Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Those In Uk......

Ilovehorses

By Ilovehorses
in Coping with Celiac Disease

Recommended Posts

Ilovehorses Rookie
Ilovehorses
Posted

How long did it take for you to get your blood results back?I had bloods done a week and a half ago and I'm getting very twitchy about the results xx

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CR5442 Contributor
CR5442
Posted

Hi there, would be really interested in finding out what your results are and which tests you were given. I've had one IGA test so far which was negative but my doc said that that is by no means accurate. He is ordering RAST next. I wish they would do them all in one go rather than keep having to give vials of blood!

Ilovehorses Rookie
Ilovehorses
Posted
  • Author

Are you in the UK?

Fairy Dancer Contributor
Fairy Dancer
Posted

I am in the uk. I had one test done as part of a routine blood panel (he added the one test for celiac because I have a brother with it and I asked for it). It only took a few days to come back but although it came back negative I am not totally convinced it was accurate due to the success I have had on a gluten free diet. Nearly 3 months and many of my health problems are reversing themselves. I think my body knows better...

CR5442 Contributor
CR5442
Posted

Yes, I'm in the UK too. I also eliminated nightshades two days ago and am already starting to feel better from that! Would be interesting to see what the next raft of tests shows. The first one NHS does is often negative in celiacs apparently because of IgA deficiency. Let me know how you are both doing.

CR5442 Contributor
CR5442
Posted

I am in the uk. I had one test done as part of a routine blood panel (he added the one test for celiac because I have a brother with it and I asked for it). It only took a few days to come back but although it came back negative I am not totally convinced it was accurate due to the success I have had on a gluten free diet. Nearly 3 months and many of my health problems are reversing themselves. I think my body knows better...

I would certainly agree with that. Are you going to get more tests?

Fairy Dancer Contributor
Fairy Dancer
Posted

I would certainly agree with that. Are you going to get more tests?

No as usual my drs are not going to investigate further. I just get left with the anxiety, depression and IBS diagnosis, which is what they blamed the fatigue, dizziness/vertigo and stomach issues etc on. Other than routine blood tests I have never had any further tests for anything lol.

Oddly antidepressants and therapy have never helped. But changing my diet has...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CR5442 Contributor
CR5442
Posted

No as usual my drs are not going to investigate further. I just get left with the anxiety, depression and IBS diagnosis, which is what they blamed the fatigue, dizziness/vertigo and stomach issues etc on. Other than routine blood tests I have never had any further tests for anything lol.

Oddly antidepressants and therapy have never helped. But changing my diet has...

It is so hard dealing with the UK NHS system when you don't have an openminded Doctor. I think they have a limit to the tests they can run on things that are not 'obvious'. My doctor asked if I really wanted the tests as it was pretty conclusive with my diet changes that I was on the mend. I said of course I did because I have two small children who might also be celiac/gluten intolerant! They just don't think that far down the line! If you have children then I would push heavily for conclusive testing... I am definitely going to. Luckily I think my doctor will try to help.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,542
    • Most Online (within 30 mins)
      7,748
    Jacqueline Dee
    Newest Member
    Jacqueline Dee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.