Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To The Boards....

Mjohnson73

Recommended Posts

Mjohnson73 Apprentice
Mjohnson73
Posted

Hey All,

I just got tested last week for celiac disease and am waiting for the results... I have a ton of the symptoms (not going to go through them here) but my Rheumatologist (who i see for Fibromyalgia) suggested that even if the tests come back negative (not sure which tests he did) I should follow the gluten-free diet anyway... so here I am :)

I am working on getting completely gluten-free...

I do have a question... My son who is 6 who is about the size of a 4 year old, just went and saw the endocrinologist at Children's Hospital in Boston due to his Short Stature and Slow growth... when I mentioned that I was tested for Celiac, the Dr. said as soon as I find out my results, that i should call her cause it might be celiac that is causing his growth delay (he was on the charts until about the time I started feeding him solid foods and then he dropped off the growth charts)...he doesn't seem to have any symptoms but she said it might be a silent form of celiac....

Does this sound right? that celiac disease could make him not gain weight and not grow properly???

Thanks for the info that you might be able to give me and hope I am welcome here :)

--maya

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cgd Newbie
cgd
Posted

Yes, it sounds right! celiac disease can most definitely slow growth and cause failure to thrive in children. You're wise to get him tested, since immediate relatives are at risk of having this genetic thing we share. You've come to the right place for support and information. Welcome!

KaitiUSA Enthusiast
KaitiUSA
Posted

Yep, celiac can do that. Growth delay and lack of weight gain are symptoms of celiac. That is due to the malnutrition. He should be checked even if you do not have it.

You were not gluten free when the tests were done right? That can screw up test results.

Mjohnson73 Apprentice
Mjohnson73
Posted
  • Author
Yep, celiac can do that. Growth delay and lack of weight gain are symptoms of celiac. That is due to the malnutrition. He should be checked even if you do not have it.

You were not gluten free when the tests were done right? That can screw up test results.

<{POST_SNAPBACK}>

Nope I was eating gluten right up through the testing... I stopped after the tests...

I just hate having to wait for an entire week to find out...sigh... He said the tests were very specific and had to be sent out to I think he said California or something...

I will mention to his Pediatrician as well...

--Maya

tarnalberry Community Regular
tarnalberry
Posted
Does this sound right? that celiac disease could make him not gain weight and not grow properly???

Thanks for the info that you might be able to give me and hope I am welcome here :)

<{POST_SNAPBACK}>

It's absolutely true that celiac disease could keep him from absorbing nutrients and hence not gaining weight and grow properly! I say get him tested regardless of your results!

And you're definitely welcome to the board! :-)

Mjohnson73 Apprentice
Mjohnson73
Posted
  • Author

Hey all,

Thanks for the welcomes :)

I am still working on getting 100% gluten-free... but I am having trouble reading labels for "Hidden gluten"... is there a list somewhere that I might be able to take to the grocery store with me?

thanks!

--Maya

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,159
    • Most Online (within 30 mins)
      7,748
    Werae71
    Newest Member
    Werae71
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Hi there any advice welcomed. I have had 4 years of symptoms ranging from immune related anaphylactic symptom sudden onset food allergy to peppers/paprika/chilli/capsicum family derivatives. all these allergies fizzled out and following a food challenge test in hospital I reintroduced them a few months ago. Since then my digestive system is a mess. i have since noticed that 4 years ago when testing for iga allergies my iga level was .62 and my ttg was less than .1 (due to symptoms I was probably eating very plainly at that time). should I insist on being retested for celiac? I’ve since read two indicators for celiac include: sensitive to spicy foods when in flare up tooth enamel weakness and symmetrical discolouration patches on teeth which I have had since childhood on my two front teeth     thanks
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.