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Too Old For A Diagnosis?

Finally-45

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ironcross Newbie
ironcross
Posted

AMEN AS A FATHER OF TWO AND A FITNESS THERAPIST, AND PERSONAL TRAINER, I WAS FRUSTERATED ON THE LENGTH OF TIME IT TOOK THEM TO FIGURE OUT I HAD CELIAC DISEASE. IF INTERESTED WOULD LOVE TO TYPE CHAT MORE. GOD BLESS!

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cougie23 Explorer
cougie23
Posted

You know the funny/sad thing is how long we go without knowing! Looking back with the knowlage I have now...I've had symtoms since the age of 6 at least....(elementry school age children should not be passing out for no reason, or having debilitating migraines for no reason...blood tests and cat scans allways came up negitive...maybe a simple allergy test would have been nice!!!)

My point is that this goes unchecked for so long and its not till we're older (in my case 47) that we fially find out whats REALY wrong!!!After the nerve dammage and malnoutrishion...I thought it was MS for the longest time....I only had like 95 out of 100 symptoms... :blink::angry: !!! It's just ashame that none of these "profesionals" had the sense to even be suspicious or make the sugestion!

well now the world is getting wiser about this epidemic...and its begining to bwe a house hold name...maybe someday kids will be tested routinely just as they get their imunity shots...It could happen! :rolleyes::D

Just thought I'd throw in my 2cents !! B)

cougie23 Explorer
cougie23
Posted

AMEN AS A FATHER OF TWO AND A FITNESS THERAPIST, AND PERSONAL TRAINER, I WAS FRUSTERATED ON THE LENGTH OF TIME IT TOOK THEM TO FIGURE OUT I HAD CELIAC DISEASE. IF INTERESTED WOULD LOVE TO TYPE CHAT MORE. GOD BLESS!

Hi Ironcross...welcome to the community!!! :D

How long ago did you find out?Have you started gluten free yet? It will take awhile for everything to get out of your system..some days even the good stuff will upset you..you have an advantage being a fittness theripist though...you must allready be eating pretty healthy! just watch for those hidden glutens! theres some good info on the Celiac.com site(as well as this forum) but scott has a list of words to look for that are hidden gluten in ingrediants and what to look for!It's very helpful...google all products you use in your house for gluten...(toothpaste, shampoo, deoderent, your brand of instant coffee...)!! Ya I know...I was shocked too ..but gluten is used as a filler and emulsifier...it's in EVERYTHING!!! :blink::ph34r:

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    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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