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Morgan925

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Morgan925 Newbie
Morgan925
Posted

Hey Everyone~

Believe it or not, this is my first forum post ever. I wanted to see if any or all had any insights into what I might be going through. I moved to the San Francisco area 4yrs ago from Hawaii. I started a new job and as the new job got underway, I began noticing I was having a lot of fatigue. I waved it off at first, just thinking this is probably related to the stress and anxiety of the job. 4yrs later I still have the fatigue, just significantly worse. I've taken all the necessary steps and tests due to having a healthcare background. First started with the good old sleep study, which of course showed sleep apnea...I'm a big guy~250lb...not obese, athletic. I started the CPAP at night which at first seemed to help, but after a short week or two, same fatigue setting back in. Next, was regular lab tests at PCP..Vitamin D was low...started taking 2000U VitD daily. Fatigue still present...now to the endocrinologist...thyroid all normal...but, testosterone on low normal side and I'm young (30yrs old). Start on testosterone replacement therapy. Began the injectables because I have a young child I don't want to get into the gel as many would understand. Fatigue is still there, not as bad, but there. I started a gluten-free regimen about 1week ago b/c the more I read, the more I feel there is one common denominator to all this fatigue. I've really never had to many GI problems, friends and family would say I go a lot through the day, but never diarrhea or constipation; however, I have had problems with acid reflux now for some time. As you can see, this is becoming a laundry list for me, and up until the last 3-4yrs I have been in great shape, health, and mind.

Does anyone have any insights into this? I like the gluten free regimen so far, and have stuck to it tightly. I actually like the way I'm eating much more now. I stick to raw foods and cook them with light seasoning. Oh and for the caffeine and alcohol question...gave those up when I started gluten free. Hopefully things improve, but in the meantime...any suggestions or advice are very welcome.

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      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      My only proof

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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
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