again, whatever the results. I felt so good being off it.

Interesting about the ears! I would swear it's gluten-related for me. It's a totally new feeling for me that only began after I was gluten free for a couple weeks and does not occur without exposure so far. It just makes me wonder how many things are affected that we never suspect.

Thanks again, I did see one of your responses to a similar question after I posted.

89Mirageman Newbie
89Mirageman
Posted

Same thing here, off and on pain in my left ear. Seems my pain is also in my cheek as well. I was actually treated for an ear infection a few months ago so maybe its completely unrelated, I'm not sure. Had a checkup with an ENT about a month ago and he said that the infection is completely gone and I should not be having anymore symptoms. I told him about the ear pain, pain in my cheek and the light nagging headaches and he was clueless.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I get pain in my left ear, followed by a dizzy feeling if glutened. I never had that symptom before going gluten-free.

carecare Enthusiast
carecare
Posted

Strange that you mention this. I have been gluten light for months but completely gluten free the last couple weeks. I was out of town with family and had heavy gluten intake our first day away. The next morning I woke up with left ear pain...like an ear infection pain deep inside. It was off and on that day...especially when I'd eat something. I also have sensitivity on that side of my head...and down below my ear. The next day it was gone. I actually wondered if it was because I was eating such a large amount of gluten. My husband is gluten intolerant/celiac...and son just tested positive for celiac via blood test, daughter is also gluten intolerant/celiac....so that is why I'm mostly gluten free...and soon to be totally gluten free.

jjchenoa Rookie
jjchenoa
Posted
  • Author

Strange that you mention this. I have been gluten light for months but completely gluten free the last couple weeks. I was out of town with family and had heavy gluten intake our first day away. The next morning I woke up with left ear pain...like an ear infection pain deep inside. It was off and on that day...especially when I'd eat something. I also have sensitivity on that side of my head...and down below my ear. The next day it was gone. I actually wondered if it was because I was eating such a large amount of gluten. My husband is gluten intolerant/celiac...and son just tested positive for celiac via blood test, daughter is also gluten intolerant/celiac....so that is why I'm mostly gluten free...and soon to be totally gluten free.

Interesting too that you all have left ear pain! I have the pain in both ear/upper eustachian tubes but since your responses, I've noticed it more in the left. lol I suppose allergies also have ear symptoms, I just would never have thought that this would be my most prominent reaction, besides bloating....oh, it's killing me. I'm thinking about taking the blood test sooner and just forgetting about waiting a month. A month may not even be enough and I just can't go longer.

Well thanks for the replies, it's so interesting to me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
    3. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep. One of my relatives is an insomniac and I am sure that is part of the problem. Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read,...
    4. SilkieFairy
      - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

      It could be a fructan intolerance? How do you do with dates? https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    5. Lkg5
      - Lkg5 replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Unexpected gluten exposure risk from cultivated mushrooms

      Thank’s for addressing the issue of mushrooms. I was under the impression that only wild mushrooms were gluten-free. Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative. In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken. Major mistake!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748
    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Insomnia help

      By cristiana · Posted

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By SilkieFairy · Posted

      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Unexpected gluten exposure risk from cultivated mushrooms

      By Lkg5 · Posted

      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.