Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free, But Processed With Wheat?


Linus

Recommended Posts

Linus Newbie

Both my daughter and I are celiacs. I was diagnosed two months ago and my daughter was diagnosed a few days ago. I am trying to teach my daughter about lable reading. She is 11, and much of this has to be overwhelming to her.

Last night she wanted some gluten free pasta. Here is the interesting part, the label reads Gluten Free, but on the back it states that it was processed in a facility that uses wheat and egg. I imagine that it is under 20 ppm, but it is a confusing thing for us all. I have been teaching my daughter to avoid foods that are processed in a facility with wheat. We look for the wheat allergy lable and then look at the ingredients for the barley (malt) and rare rye items.

Here are the product details:

Company - Heartland

Fusilli

Advice is welcome.

Thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SarahJimMarcy Apprentice

Welcome, and know that the first few months are the most overwhelming. We are nearly 5 months in, and now, it seems like second nature. My daughter is 14.

We avoid all foods that are manufactured in a facility that processes wheat. It's just safer. SuperTarget has a good gluten-free pasta that turns out well as long as you follow the cooking instructions and rinse it with cold water. I can't remember the brand, but the label is purple and clear.

Good luck!

rosetapper23 Explorer

I only eat pastas and other foods that are certified gluten free and completely avoid those products that are made in facilities or on equipment that processes wheat. I eat only Tinkiyada and Glutino brands of pastas.

I know that learning to read labels is important, and soon both you and your daughter will easily recocgnize exactly which products you can eat. However, when first going gluten free, many of us have found that eating only natural foods helps with both the healing of our small intestines and absorption of vitamins and minerals. Eating natural foods also pretty much eliminates the cross-contamination problem. Therefore, while label reading is important, it may be more important to teach your daughter to eat only natural foods for a while (6-12 months, for example). Of course, I also ate gluten-free pasta soon after my diagnosis, because I wanted to eat spaghetti and pasta primavera, but that was the only processed foods I ate. Be sure to include natural fats in your diet, as well, since you'll need them to help you absorb fat-soluble vitamins (A, D, E, and K). Examples of good fats are organic butter, ghee, olive oil, olives, and avocados.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,258
    • Most Online (within 30 mins)
      7,748

    mbarnesrrt
    Newest Member
    mbarnesrrt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      So just to be cautious, there is a big difference between cured, and responding to their medication. I assume you mean that your daughter responded well while taking KAN-101 during the trial, but the drug would not cure celiac disease, but may manage it while you are taking it. Let me know if I got this right.
    • trents
      Welcome to the forum, @Godfather! "Gluten-free" is not the same as zero gluten. The FDA standard for allowing the food industry to us the gluten-free label on a product is that it cannot exceed 20 ppm of gluten. That is safe for most celiacs but not for the subset of celiacs/gltuen sensitive people who are super sensitive. "Gluten-free" wheat starch products have been processed in such a way to remove enough of the protein gluten to comply with the FDA regulation but usually do retain some gluten and we usually get reports from some people on this forum who fall in the more sensitive range that such products cause them to react. Hope this helps. So, you may just have to experiment for yourself.
×
×
  • Create New...